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Hospitals and Long Term Treatment: Chronic illness thread for the repeat customers

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Posts

  • LiiyaLiiya Registered User regular
    Yeah thats it, light the Stale-signal.

    I believe they are baked differently and the word stuck? I dunno!

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  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    But you offer me tea and biscuits and you very clearly are offering me tea and cookies.

    biscuits never enter the equation!

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): munkusbeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • LiiyaLiiya Registered User regular
    "Here Munkus, have some British biscuits, and some tea NO DON'T TRY TO PUT ICE IN IT!"

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  • Brovid HasselsmofBrovid Hasselsmof T-rex doesn't want to be fed Actually wait, yes she doesRegistered User regular
    Stale, this is a nosy question but how easy is it for you to have health insurance? I get the impression you've been ill for a long ass time and I always thought insurers did their best to get out of paying for pre-existing or long-term conditions.

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  • FyndirFyndir Registered User regular
    Liiya wrote: »
    Yeah thats it, light the Stale-signal.

    I believe they are baked differently and the word stuck? I dunno!

    It's about being twice baked, and etymology, and possibly French?

  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Liiya wrote: »
    "Here Munkus, have some British biscuits, and some tea NO DON'T TRY TO PUT ICE IN IT!"

    The fuck kind of tea isn't iced

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): munkusbeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • chrishallett83chrishallett83 Hi! Registered User regular
    The best kind?

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  • SyphyreSyphyre A Dangerous Pastime Registered User regular
    I'm gonna have to side with Munkus on this one. Iced tea is the BEST kind of tea dammit.

    Of course it helps that our lovely brits live in a climate where it's perpetually clammy. I live in a climate where I'm perpetually sweating.

    Steam ID - Syphyreal --- 3DS Friend Code: 2723-9387-1002
  • StaleStale Registered User regular
    God dammit woman... first off these aren't biscuits.

    [flips table]

    second, if it's hot, and in a mug, it's either coffee, or it's shit

    smof wrote: »
    Stale, this is a nosy question but how easy is it for you to have health insurance? I get the impression you've been ill for a long ass time and I always thought insurers did their best to get out of paying for pre-existing or long-term conditions.

    I'm lucky enough to work jobs that almost always provide good health benefits. Not always, as with my last job, I was denied coverage because the finance company I worked for got the cheapest insurance they could find and fucked me over with a shovel. sideways.

    However the company I work for currently has BCBS and since I eclipsed the "out of pocket maximum" by the third week of january, I'm only responsible for the tiny 10% portion.

    It's really all about how good, (i.e. expenisve) the coverage is that your employer provides. If I was self-employed?

    I'd have been dead long, long ago.

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  • LiiyaLiiya Registered User regular
    Syphyre wrote: »
    I'm gonna have to side with Munkus on this one. Iced tea is the BEST kind of tea dammit.

    Of course it helps that our lovely brits live in a climate where it's perpetually clammy. I live in a climate where I'm perpetually sweating.

    I think this is the key thing! Its raining right now outside, and its chilly. Not cold-drink drinking weather!

    So much anger, Stale! Hehehe

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  • AnialosAnialos RPG MPD patient #1 Registered User regular
    Liiya wrote: »
    Syphyre wrote: »
    I'm gonna have to side with Munkus on this one. Iced tea is the BEST kind of tea dammit.

    Of course it helps that our lovely brits live in a climate where it's perpetually clammy. I live in a climate where I'm perpetually sweating.

    I think this is the key thing! Its raining right now outside, and its chilly. Not cold-drink drinking weather!

    So much anger, Stale! Hehehe

    As a denizen of the PNW I must say that weather definitely matters. When I lived in NC I never thought to have hot tea. Now? Hot tea all day erry day.

    Dichotomy wrote: »
    I play a lot of video games but I wouldn't call myself a "gamer" because "gamer" has become a pretty fucking disgusting label

    like "skinhead" or "republican"
  • Blake TBlake T Registered User regular
    Stale, the fuck are you to tell people what are biscuits, you can't even struggle your way through American ones.

  • moocowmoocow Registered User regular
    My grandpa died yesterday. He had pretty advanced parkinson's, a lot of dementia, and some other issues. He got pneumonia last week and was put in hospice care. On Sunday he was running a super high fever. My aunt who was there sent out a text to the family that my grandma (who has alzheimer's pretty bad) said she wanted him taken off the oxygen, so they were going according to her wishes and taking him off. Another aunt texted back that they should put the oxygen back on when grandma left the room, that it was too soon for him to die. They did not turn the oxygen back on.

    I'll miss him and am bummed that if I ever manage to have kids, he won't get to meet them, but at least he's not feeling any pain anymore.

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  • EdcrabEdcrab Registered User
    I'm really sorry to hear that, moocow.

    My granddad had a seven-year battle with dementia and symptomatic Alzheimer's after complications from pneumonia and bronchitis.

    What I really remember is that he'd been a lifelong railroad engineer, and a great tinkerer and repairman. He used to take brand new appliances to pieces just for the hell of it, just to see how they ticked. And one day he dismantled his radio... and didn't know how to put it back together again. He just held the pieces in his hands and looked at them, and that's the first time I realised something was wrong

    Eventually the pneumonia struck again. Even breathing hurt. But my nana had made peace with losing him, as he hadn't been himself for the last year of his life. The last time I saw him he thought I was his little brother Bill. But at least he still managed to recognise his wife before he died- even if he didn't know what year it was, she was comforted by that

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  • StaleStale Registered User regular
    Blake T wrote: »
    Stale, the fuck are you to tell people what are biscuits, you can't even struggle your way through American ones.

    just for that, I'm ignoring your drawsomething game

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  • chrishallett83chrishallett83 Hi! Registered User regular
    Blake T wrote: »
    Stale, the fuck are you to tell people what are biscuits, you can't even struggle your way through American ones.

    21UqqBhGKoL._SL500_AA300_.jpg

    I imagine a packet of these could be his undoing...

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  • The GeekThe Geek Oh-Two Crew Registered User, ClubPA regular
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    Jeopardy3.jpg

    What does Keith do when he's excited?

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    Amazon wish list | Please check out my wife's blog and jewelry store.
  • SkeithSkeith Registered User regular
    :^:

    mts wrote: »
    heres how i see it being a total win situation for you
    1. stay with your wife while she dog sits. this wins husband points since she knows its out of your comfort zone
    2. have sex all over her friends house so that the next time you see her friend look at you condescendingly, you can wink back knowing you did the freaky deaky where she eats her cheerios.
  • Sir Headless VIISir Headless VII Registered User regular
    Hello fellow chronically ill patients, I am back home from the hospital after 2 and a half weeks in the hospital. I am still not near 100% but it is pretty rad to be out of the hospital. In other news I just posted a picture of my surgery scar on Facebook. Also after the operation the surgeon told me I had the most intestinal scarring of any chron's patient he had ever seen!

  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    So, tentatively good news.

    The abscess has shrunk and inflammation has gone down, despite everyone else's expectations. IV antibiotics seem to be working magic, which is what I had been saying they would.

    SO

    AS OF RIGHT NOW

    No surgery is scheduled.

    Oh, and I have a PICC line for home infusions.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): munkusbeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • chrishallett83chrishallett83 Hi! Registered User regular
    So, no bag? I hope that's what that means...

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  • AnialosAnialos RPG MPD patient #1 Registered User regular
    Yey Munkus! Lets hope the IV anti-bios continue their magic.

    Dichotomy wrote: »
    I play a lot of video games but I wouldn't call myself a "gamer" because "gamer" has become a pretty fucking disgusting label

    like "skinhead" or "republican"
  • StaleStale Registered User regular
    Got the the phone call from my doctor on my first round of blood test on this round of chemo.


    I am healthier on chemo than I am off. He doesn't know how or why. He can't really explain it entirely.


    I'm also starting to digest easier, or at least more completely. The pain is still there, but my body seems to be reacting favorably even though were just shy of two weeks in.


    "I don't know Dan. You're an Honest-to-God mystery. I've rarely encountered someone who responds atypicaly to everything."


    I've named this Animal-Mother Syndrome

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  • LiiyaLiiya Registered User regular
    Hooray Munkus and Stale!!! I am very glad to hear that!

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  • nevilleneville The Worst Gay (Seriously. The Worst!)Registered User regular
  • UsagiUsagi Feminazgul ~*special snowflake*~Registered User regular
    Woo!

    Jormungandr? Damn near killed 'er!
  • unintentionalunintentional Registered User regular
    Hooray!

    i'm out, follow me on twitter @uninten , steam is GaryMyNemesis
  • SyphyreSyphyre A Dangerous Pastime Registered User regular
    Two good news, hot damn.

    Steam ID - Syphyreal --- 3DS Friend Code: 2723-9387-1002
  • EdcrabEdcrab Registered User
    Great to hear it, guys!

    Also @Munkus Beaver I have a nagging suspicion that you're going to set out to bankrupt everyone in my made-up economy

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  • ceresceres Just your problem OoSuper Moderator, Moderator mod
    That is so good to hear, you guys.

    Munkus, you really needed some good news, and I am so glad for you.

    I want your respect, and I wanna be here
    But I don't want to rule the Nightosphere
  • DidgeridooDidgeridoo Registered User regular
    I hope that keeps working for you, Munkus! Glad to hear you've finally had some good news


    3DS Friend Code: 2766-8209-8772. Nintendo Network ID: Didge7
  • JansonJanson Registered User regular
    Yay Munkus and Stale!

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  • chrishallett83chrishallett83 Hi! Registered User regular
    Keep it up Stale, you have to be healthy enough to make it to Auspax next year.

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  • AvrahamAvraham white men holding kittens dot tumblr dot comRegistered User regular
    RT @therealnimoy Passover. A time for renewal. May we be free of old burdens. LLAP

    Here's to hoping your tentative good news becomes permanent good news!

    tumblr_mw0i6gT4l61qgwizbo1_250.png :bz :bz
  • rhylithrhylith Registered User regular
    edited April 2012
    Yay munkus!!!

    Yay stale!!!

    rhylith on
    Rhylith - <Shambler Milk> Horde Chogall
    League/XBL: Amalockh
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    I am sitting here with a canister of cipro that is slowly infusing into my body.

    Antibiotics: They work! But only through the IV. And nobody knows why.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): munkusbeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • LednehLedneh shinesquawk Registered User regular
    I don't suppose anyone here has run-ins with sleep apnea? I've noticed when dozing that the whole breathing thing'll stop for a half second--kinda like a hiccup, only more painful. Once it happened while I was sleeping, at like 2 AM, and woke me up--that was thoroughly weird.

    Anyway I'm thinking of asking the doc to refer me for a sleep study. I'm told the usual treatment for obstructive sleep apnea is a CPAP machine worn during sleep; what I can't figure out from the net is, is this something I'd be wearing the rest of my life, or do I eventually get 'better'?

    Kadith wrote: »
    how do i get off [the bus], do i just start screaming
    well that'll get me off at least.
  • SyphyreSyphyre A Dangerous Pastime Registered User regular
    I am sitting here with a canister of cipro that is slowly infusing into my body.

    Antibiotics: They work! But only through the IV. And nobody knows why.

    Because it's an IV. Acupuncture. Proof that it works! Don't worry about the antibiotics, you need more needles!

    Steam ID - Syphyreal --- 3DS Friend Code: 2723-9387-1002
  • CogliostroCogliostro Marginal Opinions Spring, TXRegistered User regular
    Stale wrote: »
    God dammit woman... first off these aren't biscuits.

    [flips table]

    second, if it's hot, and in a mug, it's either coffee, or it's shit

    Stale... this alone made me fall in love with you. :D

  • Bobkins FlymoBobkins Flymo T̰́h͏e͞ W̵aa͠si̡tiv͢e͟ Peŗs͜pe̸c҉t̛ive̶ Registered User, Super Moderator, Moderator mod
    Munkus, you need to mount an ostomy bag to the wall like a goddamn trophy or something.

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