Posting in this thread because I just spent 24 hours in the ER because of my Crohn's. They didn't really do much for me except give me and iv and talk about surgery. This is mostly because most of my problems come from scar tissue that has developed over the years (and apearntly now one of these) and not actual active inflammation so it isn't really treatable. Originally they had wanted to do the surgery I had scheduled for late march right then and there but after a lot of consultation they decided it is too complex to do at the drop of a hat by the on call surgeon. We are now waiting to see what can be arranged with my original surgeon (who is the guy that does this type of surgery most often) to bump it up a bit.
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Where is the surgery being done at? Specialist or local?
Humor can be dissected as a frog can, but dies in the process.
marty_0001I am a fileand you put documents in meRegistered Userregular
Uh so what is an ostomy and why is it so awful? I think my dad once told me my pop has had one for most of his life, may even have been among the first people in Australia to get one, but now I am thinking it was something else or I misunderstood.
Uh so what is an ostomy and why is it so awful? I think my dad once told me my pop has had one for most of his life, may even have been among the first people in Australia to get one, but now I am thinking it was something else or I misunderstood.
In simple terms:
1. Take intestine, cut out section.
2. Take open end of intestine and sew it into hole left open in abdominal wall
3. Poop now oozes out of that hole instead of your butt.
Uh so what is an ostomy and why is it so awful? I think my dad once told me my pop has had one for most of his life, may even have been among the first people in Australia to get one, but now I am thinking it was something else or I misunderstood.
In simple terms:
1. Take intestine, cut out section.
2. Take open end of intestine and sew it into hole left open in abdominal wall
3. Poop now oozes out of that hole instead of your butt.
Add to that; All the time, non-stop, even while you sleep (so you better not move around a lot in your sleep, or that thing'll pop. You won't wake up, by the way, so have a fun morning.)
Do feel free to ignore this post if it's too far / too personal, but Stale and Munkus, have either of you looked at options like Dignitas in Switzerland?
yes. But life insurance doesn't pay when you do. My estate has plans.
I don't want to give people the impression that I am encouraging suicide as a response to these issues, but
that is seriously weak
I guess I can understand not wanting to be the one-stop-shopping-stop for suicidal people who want to mitigate the awfulness that they'll inflict on their family, but still
if a man's got a right to live, he's got a right to die how he likes
KetarCome on upstairswe're having a partyRegistered Userregular
I had a problem with 2 degenerative discs that eventually herniated. Did epidural injections and physical therapy for about a year (well, a big chunk of that was PT exercises at home, not PT for a solid year) but eventually required microdiscectomy surgery. The worst night of pain I had in all that time was in a hotel in Bayeaux, France. The pinched nerve pain radiating down my legs was so bad I couldn't even walk to the bathroom, and I ended up in a French ER, where I was given some morphine and told to get back to the US where I had insurance, basically. I still do the PT exercises now over 2 years after the surgery, because if I don't I start to get some pain in my lower back again.
9.5 years ago I woke up the Sunday after Thanksgiving with a funny ringing in my ear. All I'd done the night before was hang out quietly with some friends and then bake a pie at home later, so this seemed pretty odd. The walk-in clinic at my hospital sent me home with some sinus meds and nasal spray. 3 days later I returned as directed since there'd been no improvement, and told them I thought I wasn't hearing as well. They referred me to an otolaryngologist, who ordered hearing testing. She ended up telling me that I had spontaneous hearing loss in my right ear, and that the ringing was actually just a side effect - basically my ear trying to compensate for the lost hearing. She gave me an anti-viral med to take in case it was viral in origin, but otherwise the only potential treatment she could think of was something she'd read about from Japan, which involved an IV infusion of radioactive dye used for radiological studies. That ended up causing a pretty awful burning sensation in my arm after about 15 minutes, so that was the end of that. The only other even remote possibility to reverse the hearing loss would have been something involving hyperbaric chambers that wasn't covered by my insurance. Went for an MRI that came back negative, so slowly got used to the constant ringing over the next few months while trying not to go crazy at night when that would be the only thing I could hear while in bed trying to sleep.
A few years later it felt like my hearing was worse, so saw a new otolaryngologist who confirmed that it was indeed even worse. Another MRI came back negative, but he told me that given the progressive nature of the hearing loss I most likely had a very small tumor affecting my auditory nerve on that side. He put me on a diuretic because some people had seen their hearing stabilize through that regulation of fluid levels somehow. Peeing every 30 minutes was not awesome, and after 6 months or so we decided to discontinue the med since best case it was only going to keep pretty lousy hearing from getting even worse. A couple years after that my hearing worsened yet again, and at the same time I was getting some amazingly wretched single-sided headaches and occasional balance issues. Another MRI was ordered, this time with contrast, but everything was negative and the doctor had no suggestions for me. We talked about a hearing aid, but I was told my hearing loss was severe enough that a hearing aid probably wouldn't actually help.
Around this past Christmas I noticed that the hearing loss had gotten worse yet again. At this point I don't know if I actually have any hearing left in that ear. Then one week ago I woke up with the ringing in my ear ratcheted up to 5-10 times louder than usual. I made an appointment with my doctor for Tuesday, and will definitely end up getting hearing tested and most likely end up getting another MRI. I'm going to ask about the possibility of cochlear implant surgery at this point, as it's getting difficult for me to hear anything people say in a loud restaurant or bar, even when I make sure my good ear is towards them.
Oh, I was also diagnosed with sleep apnea a few years back. I've done a handful of overnight sleep studies, and have to sleep with a CPAP machine every night. There is some potential corrective surgery for that, but it is supposed to be very painful and without a high enough success rate to really make me feel good about it. I'm getting really tired of sleeping with that mask on though, so I'm probably going to go see an ENT doc to discuss that within the next month or two as well.
Fun fact: The surgical assessment team could tell me exactly what my BMI should be before they'll do major surgery in a non-emergency situation, but had no clue what weight that meant I should be.
So I get to do maaaaaaaaths, and I think I've only got to lose 27 pounds or so, which is hardly any pounds at all!
I eagerly wait to be corrected next time I go to a clinic, but fuck it, I did my amateur best to work it out, and frankly I don't see why the doctors wouldn't be able to tell me something like that, she was sitting at a computer with all my information, including height and regular weight checks.
Now, from what I understand, the best way to lose weight is eating sticks of butter, correct?
Fyndir they probably didn't want to give you a hard number because weight alone doesn't tell you what your BMI is. You can weigh what seems like a lot, but if most of that is muscle instead of fat, you will still have a low BMI. So really there are two ways you can lower BMI: losing fat, or gaining muscle (while not putting on any more fat).
I thought BMI was just a straight height and weight calculation?
I mean, plenty of websites seem happy to tell me my BMI based solely on those two things, so they don't seem to be taking muscle mass or body fat % or anything into account.
I'm pretty sure I've never had anything more complicated than height and weight done, I am fairly sure they are doing the exact same thing as the websites.
0
Options
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
I thought BMI was just a straight height and weight calculation?
I mean, plenty of websites seem happy to tell me my BMI based solely on those two things, so they don't seem to be taking muscle mass or body fat % or anything into account.
BMI looks to indeed be based solely off of height and weight. The reason they didn't want to give you a hard number probably still had something to do with the "muscle vs. fat" issue (I was thinking of body fat percentage, and mistakenly thought BMI took that into account), but if they are basing everything just off of that chart it does seem odd that they wouldn't give you a weight range to shoot for.
That's why I was confused, they just didn't seem to know what the weight should be, just that my BMI had to be 35 or lower, the actual advice they gave me when I asked was to look it up online, and they pointed out that I might have to try just putting in random numbers for weight on a website until it gave me the right BMI.
a 6ft tall guy can have a naturally small frame or a naturally wide frame. therefore his BMI can vary greatly depending on the baseline the measurement uses.
BMI is not an exact science by any stretch. The algorithm used by websites can vary greatly.
Which makes their advice to go use a random website even more confusing, to my mind.
0
Options
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
So I am super pissed at the pharmacy that mails me my meds.
I was supposed to get my medication on Weds. for an injection on Weds. I received it today at 5 PM.
Here's the kicker:
I called on monday because I hadn't received the shipment yet, turns out they hadn't put the order in at all. So I tell them I need it by Weds., they say they can get it to me by Thursday at the earliest. I say no, Weds. You guys messed up here and should have sent it to me last week, I need it by Weds. They say "Well, we will try to get it down by Weds., but we can't promise things will be in order by then. We will call you on Tuesday if anything comes up."
No call on Tuesday.
So Weds. comes and goes with no package. I assume that I am dealing with regular old incompetence and they just forgot to call me on Tuesday to let me know that the shipment was delayed.
Thursday comes. I keep going by the front office at my apartment complex checking for deliveries, they keep saying that UPS hasn't delivered yet (UPS being the shipment service usually used by the pharmacy). I am told to check back around 5 PM, as that is when UPS sometimes delivers. No dice, no shipment on Thursday.
I call them Friday morning, 9 AM, first fucking thing. They tell me the shipment was sent and signed for on Weds. I say "What?" They say yes, to Hotel Capstone in Tuscaloosa. I say "You are shitting me." I live in Madison, Alabama. I will give you a moment to check google maps.
...
Done?
Hotel Capstone is where I stayed for four weeks in May of 2011 and received exactly one shipment of medicine. I stayed there because my home was destroyed by the tornado. Every single shipment after that? Has been to my Madison address. I didn't even know they had the Hotel Capstone address on file, I don't even know what the fuck the Hotel Capstone address is.
So they tell me they need to confirm with "The phone logs" to make sure I told the representative the correct address. Despite me pointing out that there was no logical consistency behind me saying the Hotel Capstone address based on how it was used once and for the past year they have been sending it to the madison address. I further emphasize how I needed this medication on Weds. and that it is now Friday. They assure me it is a priority and will be taken care of ASAP.
At two o clock, I call again to get a status update. They say the manager is just now reviewing the tapes. It can't be more than a 10 minute conversation. I call back at four o'clock, I am tired from having to deal with their crap, they still have not reviewed the tapes, but assure me it is a 'priority' and that they are on it right now. They tell me they will be there until 10 PM so I shouldn't worry. Great.
In my exhausation, I fall asleep on the floor. I wake up at 8:50 PM and realize those fucks never called me back.
I call them. Surprise! THOSE ASSHOLES NEVER REVIEWED THE FUCKING TAPES. I am now being told that the earliest they can send it to me is by Tuesday. They are also telling me they might not have a pharmacist on location to approve sending my medicine. I am barely holding in my rage and insist they review the fucking tapes and go into a lengthy discussion about how I am actually sick, desperately need this medicine, needed this medicine days ago, and how when they check the records they'll see that this is entirely their fault. And they need to make this happen so I get this medicine immediately and not wait.
Finally, after another hour, they call me back and they have reviewed the tapes. Oh really, you're going to call the pharmacies around here to see if they have the medication to give it to me? Oh none have it? So you're going to do a same-day shipment? How very nice* (*re: damage control) of you.
Then I get a call this morning telling me that it won't actually be a same day shipment, but that I will receive it at 2 A.M. on Sunday morning. The. Fuck. Keep in mind that this particular medication has to be mixed and administered by a registered nurse, so I have been rescheduling shit with her all week due to this gross incompetence. There's nothing I can really do at this point, so I leave my apartment and go to my parent's place to work on some cover letters and my resume for job applications.
Suddenly I get a call at 4 o'clock from a guy who wants to deliver a package at my apartment. What? Oh and it needs a signature. What? Well, the guys at the front office are about to leave so he can just leave it on the front porch. Dammit.
So really, the final troll by the pharmacy was making me think the medicine was coming in the morning so I would have to cancel my meeting with the Nurse and not be there for the shipment. Thank God my nurse is super nice and was willing to come out on short notice and give me my shot.
And you want to know the kicker? Their explanation as to why it was sent to Hotel fucking Capstone in Tusca fucking Loosa and not my apartment?
"Well sir, you gave the representative the right information. And the representative input the right information into the computer. But someone came along later and changed the information."
So yeah, I'll be calling on monday to speak to a manager about this shit to make sure that this doesn't happen again. Because whoever pulled this shit needs to be fired, I can't be constantly fearing that some random asshat is going to screw over my health on short notice for no fucking reason.
ARGH.
Frustration.
Humor can be dissected as a frog can, but dies in the process.
Geeze, Munkus, I'm sorry you had to deal with that! Terrible customer service is hard to deal with under the best of circumstances, but it must be so much worse when your health is actually at stake!
You'd think those idiots would be a little more on top of things considering the fact that people depend upon them for lifesaving medication but I guess not
Didgeridoo on
0
Options
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Holy crap that was a lot of text.
But yeah, crappy customer service it's my life you dicks
Humor can be dissected as a frog can, but dies in the process.
Which makes their advice to go use a random website even more confusing, to my mind.
"Fyndir, we can cut you, but odds are increased you'll die. lose weight, you're obese."
This is what they are saying. However the general public tends to get butthurt when they hear that.
That bit I get fine, but the bizarre method of phrasing that, and directing me to get my information from whatever random sources I can find online, is just really weird.
I'm right there, give me the information I'm asking for.
AnialosCollies are love, Collies are life!Shadowbrook ColliesRegistered Userregular
Dear lord, Munkus. Any way you can bring legal action against them for pain, suffering, and endangering your life?
0
Options
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Dear lord, Munkus. Any way you can bring legal action against them for pain, suffering, and endangering your life?
Not really.
But the fact that I might is what is making them bend over backwards to accommodate me once they realize they boned me over. Same day shipping across the country isn't cheap.
Humor can be dissected as a frog can, but dies in the process.
0
Options
AnialosCollies are love, Collies are life!Shadowbrook ColliesRegistered Userregular
Dear lord, Munkus. Any way you can bring legal action against them for pain, suffering, and endangering your life?
Not really.
But the fact that I might is what is making them bend over backwards to accommodate me once they realize they boned me over. Same day shipping across the country isn't cheap.
I'm all for restricting frivolous litigation, but this is one of the things I really do think you should be able to ream a company for.
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
yeah I'm about ready to give up. Family won' be able to support after May, and the caththeter has me in too much pain to think. Can't enjoy my ME3.
Sometimes pain meds work, but it takes too much of em.
Humor can be dissected as a frog can, but dies in the process.
0
Options
Blake TDo you have enemies then?Good. That means you’ve stood up for something, sometime in your life.Registered Userregular
Munkus I'm not going to say I'm sorry to hear that, cause you've heard it all before. But at the very least I want to say I've read it so you don't feel like you're yelling into the abyss.
yeah I'm about ready to give up. Family won' be able to support after May, and the caththeter has me in too much pain to think. Can't enjoy my ME3.
Sometimes pain meds work, but it takes too much of em.
So are you still looking for a job, or is the search off for now? Have you looked into disability for at least the short term?
0
Options
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
yeah I'm about ready to give up. Family won' be able to support after May, and the caththeter has me in too much pain to think. Can't enjoy my ME3.
Sometimes pain meds work, but it takes too much of em.
So are you still looking for a job, or is the search off for now? Have you looked into disability for at least the short term?
I need to apply to disability, but that's a huge question mark on success and ironically hurting too much to focus on it.
I need to find job for when this catheter comes out, I've applied to a couple but obviously if I got any I don't know what I'd do with this level of pain.
Humor can be dissected as a frog can, but dies in the process.
0
Options
The GeekOh-Two Crew, OmeganautRegistered User, ClubPAregular
Munkus, I know this may come across as disingenuous because of the timing, but I wanted to say that I'm sorry that there were times in years passed that I was a dick to you.
yeah I'm about ready to give up. Family won' be able to support after May, and the caththeter has me in too much pain to think. Can't enjoy my ME3.
Sometimes pain meds work, but it takes too much of em.
So are you still looking for a job, or is the search off for now? Have you looked into disability for at least the short term?
I need to apply to disability, but that's a huge question mark on success and ironically hurting too much to focus on it.
In my experience applying for and receiving disability benefits they are very receptive and helpful in a situation like that as it is kind of the point of receiving disability benefits. It is helpful to get the process started as soon as possible though since there may a waiting period or some other stipulation that you may have to meet. Also some things may be based around when you apply as opposed to when you became eligible (which for you sounds like a long time ago). If I were you I would get someone to call on your behalf if you are not able and get the process started or at least get some information on doing so. All my experience has been in Canada though so I cant really guarantee this is accurate for you or help you with specifics.
While I am here, I had a failed balloon enteroscopy today in order to retrieve a camera capsule lost in me during a failed capsule endoscopy. Apparently today's procedure failed because I have a J shaped stomach (this would be funny if you knew me personally) and the scope was not able to pass properly through it. The capsule will have to be retrieved in the surgery I am having later this month (the point of this procedure being to avoid that). Also this is the second failed attempt to retrieve the capsule, the first being a colonoscopy that couldn't reach. Hooray for my messed up digestive system.
yeah I'm about ready to give up. Family won' be able to support after May, and the caththeter has me in too much pain to think. Can't enjoy my ME3.
Sometimes pain meds work, but it takes too much of em.
So are you still looking for a job, or is the search off for now? Have you looked into disability for at least the short term?
I need to apply to disability, but that's a huge question mark on success and ironically hurting too much to focus on it.
I need to find job for when this catheter comes out, I've applied to a couple but obviously if I got any I don't know what I'd do with this level of pain.
Munkus I basically have no qualifications or legal know-how but seriously if you don't qualify for disability who the fuck does
As always, I'm wishing you the best, and hoping for a turnaround
So, about a week ago I noticed a sizable lump on the back side of my right testicle. My father had testicular cancer about 10 years ago, so woo hoo family history. I went to see the doctor as soon as I could right after noticing and I was diagnosed with epididimitis and prescribed an antibiotic. Fast forward to one week later, the antibiotics have not been effective at all and I went in for a second visit to the doctor.
He doesn't seem particularly concerned about my lump, but agreed to go ahead and schedule an ultrasound for my "peace of mind". So on Tuesday I get to go find out if I might have cancer...or if one of my balls is pregnant.
I really hope it's nothing, but from what I've been able to determine from playing with my balls more than I have since I was 14 I really don't fit the symptoms of any of the alternate disorders that a mass in my testicle could be.
Posts
In simple terms:
1. Take intestine, cut out section.
2. Take open end of intestine and sew it into hole left open in abdominal wall
3. Poop now oozes out of that hole instead of your butt.
Wii Friend Code: 0072 4984 2399 2126
PSN ID : Theidar
Facebook
Behold the annhilation of the extraterrestrial and the rise of the machines.
Hail Satan!
WISHLIST
Add to that; All the time, non-stop, even while you sleep (so you better not move around a lot in your sleep, or that thing'll pop. You won't wake up, by the way, so have a fun morning.)
To summarize:
D3: Cymril#1411 || League of Legends/Steam/Xbox/Origin: Cymril
I don't want to give people the impression that I am encouraging suicide as a response to these issues, but
that is seriously weak
I guess I can understand not wanting to be the one-stop-shopping-stop for suicidal people who want to mitigate the awfulness that they'll inflict on their family, but still
if a man's got a right to live, he's got a right to die how he likes
9.5 years ago I woke up the Sunday after Thanksgiving with a funny ringing in my ear. All I'd done the night before was hang out quietly with some friends and then bake a pie at home later, so this seemed pretty odd. The walk-in clinic at my hospital sent me home with some sinus meds and nasal spray. 3 days later I returned as directed since there'd been no improvement, and told them I thought I wasn't hearing as well. They referred me to an otolaryngologist, who ordered hearing testing. She ended up telling me that I had spontaneous hearing loss in my right ear, and that the ringing was actually just a side effect - basically my ear trying to compensate for the lost hearing. She gave me an anti-viral med to take in case it was viral in origin, but otherwise the only potential treatment she could think of was something she'd read about from Japan, which involved an IV infusion of radioactive dye used for radiological studies. That ended up causing a pretty awful burning sensation in my arm after about 15 minutes, so that was the end of that. The only other even remote possibility to reverse the hearing loss would have been something involving hyperbaric chambers that wasn't covered by my insurance. Went for an MRI that came back negative, so slowly got used to the constant ringing over the next few months while trying not to go crazy at night when that would be the only thing I could hear while in bed trying to sleep.
A few years later it felt like my hearing was worse, so saw a new otolaryngologist who confirmed that it was indeed even worse. Another MRI came back negative, but he told me that given the progressive nature of the hearing loss I most likely had a very small tumor affecting my auditory nerve on that side. He put me on a diuretic because some people had seen their hearing stabilize through that regulation of fluid levels somehow. Peeing every 30 minutes was not awesome, and after 6 months or so we decided to discontinue the med since best case it was only going to keep pretty lousy hearing from getting even worse. A couple years after that my hearing worsened yet again, and at the same time I was getting some amazingly wretched single-sided headaches and occasional balance issues. Another MRI was ordered, this time with contrast, but everything was negative and the doctor had no suggestions for me. We talked about a hearing aid, but I was told my hearing loss was severe enough that a hearing aid probably wouldn't actually help.
Around this past Christmas I noticed that the hearing loss had gotten worse yet again. At this point I don't know if I actually have any hearing left in that ear. Then one week ago I woke up with the ringing in my ear ratcheted up to 5-10 times louder than usual. I made an appointment with my doctor for Tuesday, and will definitely end up getting hearing tested and most likely end up getting another MRI. I'm going to ask about the possibility of cochlear implant surgery at this point, as it's getting difficult for me to hear anything people say in a loud restaurant or bar, even when I make sure my good ear is towards them.
Oh, I was also diagnosed with sleep apnea a few years back. I've done a handful of overnight sleep studies, and have to sleep with a CPAP machine every night. There is some potential corrective surgery for that, but it is supposed to be very painful and without a high enough success rate to really make me feel good about it. I'm getting really tired of sleeping with that mask on though, so I'm probably going to go see an ENT doc to discuss that within the next month or two as well.
So I get to do maaaaaaaaths, and I think I've only got to lose 27 pounds or so, which is hardly any pounds at all!
I eagerly wait to be corrected next time I go to a clinic, but fuck it, I did my amateur best to work it out, and frankly I don't see why the doctors wouldn't be able to tell me something like that, she was sitting at a computer with all my information, including height and regular weight checks.
Now, from what I understand, the best way to lose weight is eating sticks of butter, correct?
I mean, plenty of websites seem happy to tell me my BMI based solely on those two things, so they don't seem to be taking muscle mass or body fat % or anything into account.
although BMI is a fairly rough guess even then
Basically, they don't want to cut on someone who is obese, or borderline, as they have a tendency to stroke out.
Nah, it's because they don't consider fat people to be human.
well yeah, clearly. I was trying to be nice.
Ah, looks like I am in fact incorrect
BMI looks to indeed be based solely off of height and weight. The reason they didn't want to give you a hard number probably still had something to do with the "muscle vs. fat" issue (I was thinking of body fat percentage, and mistakenly thought BMI took that into account), but if they are basing everything just off of that chart it does seem odd that they wouldn't give you a weight range to shoot for.
a 6ft tall guy can have a naturally small frame or a naturally wide frame. therefore his BMI can vary greatly depending on the baseline the measurement uses.
BMI is not an exact science by any stretch. The algorithm used by websites can vary greatly.
I was supposed to get my medication on Weds. for an injection on Weds. I received it today at 5 PM.
Here's the kicker:
I called on monday because I hadn't received the shipment yet, turns out they hadn't put the order in at all. So I tell them I need it by Weds., they say they can get it to me by Thursday at the earliest. I say no, Weds. You guys messed up here and should have sent it to me last week, I need it by Weds. They say "Well, we will try to get it down by Weds., but we can't promise things will be in order by then. We will call you on Tuesday if anything comes up."
No call on Tuesday.
So Weds. comes and goes with no package. I assume that I am dealing with regular old incompetence and they just forgot to call me on Tuesday to let me know that the shipment was delayed.
Thursday comes. I keep going by the front office at my apartment complex checking for deliveries, they keep saying that UPS hasn't delivered yet (UPS being the shipment service usually used by the pharmacy). I am told to check back around 5 PM, as that is when UPS sometimes delivers. No dice, no shipment on Thursday.
I call them Friday morning, 9 AM, first fucking thing. They tell me the shipment was sent and signed for on Weds. I say "What?" They say yes, to Hotel Capstone in Tuscaloosa. I say "You are shitting me." I live in Madison, Alabama. I will give you a moment to check google maps.
...
Done?
Hotel Capstone is where I stayed for four weeks in May of 2011 and received exactly one shipment of medicine. I stayed there because my home was destroyed by the tornado. Every single shipment after that? Has been to my Madison address. I didn't even know they had the Hotel Capstone address on file, I don't even know what the fuck the Hotel Capstone address is.
So they tell me they need to confirm with "The phone logs" to make sure I told the representative the correct address. Despite me pointing out that there was no logical consistency behind me saying the Hotel Capstone address based on how it was used once and for the past year they have been sending it to the madison address. I further emphasize how I needed this medication on Weds. and that it is now Friday. They assure me it is a priority and will be taken care of ASAP.
At two o clock, I call again to get a status update. They say the manager is just now reviewing the tapes. It can't be more than a 10 minute conversation. I call back at four o'clock, I am tired from having to deal with their crap, they still have not reviewed the tapes, but assure me it is a 'priority' and that they are on it right now. They tell me they will be there until 10 PM so I shouldn't worry. Great.
In my exhausation, I fall asleep on the floor. I wake up at 8:50 PM and realize those fucks never called me back.
I call them. Surprise! THOSE ASSHOLES NEVER REVIEWED THE FUCKING TAPES. I am now being told that the earliest they can send it to me is by Tuesday. They are also telling me they might not have a pharmacist on location to approve sending my medicine. I am barely holding in my rage and insist they review the fucking tapes and go into a lengthy discussion about how I am actually sick, desperately need this medicine, needed this medicine days ago, and how when they check the records they'll see that this is entirely their fault. And they need to make this happen so I get this medicine immediately and not wait.
Finally, after another hour, they call me back and they have reviewed the tapes. Oh really, you're going to call the pharmacies around here to see if they have the medication to give it to me? Oh none have it? So you're going to do a same-day shipment? How very nice* (*re: damage control) of you.
Then I get a call this morning telling me that it won't actually be a same day shipment, but that I will receive it at 2 A.M. on Sunday morning. The. Fuck. Keep in mind that this particular medication has to be mixed and administered by a registered nurse, so I have been rescheduling shit with her all week due to this gross incompetence. There's nothing I can really do at this point, so I leave my apartment and go to my parent's place to work on some cover letters and my resume for job applications.
Suddenly I get a call at 4 o'clock from a guy who wants to deliver a package at my apartment. What? Oh and it needs a signature. What? Well, the guys at the front office are about to leave so he can just leave it on the front porch. Dammit.
So really, the final troll by the pharmacy was making me think the medicine was coming in the morning so I would have to cancel my meeting with the Nurse and not be there for the shipment. Thank God my nurse is super nice and was willing to come out on short notice and give me my shot.
And you want to know the kicker? Their explanation as to why it was sent to Hotel fucking Capstone in Tusca fucking Loosa and not my apartment?
"Well sir, you gave the representative the right information. And the representative input the right information into the computer. But someone came along later and changed the information."
So yeah, I'll be calling on monday to speak to a manager about this shit to make sure that this doesn't happen again. Because whoever pulled this shit needs to be fired, I can't be constantly fearing that some random asshat is going to screw over my health on short notice for no fucking reason.
ARGH.
Frustration.
You'd think those idiots would be a little more on top of things considering the fact that people depend upon them for lifesaving medication but I guess not
But yeah, crappy customer service it's my life you dicks
"Fyndir, we can cut you, but odds are increased you'll die. lose weight, you're obese."
This is what they are saying. However the general public tends to get butthurt when they hear that.
That bit I get fine, but the bizarre method of phrasing that, and directing me to get my information from whatever random sources I can find online, is just really weird.
I'm right there, give me the information I'm asking for.
Good luck complaining to the manager!
I AM SORRY THAT I GOT FAT
I WILL TRY TO SLIM DOWN
Satans..... hints.....
Not really.
But the fact that I might is what is making them bend over backwards to accommodate me once they realize they boned me over. Same day shipping across the country isn't cheap.
I'm all for restricting frivolous litigation, but this is one of the things I really do think you should be able to ream a company for.
Those kinda stories make me hesitant to do any kind of mail prescription thing :?
Sometimes pain meds work, but it takes too much of em.
Satans..... hints.....
So are you still looking for a job, or is the search off for now? Have you looked into disability for at least the short term?
I need to apply to disability, but that's a huge question mark on success and ironically hurting too much to focus on it.
I need to find job for when this catheter comes out, I've applied to a couple but obviously if I got any I don't know what I'd do with this level of pain.
In my experience applying for and receiving disability benefits they are very receptive and helpful in a situation like that as it is kind of the point of receiving disability benefits. It is helpful to get the process started as soon as possible though since there may a waiting period or some other stipulation that you may have to meet. Also some things may be based around when you apply as opposed to when you became eligible (which for you sounds like a long time ago). If I were you I would get someone to call on your behalf if you are not able and get the process started or at least get some information on doing so. All my experience has been in Canada though so I cant really guarantee this is accurate for you or help you with specifics.
While I am here, I had a failed balloon enteroscopy today in order to retrieve a camera capsule lost in me during a failed capsule endoscopy. Apparently today's procedure failed because I have a J shaped stomach (this would be funny if you knew me personally) and the scope was not able to pass properly through it. The capsule will have to be retrieved in the surgery I am having later this month (the point of this procedure being to avoid that). Also this is the second failed attempt to retrieve the capsule, the first being a colonoscopy that couldn't reach. Hooray for my messed up digestive system.
Munkus I basically have no qualifications or legal know-how but seriously if you don't qualify for disability who the fuck does
As always, I'm wishing you the best, and hoping for a turnaround
He doesn't seem particularly concerned about my lump, but agreed to go ahead and schedule an ultrasound for my "peace of mind". So on Tuesday I get to go find out if I might have cancer...or if one of my balls is pregnant.
I really hope it's nothing, but from what I've been able to determine from playing with my balls more than I have since I was 14 I really don't fit the symptoms of any of the alternate disorders that a mass in my testicle could be.