Hospitals and Long Term Treatment: Chronic illness thread for the repeat customers

Fyndir

Eh, I'm doing alright really.

Saw a doctor recently who reckoned I could have a couple more years before my kidney failure actually hits the "DIALYSIS / TRANSPLANT RIGHT THE FUCK NOW" stage, which is pretty different from what I've been told previously.

So, you know, I hope she's right about that.

I'll be fine either way.

Nikolai

Dang Munkus I have Crohns too. Mine isn't anywhere near as bad as yours though. Hang in there man.

Rorus Raz

Stale, you're not a bad person for determining the quality of the ending period of your life. If the ostomy isn't going to save you, then it's a personal call if you wanna even bother going through with that.

Edcrab

I wish the universe would stop shitting on you guys

This is why it needs blown up. It's the only way it'll learn.

Stale

Rorus Raz wrote: »

Stale, you're not a bad person for determining the quality of the ending period of your life. If the ostomy isn't going to save you, then it's a personal call if you wanna even bother going through with that.

I'll die as I lived.

Pooping out my butt.

JoeUser

Munkus Beaver wrote:

JoeUser wrote:

Man, I wish there were some way I could help.

I could use help finding a job to pay the rent and, eventually, a computer and ipad (I was going to use my Christmas money to buy those things then ended up using it for this month's rent)

No luck on the legal front? Still in the Huntsville area? Any thought about non-legal things you'd like to try?

That Dave Fella

Stale wrote:

Rorus Raz wrote: »

Stale, you're not a bad person for determining the quality of the ending period of your life. If the ostomy isn't going to save you, then it's a personal call if you wanna even bother going through with that.

I'll die as I lived.

eating ketchup based bbq pork.

Stale

That Dave Fella wrote: »

Stale wrote:

Rorus Raz wrote: »

Stale, you're not a bad person for determining the quality of the ending period of your life. If the ostomy isn't going to save you, then it's a personal call if you wanna even bother going through with that.

I'll die as I lived.

eating ketchup based bbq pork.

There's a reason your people have been subjugated for millennia.

Stale

I honestly can't complain much.

back in late 08-early 09, the outlook was far worse. I've had a lot more time than originally thought. Perhaps I'll have more still. Who knows.

Rorus Raz

My concern, Stale, is that I've seen the last bit of time before cancer eats someone, and I wish there was an option available to gracefully bow out before that.

Stale

As do I.

As much as I wish this country was civilized enough to allow merciful end-of-life decisions, that is out of my hands.

Munkus Beaver

Rorus Raz wrote:

How fancy a PC do you need? I have bits from my old one.

First and foremost I am trying to run TOR on regular settings. My laptop that can run it overheats really quickly and chugs in any PvP BG.

Munkus Beaver

JoeUser wrote:

Munkus Beaver wrote:

JoeUser wrote:

Man, I wish there were some way I could help.

I could use help finding a job to pay the rent and, eventually, a computer and ipad (I was going to use my Christmas money to buy those things then ended up using it for this month's rent)

No luck on the legal front? Still in the Huntsville area? Any thought about non-legal things you'd like to try?

I'm a good recruiter, problem solver, negotiator. I'm willing to branch out into business to keep the money flowing and food on the table.

Label

That's why you move out of the south, Stale. Northwest has some death with dignity options.

Also got hipsters, though.

Munkus Beaver

Nikolai wrote:

Dang Munkus I have Crohns too. Mine isn't anywhere near as bad as yours though. Hang in there man.

Yeah, I am the 1%.

Rorus Raz

My old PC ran TOR, but it wasn't at the greatest settings. But that was beta back in October, so I dunno how much optimization has been done since then. But we're talking a GeForce 9600 and a two-core processor that might not even work. I, uh, have a bit of a short temper at times, and might have damaged the CPU when removing the DVD drive.

Fyndir

You guys ever see that documentary on Dignitas with Terry Pratchett?

It was pretty crushing at times, but I think it was really well done.

Shock G

I got multiple hereditary exostosis

shit's inconvenient

PiptheFair

yeah none of my conditions will kill me, just cause me to live with constant discomfort to outright pain and immense self-loathing

Rorus Raz

Fyndir wrote:

You guys ever see that documentary on Dignitas with Terry Pratchett?

It was pretty crushing at times, but I think it was really well done.

I read about it, and one scene in particular. Wasn't sure if I could handle a whole film of it.

Stale

PiptheFair wrote: »

yeah none of my conditions will kill me, just cause me to live with constant discomfort to outright pain and immense self-loathing

ain't no cure for baby dick

Romanian My Escutcheon

Stale wrote:

I honestly can't complain much.

back in late 08-early 09, the outlook was far worse. I've had a lot more time than originally thought. Perhaps I'll have more still. Who knows.

This had damn well better happen.

I gotta have some chips I can call in on for this.

Nikolai

Munkus Beaver wrote:

Nikolai wrote:

Dang Munkus I have Crohns too. Mine isn't anywhere near as bad as yours though. Hang in there man.

Yeah, I am the 1%.

I got diagnosed about 3 years ago and luckily the hospital I went to had a really really good gastro doctor on call. sadly I moved a few months back and the current one I have isn't really all that great so I'm looking for a new one.

Fyndir

Weird thing currently: If I position my right arm wrong it feels like spiders crawling inside my elbow, because I can actually feel the fistula (deliberately made for dialysis later) buzzing and almost tickling.

Munkus Beaver

Nikolai wrote:

Munkus Beaver wrote:

Nikolai wrote:

Dang Munkus I have Crohns too. Mine isn't anywhere near as bad as yours though. Hang in there man.

Yeah, I am the 1%.

I got diagnosed about 3 years ago and luckily the hospital I went to had a really really good gastro doctor on call. sadly I moved a few months back and the current one I have isn't really all that great so I'm looking for a new one.

Go out of state and find a really, really good specialist. A really good one. Trust me, it's worth it. Where do you live?

PiptheFair

Stale wrote:

PiptheFair wrote: »

yeah none of my conditions will kill me, just cause me to live with constant discomfort to outright pain and immense self-loathing

ain't no cure for baby dick

lmao

Liiya

Fyndir wrote:

You guys ever see that documentary on Dignitas with Terry Pratchett?

It was pretty crushing at times, but I think it was really well done.

I saw that, it was pretty crushing at times, but I'm glad he made it and I'm glad I watched it.


I'm not sure what to say to you sick guys, saying "I'm sorry" sounds empty and pathetic, even though I am sorry and feel its awful, it just seems empty to say over the internet. It the kind of thing you say accompanied with a big hug.

.

Stale wrote:

This would involve removing almost all my intestines and colon, thus leaving me with a straight slip-n-slide into an ostomy. I refused. Munkus is a far better man than I, I choose death before the ostomy.

Ostomies are awful. I wouldn't wish them on anyone. I have a lot of empathy/sympathy for you Munkus. I can't imagine having one for years.
Mostly dealing with mental issues now, but we can certainly compare scars. I pretend mine came from sharks.

Nikolai

Munkus Beaver wrote:

Nikolai wrote:

Munkus Beaver wrote:

Nikolai wrote:

Dang Munkus I have Crohns too. Mine isn't anywhere near as bad as yours though. Hang in there man.

Yeah, I am the 1%.

I got diagnosed about 3 years ago and luckily the hospital I went to had a really really good gastro doctor on call. sadly I moved a few months back and the current one I have isn't really all that great so I'm looking for a new one.

Go out of state and find a really, really good specialist. A really good one. Trust me, it's worth it. Where do you live?

Louisville Ky current;y but I'm gonna be moving to San Diego come August and I have higher hopes for finding a good gastro doctor out there than around here.

Hunter

Stale wrote:

That Dave Fella wrote: »

Stale wrote:

Rorus Raz wrote: »

Stale, you're not a bad person for determining the quality of the ending period of your life. If the ostomy isn't going to save you, then it's a personal call if you wanna even bother going through with that.

I'll die as I lived.

eating ketchup based bbq pork.

There's a reason your people have been subjugated for millennia.

Irish 7 course dinner.

Spoiler:

+

Rorus Raz

RMED is doing research on horocruxes as we speak.

Hunter

Why don't we just go kill a bunch of babies and inject their stem cells directly into Stale's colon to see what happens?

DrZiplock

Because nothing else can fit up his ass?

Hunter

DrZiplock wrote:

Because nothing else can fit up his ass?

Stale is an American...not an American't

Liiya

Hunter wrote:

DrZiplock wrote:

Because nothing else can fit up his ass?

Stale is an American...not an American't

Oh my Lord that is the best phrase.

Hunter

Liiya wrote:

Hunter wrote:

DrZiplock wrote:

Because nothing else can fit up his ass?

Stale is an American...not an American't

Oh my Lord that is the best phrase.

I have it on the mudflaps of my giant pickup truck that gets 1 mile per gallon.

Keith

Hunter wrote:

Liiya wrote:

Hunter wrote:

DrZiplock wrote:

Because nothing else can fit up his ass?

Stale is an American...not an American't

Oh my Lord that is the best phrase.

I have it on the mudflaps of my giant pickup truck that gets 1 mile per gallon.

right above the trucknutz

DrZiplock

Keith wrote:

Hunter wrote:

Liiya wrote:

Hunter wrote:

DrZiplock wrote:

Because nothing else can fit up his ass?

Stale is an American...not an American't

Oh my Lord that is the best phrase.

I have it on the mudflaps of my giant pickup truck that gets 1 mile per gallon.

right above the trucknutz

But below the bumper sticker that reads "Kick their Ass, Take their Gas"

eddizhere

I'm a long-time lurker here and I was diagnosed with Crohn's in late November. I'm uninsured at the moment and praying that my Crohn's gets more under control in the next few months. That said, reading Munkus's stories/stories of people on Crohn's forums terrifies the shit out of me. My GI sounds optimistic and pretty calm about things, but I'm worried that I'll just start deteriorating and have to get tons of surgery to no good effect.

Keith