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Hospitals and Long Term Treatment: Chronic illness thread for the repeat customers part 2

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Posts

  • MadEddyMadEddy Creepy house watching youRegistered User regular
    I am having to go to the Mayo fucking Clinic to get to a doctor who will attempt surgery.

    Seriously. It's kinda fucked up when you have doctors going "Yeah, you need surgery. Badly." then: "Oh, but I would not be comfortable doing it." followed by: "It's not life threatening, it's only pain."

    Oh, fuck whoever said that with a rusty chainsaw.

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  • StaleStale Registered User regular
    @Vivixenne It doesn't matter how long it's been since we were able to sit down, I still love you babe.

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    Vivixenne
  • MadEddyMadEddy Creepy house watching youRegistered User regular
    Hmm. So my neuro's been tapering me down to a lower dose of my brain pressure med to see if that lower dose keeps it controlled. (The side effects have been kicking my ass.) I have a headache that could be pressure, or could be migraine, but my depth perception is back.

    I literally missed my exit on the highway this morning because I was so excited about stuff being three-dimensional. Either the nerve has reached a point in its healing and the timing was just coincidence, or I was having vision-related side effects from the acetazolamide. I see my ophthalmologist soonish, so I guess maybe he can say.

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  • TheStigTheStig Registered User regular
    Kiiiiinda? I mean, they knew what procedures were going to be ordered, you can't really expect to get anything quick from a 22.

    But if I recall, it was my 8th stick and they were just taking my advice, since a 22 is easier to thread the vein on my arms, but I had no idea just how unsuitable it is for receiving contrast.

    I generally ask for 20s in my legs at this point, my arms are just wasted out veins.

    Next time you suspect you will need a CT give them a heads up and ask them to use a 22 diffusics

    http://www.bd.com/infusion/products/ivcatheters/diffusics/

    It's a 22 that can handle high pressures. I don't know if everyone carries them though :/

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  • cabsycabsy the fattest rainbow unicorn Registered User regular
    TheStig wrote: »
    Kiiiiinda? I mean, they knew what procedures were going to be ordered, you can't really expect to get anything quick from a 22.

    But if I recall, it was my 8th stick and they were just taking my advice, since a 22 is easier to thread the vein on my arms, but I had no idea just how unsuitable it is for receiving contrast.

    I generally ask for 20s in my legs at this point, my arms are just wasted out veins.

    Next time you suspect you will need a CT give them a heads up and ask them to use a 22 diffusics

    http://www.bd.com/infusion/products/ivcatheters/diffusics/

    It's a 22 that can handle high pressures. I don't know if everyone carries them though :/

    I hate the catch 22 of chronic issues, "I know what I'm talking about" being read as drug seeking or hypochondria or who the fuck knows

    Especially since many brain problem medicines are controlled substances, so it's the constant dance of how do I let my provider know I know what I need without sounding like I just want to get high while also being aware of needing to present enough symptoms to justify the medication so for instance I don't take my ADHD meds on therapy days

  • Caulk Bite 6Caulk Bite 6 One of the multitude of Dans infesting this place Registered User regular
    edited March 2015
  • DevoutlyApatheticDevoutlyApathetic Registered User regular
    cabsy wrote: »
    TheStig wrote: »
    Kiiiiinda? I mean, they knew what procedures were going to be ordered, you can't really expect to get anything quick from a 22.

    But if I recall, it was my 8th stick and they were just taking my advice, since a 22 is easier to thread the vein on my arms, but I had no idea just how unsuitable it is for receiving contrast.

    I generally ask for 20s in my legs at this point, my arms are just wasted out veins.

    Next time you suspect you will need a CT give them a heads up and ask them to use a 22 diffusics

    http://www.bd.com/infusion/products/ivcatheters/diffusics/

    It's a 22 that can handle high pressures. I don't know if everyone carries them though :/

    I hate the catch 22 of chronic issues, "I know what I'm talking about" being read as drug seeking or hypochondria or who the fuck knows

    Especially since many brain problem medicines are controlled substances, so it's the constant dance of how do I let my provider know I know what I need without sounding like I just want to get high while also being aware of needing to present enough symptoms to justify the medication so for instance I don't take my ADHD meds on therapy days

    I am about as far from drug seeking as you can get. Over the course of the three surgeries I've had in the last year I think I've taken like 3 of the narcotic pain pills prescribed to me for the first one. With this latest one I was having a bit of irritation at a weird place and trying to get the surgeon to give his opinion on why and he went into his polite "Well it's much too late in the process for pain management....." and I was just baffled. Like I was worried about infection or something and he hasn't written me a pain script for like a year at this point. Weird.

    cabsy
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    edited March 2015
    cabsy wrote: »
    TheStig wrote: »
    Kiiiiinda? I mean, they knew what procedures were going to be ordered, you can't really expect to get anything quick from a 22.

    But if I recall, it was my 8th stick and they were just taking my advice, since a 22 is easier to thread the vein on my arms, but I had no idea just how unsuitable it is for receiving contrast.

    I generally ask for 20s in my legs at this point, my arms are just wasted out veins.

    Next time you suspect you will need a CT give them a heads up and ask them to use a 22 diffusics

    http://www.bd.com/infusion/products/ivcatheters/diffusics/

    It's a 22 that can handle high pressures. I don't know if everyone carries them though :/

    I hate the catch 22 of chronic issues, "I know what I'm talking about" being read as drug seeking or hypochondria or who the fuck knows

    Especially since many brain problem medicines are controlled substances, so it's the constant dance of how do I let my provider know I know what I need without sounding like I just want to get high while also being aware of needing to present enough symptoms to justify the medication so for instance I don't take my ADHD meds on therapy days

    It took fifteen years, but being diagnosed with ADHD as a child helped out with something. The fact that I don't take it 99% of the time actually helps, for some raisin.

    I was throwing up and had to go to the hospital. Doctor thought it was drug seeking so I got an IM shot and boop. Now I have to just wait through the pain until my next appointment.

    EDIT: For the record, I went there hoping for an IV and some antibiotics but she sad no, I had to just take pills. Which don't work so great. So I settled on the IM shot and with that all she would give me is pain meds and nausea meds. Of course, I felt like a real creep asking for no nausea meds cause one makes me vomit and the other burns like a thousand suns with a IM shot.

    Munkus Beaver on
    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • I ZimbraI Zimbra Registered User regular
    At the hospital with my girlfriend for her 3rd knee surgery in just over 2 years. Hopefully this will be the last one for a while.

    cabsy
  • cabsycabsy the fattest rainbow unicorn Registered User regular
    I don't know what the hell is up with my migraines recently, I've been tracking them since semester started and today is my third in like five weeks or something and now I'm done with this post because my aphasia just went through the roof suddenly

  • Bendery It Like BeckhamBendery It Like Beckham Hopeless Registered User regular
    Doctor started me on a new medication for my cluster headaches, I'm hoping it starts working soon because this daily bout of being non-functional is starting to get a little rough. Oh, I also have a fistula that will require surgery because its pushed itself out of my old feeding tube scar when I tore it open last year.

    headphones2.jpg
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    About six hours before I fly up to mayo and I feel nauseated as hell.

    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Ok, so apparently I do have a constant hernia but it's too small atm to treat with any surgery thanks to the whole fistulazing aspect of my disease.

    And if things are bad enough, I might wake up a cyborg tomorrow. They might need a pump that I'd have to carry around complete with batteries to keep the area cleaned, with wound care 2-3 times a week. If there are complications, they might need to take...a muscle fiber from my leg to use to leverage the healing.

    Basically there are a thousand variables going into tomorrow and I am more than a little nervous. And apparently I barely made it up here, and if not for lobbying by my surgeon and GI I wouldn't have, because the business office didn't think I would be part of a sound business strategy...

    So now I have been super stressed and I dunno what to do in the meantime before the surgery, the pain is getting so intense that I can't eat or relax comfortably.

    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • CalicaCalica Registered User regular
    Ok, so apparently I do have a constant hernia but it's too small atm to treat with any surgery thanks to the whole fistulazing aspect of my disease.

    And if things are bad enough, I might wake up a cyborg tomorrow. They might need a pump that I'd have to carry around complete with batteries to keep the area cleaned, with wound care 2-3 times a week. If there are complications, they might need to take...a muscle fiber from my leg to use to leverage the healing.

    Basically there are a thousand variables going into tomorrow and I am more than a little nervous. And apparently I barely made it up here, and if not for lobbying by my surgeon and GI I wouldn't have, because the business office didn't think I would be part of a sound business strategy...

    So now I have been super stressed and I dunno what to do in the meantime before the surgery, the pain is getting so intense that I can't eat or relax comfortably.
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  • Bé ChuilleBé Chuille Registered User regular
    Hey good luck, Munkus. Hope you get some lasting relief from the surgery.

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  • MegaMan001MegaMan001 CRNA Rochester, MNRegistered User regular
    Ok, so apparently I do have a constant hernia but it's too small atm to treat with any surgery thanks to the whole fistulazing aspect of my disease.

    And if things are bad enough, I might wake up a cyborg tomorrow. They might need a pump that I'd have to carry around complete with batteries to keep the area cleaned, with wound care 2-3 times a week. If there are complications, they might need to take...a muscle fiber from my leg to use to leverage the healing.

    Basically there are a thousand variables going into tomorrow and I am more than a little nervous. And apparently I barely made it up here, and if not for lobbying by my surgeon and GI I wouldn't have, because the business office didn't think I would be part of a sound business strategy...

    So now I have been super stressed and I dunno what to do in the meantime before the surgery, the pain is getting so intense that I can't eat or relax comfortably.

    Munkus, I am so sorry. When I called you I was just rolling out of the OR and I didn't realize what had happened. Now, I know why you sounded a little stressed while I was blathering on about gaming tomorrow night. I'll roll over to Methodist as soon as you let me know where you land. It sounds like you're an added case so you'll be done some time in the afternoon.

    Shoot me a text and keep me updated. I'm at St. Mary's tomorrow until 3pm then I can roll over to Methodist. You'll have at least one extra friendly face when you wake up.

    I am in the business of saving lives.
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  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Appreciate the thoughts and kind words, shouldn't be much longer now. I am checked in and awaiting retrieval.

    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • JoeUserJoeUser Registered User regular
    Appreciate the thoughts and kind words, shouldn't be much longer now. I am checked in and awaiting retrieval.

    Good luck, we're thinking of you!

    PSN: JoeUser80 Steam
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  • Caulk Bite 6Caulk Bite 6 One of the multitude of Dans infesting this place Registered User regular
    Appreciate the thoughts and kind words, shouldn't be much longer now. I am checked in and awaiting retrieval.

    See you when you get out.

  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    edited March 2015
    And still no word from downstairs. Bout two hours past due at this point.

    Edit: then eight minutes later and they are gonna get me

    And looking at this giant pump, I really hope it isn't necessary that it be installed or I won't be able to sit down.

    Munkus Beaver on
    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • Raijin QuickfootRaijin Quickfoot Here You Go, AC SLATER ROD BELDINGRegistered User, ClubPA regular
    About 2 years ago my wife was diagnosed with endometriosis which sucks. She's had pain ever since.

    It's gotten worse the last couple months where it's pretty constant instead of just intermittent.

    Today she went in for an MRI and found out she probably doesn't have endometriosis... She has a mass that is mostly cystic but a part of it is solid and it lit up on the MRI which means it has blood flow which means it could be cancerous.

    Fuck cancer.

    I'm hoping for the best and right now there's just as good of a chance she doesn't have cancer so until we get a biopsy we have no idea.

    jgeisCalica
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Procedure is over, need to talk with my surgeon to get a clear picture, but at the moment I have the wound-vac and will be a cyborg unless they are able to close it up before I leave with the aid of a plastic surgeon, which is certainly not one of the expected pathways for figuring this out. I am in the hospital room as a result.

    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • The BetgirlThe Betgirl I'm Molly! Your friend and mine!Registered User regular
    Hugs to both of you. : (

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  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    edited March 2015
    @MegaMan001 Thank you so much for visiting me in the hospital. You have no idea how much it means to me. I can't tell you how many times I have been admitted and the only visitors were my parents. You're a saint, Mega.

    Edit: and if anyone wants to call and chat, feel free to either PM me your phone number or PM me and say you're interested and I will hand over my cell number.

    Munkus Beaver on
    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
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  • cabsycabsy the fattest rainbow unicorn Registered User regular
    @MegaMan001 Thank you so much for visiting me in the hospital. You have no idea how much it means to me. I can't tell you how many times I have been admitted and the only visitors were my parents. You're a saint, Mega.

    Edit: and if anyone wants to call and chat, feel free to either PM me your phone number or PM me and say you're interested and I will hand over my cell number.

    I'm not much of a phone talker, but if you want to add me on facebook and use messenger to chat I'm going to be working on homework until uhhh whenever my husband comes home from work and picks me up for our mini vacation. I'll warn you though I'm mostly working on social work and modern latin america homework so I don't know how exciting that'll be for you

    Cello
  • CelloCello Registered User regular
    cabsy wrote: »
    @MegaMan001 Thank you so much for visiting me in the hospital. You have no idea how much it means to me. I can't tell you how many times I have been admitted and the only visitors were my parents. You're a saint, Mega.

    Edit: and if anyone wants to call and chat, feel free to either PM me your phone number or PM me and say you're interested and I will hand over my cell number.

    I'm not much of a phone talker, but if you want to add me on facebook and use messenger to chat I'm going to be working on homework until uhhh whenever my husband comes home from work and picks me up for our mini vacation. I'll warn you though I'm mostly working on social work and modern latin america homework so I don't know how exciting that'll be for you

    Yeah, if you're down for Facebook chat I'd also be interested and can forward you my name! I can't super afford international calls, but I'd definitely be up to talk online.

    2016 Holiday Wishlist
    Steam
    3DS Friend Code: 0216-0898-6512
  • LiiyaLiiya Registered User regular
    Glad you're through the op! You also have me on facebook, ditto what Cello said.

  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Liiya, cabby, I dont I have ya'll on my Facebook

    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • cabsycabsy the fattest rainbow unicorn Registered User regular
    https://www.facebook.com/Mangalitsa if you can add me, or I can add you except I don't know what your real name is so I just always assume someone actually named you munkus beaver

  • LiiyaLiiya Registered User regular
    You do but its been years and everyone assumes my real name is "Leah" because "Liiya" but its not so its easy to confuse. I'll shoot you a message.

  • MegaMan001MegaMan001 CRNA Rochester, MNRegistered User regular
    @MegaMan001 Thank you so much for visiting me in the hospital. You have no idea how much it means to me. I can't tell you how many times I have been admitted and the only visitors were my parents. You're a saint, Mega.

    Edit: and if anyone wants to call and chat, feel free to either PM me your phone number or PM me and say you're interested and I will hand over my cell number.

    No problem at all, it was my pleasure. How are you enjoying Locke and Key?

    I am in the business of saving lives.
    cabsyJoeUser
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    edited March 2015
    I hadn't had a chance to dive in, nurses and my father popping in 5 minutes eppë. It has been hard to relax comfortable.

    Munkus Beaver on
    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • MegaMan001MegaMan001 CRNA Rochester, MNRegistered User regular
    Yeah, I tell my patients that the hospital isn't actually for resting. Hold onto them as long as you'd like. I'm flying out earlier than I thought for this conference in Cleveland and I'll send you my address - you can just ship them back whenever you want or drop them off on my front steps before you leave. No rush.

    I am in the business of saving lives.
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    thanks again for the reading materials! You sure you don't want us calling your gf before our plane?

    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Oh, and apparently while the ending of the tract was tiny, inside it was as big as a fucking golf ball.

    So why the fuck did my local MRI people not notice this? And how the hell is that even supposed to heal anyway.

    Steam name: munkus_beaver
    WiiU: munkusbeaver and Nintendo ID (3DS thinger): 0619-4510-9772
    Blizzard thing: munkus#1952
    Humor can be dissected, as a frog can, but it dies in the process.
    Twitter for health updates: https://twitter.com/MunkusBeaver
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
  • I ZimbraI Zimbra Registered User regular
    My girlfriend is back in the hospital with either an infection in her knee, a fracture in her knee, or both. How the hell she could have fractured her knee while she was on bedrest with the knee immobilized is beyond me, but here we are. It would be more tolerable if anyone at the hospital could find their ass with two hands and a map. It took 4 hours, multiple angry trips to the nurse's station, and the fortuitous appearance of her surgeon to get pain med orders written and dispensed.

  • MadEddyMadEddy Creepy house watching youRegistered User regular
    So, we found out yesterday that my mom just had cysts, not cancer. Thank goodness.

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  • Bobkins FlymoBobkins Flymo Fantastic Registered User, Moderator mod
    edited March 2015
    I'm on meds for blood pressure now, and I'm responding well. My weight loss was having impact, but the doctor and I agreed that it was too slow a drop. Better take meds now and maybe be able to get off them later rather than sit in hypertension for an indeterminate amount amount of time.

    Bobkins Flymo on
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  • Bé ChuilleBé Chuille Registered User regular
    So I figure for pain-related stuff this might be a good place to ask for advice. I got my wisdom teeth out under a general on Monday, and sInce yesterday afternoon not even my oxycontin for breakthrough pain is tamping it down a whole lot. I took two 4 hours ago and now I'm awake with the pain again not sure what I can take right now.

    is this something I should ride out or be going to the doctor about dry socket or upping my pain meds?

  • Caulk Bite 6Caulk Bite 6 One of the multitude of Dans infesting this place Registered User regular
    just got back from the three month post-surgery check up, and I'm apparently pretty much cured! yay!

    also, since I was getting blood work done anyway, we got them to schedule diabetes screening as well, because my surgery wound was taking a while to fully close. end result of that is that I am right now not diabetic. so that's also good.

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