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Hospitals and Long Term Treatment: Chronic illness thread for the repeat customers

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Posts

  • StaleStale Registered User regular
    Cogliostro wrote: »
    Stale wrote: »
    God dammit woman... first off these aren't biscuits.

    [flips table]

    second, if it's hot, and in a mug, it's either coffee, or it's shit

    Stale... this alone made me fall in love with you. :D

    <3

    you need to make to dirty south this year, it's looking to be in Juneish. I hope, if I can ever get the braintrust to fucking respond to my location lists.

    easysig2.jpg
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    I have heard nothing of the location lists.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • nevilleneville The Worst Gay (Seriously. The Worst!)Registered User regular
    Stale wrote: »
    Cogliostro wrote: »
    Stale wrote: »
    God dammit woman... first off these aren't biscuits.

    [flips table]

    second, if it's hot, and in a mug, it's either coffee, or it's shit

    Stale... this alone made me fall in love with you. :D

    <3

    you need to make to dirty south this year, it's looking to be in Juneish. I hope, if I can ever get the braintrust to fucking respond to my location lists.

    I'll make it. Pick dates ASAP so I can just plan to start wherever I go to next after it. :)

    nevillexmassig1.png
  • VivixenneVivixenne aDAWRable! Registered User regular
    Cogliostro wrote: »
    Stale wrote: »
    God dammit woman... first off these aren't biscuits.

    [flips table]

    second, if it's hot, and in a mug, it's either coffee, or it's shit

    Stale... this alone made me fall in love with you. :D

    we are TOTES not going to hang out

    EVER

  • VivixenneVivixenne aDAWRable! Registered User regular
    also I am relieved to hear you've both gotten some good news

    <3 <3 <3 hugs to everyone

  • StaleStale Registered User regular
    I have heard nothing of the location lists.

    you've been in the hospital

    easysig2.jpg
  • FencingsaxFencingsax Bondage Discipline Spider-Man Registered User regular
    I love good news. Especially when you guys just seemed so down before.

    It is difficult to get a man to understand something, when his salary depends upon his not understanding it
  • FyndirFyndir Registered User regular
    Is it good news or bad news when after two CT scans the result is "undiagnosed" and the doctor seems entirely fine and blasé about this situation?
    Spoiler:

  • ceresceres Just your problem OooSuper Moderator, Moderator mod
    I am sitting here with a canister of cipro that is slowly infusing into my body.

    Antibiotics: They work! But only through the IV. And nobody knows why.

    If I had to guess I'd say that your digestive system has said "fuck you I have enough problems" and refused to absorb it that way. My body does that with certain things I need to take since part of my intestine is gone. This way it's going right to your blood. IANAD though.

    I've got my own life and I've got my own plans
    I hope you understand, and like the way that I am
    Dear Satan...
  • ceresceres Just your problem OooSuper Moderator, Moderator mod
    Fyndir wrote: »
    Is it good news or bad news when after two CT scans the result is "undiagnosed" and the doctor seems entirely fine and blasé about this situation?
    Spoiler:

    Yeah but in the first one your blood was full of DYE, so

    You know. Your glands probably weren't ecstatic.

    I've got my own life and I've got my own plans
    I hope you understand, and like the way that I am
    Dear Satan...
  • JansonJanson Registered User regular
    Ledneh wrote: »
    I don't suppose anyone here has run-ins with sleep apnea? I've noticed when dozing that the whole breathing thing'll stop for a half second--kinda like a hiccup, only more painful. Once it happened while I was sleeping, at like 2 AM, and woke me up--that was thoroughly weird.

    Anyway I'm thinking of asking the doc to refer me for a sleep study. I'm told the usual treatment for obstructive sleep apnea is a CPAP machine worn during sleep; what I can't figure out from the net is, is this something I'd be wearing the rest of my life, or do I eventually get 'better'?

    Depends on the root cause of your sleep apnea, and how severe it is.

    Some people will be fine if they can train/learn to sleep in a different position (usually on the front).

    For many people the issue is weight related, and losing weight can cause the apnea to disappear.

    Mine is caused by me having a really small throat... Not much I can do about that, but then my apnea is mild enough that I don't function too badly without the CPAP, it just helps me get a better night's sleep, that's all.

    sharasugar_80.png sharanomsugar_80.png
  • SquallSquall hap cloud Registered User regular
    very happy to hear some good news about munkus and stale!
    Janson wrote: »
    Ledneh wrote: »
    I don't suppose anyone here has run-ins with sleep apnea? I've noticed when dozing that the whole breathing thing'll stop for a half second--kinda like a hiccup, only more painful. Once it happened while I was sleeping, at like 2 AM, and woke me up--that was thoroughly weird.

    Anyway I'm thinking of asking the doc to refer me for a sleep study. I'm told the usual treatment for obstructive sleep apnea is a CPAP machine worn during sleep; what I can't figure out from the net is, is this something I'd be wearing the rest of my life, or do I eventually get 'better'?

    Depends on the root cause of your sleep apnea, and how severe it is.

    Some people will be fine if they can train/learn to sleep in a different position (usually on the front).

    For many people the issue is weight related, and losing weight can cause the apnea to disappear.

    Mine is caused by me having a really small throat... Not much I can do about that, but then my apnea is mild enough that I don't function too badly without the CPAP, it just helps me get a better night's sleep, that's all.

    They know for sure it's obstructive? Central sleep apnea exists as well, in which case I'm told adjusting your breathing/sleeping habits won't help much. I get cases of sleep apnea mixed with sleep paralysis, and the most the doctor can tell me is to reduce my stress as best I can.

    Which actually works for me (most of the time)

  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    ceres wrote: »
    I am sitting here with a canister of cipro that is slowly infusing into my body.

    Antibiotics: They work! But only through the IV. And nobody knows why.

    If I had to guess I'd say that your digestive system has said "fuck you I have enough problems" and refused to absorb it that way. My body does that with certain things I need to take since part of my intestine is gone. This way it's going right to your blood. IANAD though.

    Uh, I meant nobody knows why antibiotics work on treating crohn's and inflammation.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Stale wrote: »
    I have heard nothing of the location lists.

    you've been in the hospital

    So what

    you saying you don't wanna visit me in the hospital?

    Afraid of catching something?

    Since when has 'been in the hospital' precluded you from giving your opinion!

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • JoeUserJoeUser Registered User regular
    edited April 2012
    Ledneh wrote: »
    I don't suppose anyone here has run-ins with sleep apnea? I've noticed when dozing that the whole breathing thing'll stop for a half second--kinda like a hiccup, only more painful. Once it happened while I was sleeping, at like 2 AM, and woke me up--that was thoroughly weird.

    Anyway I'm thinking of asking the doc to refer me for a sleep study. I'm told the usual treatment for obstructive sleep apnea is a CPAP machine worn during sleep; what I can't figure out from the net is, is this something I'd be wearing the rest of my life, or do I eventually get 'better'?

    @Ledneh

    I've had experience with sleep apnea. I finally had it diagnosed my senior year of college, when I was literally falling asleep during class sometimes. I never noticed actually stopping breathing, but my girlfriend at the time did.

    Are you overly tired? When you wake up, do you feel rested? There are different levels of sleep apena.

    So I went for a sleep study and found out I was micro-waking a couple of hundred times at night. I had a CPAD machine, which is basically a device you wear over your nose and mouth that constantly pushes air to keep your airways open.

    Eventually I went on a fitness kick and lost a bunch of weight. After that I found that I didn't need the CPAP anymore!

    JoeUser on
    PSN: JoeUser80 Steam
  • StaleStale Registered User regular
    Stale wrote: »
    I have heard nothing of the location lists.

    you've been in the hospital

    So what

    you saying you don't wanna visit me in the hospital?

    Afraid of catching something?

    Since when has 'been in the hospital' precluded you from giving your opinion!

    "Hey Will, I know you're laying in bed pissed at God and the world he laid out in general. Miserable and exhausted, but here's a list of houses and locales, tell me where you wanna go have fun even though right now you can't even fathom getting out of bed without screaming in pain. Get back to me ASAP. Kay?, bye."


    When I feel like shit, that would just piss me off.

    easysig2.jpg
  • JoeUserJoeUser Registered User regular
    Stale wrote: »
    Got the the phone call from my doctor on my first round of blood test on this round of chemo.


    I am healthier on chemo than I am off. He doesn't know how or why. He can't really explain it entirely.


    I'm also starting to digest easier, or at least more completely. The pain is still there, but my body seems to be reacting favorably even though were just shy of two weeks in.


    "I don't know Dan. You're an Honest-to-God mystery. I've rarely encountered someone who responds atypicaly to everything."


    I've named this Animal-Mother Syndrome


    @Stale Are you secretly from Bizarro World?

    PSN: JoeUser80 Steam
  • StaleStale Registered User regular
    No.


    I'm just difficult.

    easysig2.jpg
    lonelyahava
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Stale wrote: »
    Stale wrote: »
    I have heard nothing of the location lists.

    you've been in the hospital

    So what

    you saying you don't wanna visit me in the hospital?

    Afraid of catching something?

    Since when has 'been in the hospital' precluded you from giving your opinion!

    "Hey Will, I know you're laying in bed pissed at God and the world he laid out in general. Miserable and exhausted, but here's a list of houses and locales, tell me where you wanna go have fun even though right now you can't even fathom getting out of bed without screaming in pain. Get back to me ASAP. Kay?, bye."


    When I feel like shit, that would just piss me off.

    Honestly? I'd like to try Savannah this time.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • JoeUserJoeUser Registered User regular
    Stale wrote: »
    Stale wrote: »
    I have heard nothing of the location lists.

    you've been in the hospital

    So what

    you saying you don't wanna visit me in the hospital?

    Afraid of catching something?

    Since when has 'been in the hospital' precluded you from giving your opinion!

    "Hey Will, I know you're laying in bed pissed at God and the world he laid out in general. Miserable and exhausted, but here's a list of houses and locales, tell me where you wanna go have fun even though right now you can't even fathom getting out of bed without screaming in pain. Get back to me ASAP. Kay?, bye."


    When I feel like shit, that would just piss me off.

    Honestly? I'd like to try Savannah this time.

    PSN: JoeUser80 Steam
  • TheStigTheStig Registered User regular
    Did you all know that hospitals have secret bathrooms that only the staff know about?

    If you see an unmarked door that apparently has no purpose, it's a bathroom.

    the-place-beyond-the-pines-03_thumb_zps3d4e0ec7.jpg
    360: Sir Stiggleton PSN: Stiggy_PA GFWL: RacerStig Steam: TheStig
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    TheStig wrote: »
    Did you all know that hospitals have secret bathrooms that only the staff know about?

    If you see an unmarked door that apparently has no purpose, it's a bathroom.

    You have no idea the kinds of people that wander into the hospital.

    Of course they would want to hide the good bathrooms.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • LednehLedneh shinesquawk Registered User regular
    So I had my sleep study on Saturday. It was supposed to be a split evening, where I go to sleep at 11PM or so, and if I've had some number of sleep arousals (apnea, etc) in the next three hours he'd wake me up and we'd start CPAP titration right away

    Turns out with three dozen wires and a couple breathing straps stuck on me I didn't get to sleep until 2:30 AM, and then only for two hours, so now I have to schedule a talk with the doctor THEN another study for titration

    And each one requires a referral because I am retarded and took the HMO, and Aetna sucks


    The worst part is, they're definite that I need the CPAP because in those two hours of sleep my blood oxygen was crap and my windpipe kept constricting (but not quite closing), but rules are rules

    :(

    Kadith wrote: »
    how do i get off [the bus], do i just start screaming
    well that'll get me off at least.
  • WeaverWeaver Storm coming FinallyRegistered User regular
    I need to get my neck looked at. I can only turn my head left about half as far as it should go before ow ow fuck you neck fine.

    Which means if you want to sneak up on me do it from the left.

    7BLr6AJ.jpg
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    God dammit, the cap on my PICC line somehow fell off. I have no idea how long it's been off.

    God dammit.

    Really hoping I don't die from some infection now.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • MorivethMoriveth Nobody suspects a thing... Registered User regular
    I am waiting to have an MRI for my leg

    Which is hurting pretty badly today

    I kinda hope it continues to, though - I guess because maybe they could see if there actually is some kind of connection?

  • DidgeridooDidgeridoo Registered User regular
    Um Munkus look please don't die

    That would really put a damper on my day, which, of course, is what you should be the most concerned about

    In fact any time you are about to suffer from some sort of horrible medical complication stop. Ask yourself: Will this make Didgeridoo sad? And then stop being sick. That's how it works, right?


    3DS Friend Code: 2766-8209-8772. Nintendo Network ID: Didge7
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    I seem to be OK right now. When the cap falls off, I have zero protection against shit in the environment. There is a risk of major infection since the PICC line leads right to the heart.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • FyndirFyndir Registered User regular
    I seem to be OK right now. When the cap falls off, I have zero protection against shit in the environment. There is a risk of major infection since the PICC line leads right to the heart.

    Solution:

    dsc_1189.jpg

  • StaleStale Registered User regular
    I seem to be OK right now. When the cap falls off, I have zero protection against shit in the environment. There is a risk of major infection since the PICC line leads right to the heart.

    ohh boo hoo


    ya big sissy, you're fine. Last time I had a PICC I used to pop that cap off constantly and play with it. Nurses used to flip the fuck out.

    easysig2.jpg
  • ButlerButler 89 episodes or bust Registered User regular
    My Mum went into hospital two weeks ago for a minor pain in her side and we have since learned she has Stage IV cancer with tumors pretty much all over her body. The doctors are still trying to track down the primary, but it's most likely in her lung. If she lives another two years she'll be beating the odds.

    Munkus and Stale I am pleased to no end to see you both swimming up waterfalls over and over. It gives me hope that maybe she can do the same.

  • AnialosAnialos RPG MPD patient #1 Registered User regular
    So many hugs Butler, hope she pulls through.

    Dichotomy wrote: »
    I play a lot of video games but I wouldn't call myself a "gamer" because "gamer" has become a pretty fucking disgusting label

    like "skinhead" or "republican"
  • LednehLedneh shinesquawk Registered User regular
    Condolences to you and your mother, Butler, wish I could offer more than that :(


    Had a discussion with the sleep doc on Monday, talking about the results of my sleep study the previous week (as it turns out, sleeping in an unfamiliar place on a pullout bed with three dozen wires strapped to you is very hard!)

    The results were kind of interesting. He told me that 'severe obstructive sleep apnea' is considered to be 25-30+ apnea events ('arousals') per hour over the course of your sleep time. Turns out I averaged about 40, so I was snapping out of deep sleep almost once every minute and a half :o

    So I'm on the slate for a CPAP machine in the next week or two, for either the rest of my life or (if I'm lucky) when I stop being a fatarse. I'm sort of curious and impatient to find out how well it works; the doctor just stopped short of saying it would be a lifechanger for me considering how bad my sleep quality appeared to be!

    Kadith wrote: »
    how do i get off [the bus], do i just start screaming
    well that'll get me off at least.
  • FyndirFyndir Registered User regular
    This is fucking bullshit, fuck you foot, stop being a dick.

    Also fuck you medicine regulation law things that prevent me from easy access to painkillers that actually fucking do something.

    Fuck everything.

    (╯°□°)╯︵ ┻━┻

  • Romanian My EscutcheonRomanian My Escutcheon Two of Forks Registered User regular
    Butler wrote: »
    My Mum went into hospital two weeks ago for a minor pain in her side and we have since learned she has Stage IV cancer with tumors pretty much all over her body. The doctors are still trying to track down the primary, but it's most likely in her lung. If she lives another two years she'll be beating the odds.

    Munkus and Stale I am pleased to no end to see you both swimming up waterfalls over and over. It gives me hope that maybe she can do the same.

    Well, that fucking sucks.

    Hugs, dude, hope everything turns out okay.

    2cf4m6f.gif
  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Fyndir wrote: »
    This is fucking bullshit, fuck you foot, stop being a dick.

    Also fuck you medicine regulation law things that prevent me from easy access to painkillers that actually fucking do something.

    Fuck everything.

    (╯°□°)╯︵ ┻━┻

    If I refused to take three months supply of my medications, the street value would pay off a hefty chunk of my student loans. Maybe all of it?

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • FyndirFyndir Registered User regular
    Fyndir wrote: »
    This is fucking bullshit, fuck you foot, stop being a dick.

    Also fuck you medicine regulation law things that prevent me from easy access to painkillers that actually fucking do something.

    Fuck everything.

    (╯°□°)╯︵ ┻━┻

    If I refused to take three months supply of my medications, the street value would pay off a hefty chunk of my student loans. Maybe all of it?

    I don't even want anything like, insane, I just want some stronger cocodamol right now.

    This pussy ass 8/500 mix doesn't do shit for a gout flareup, if I'm lucky I'll be able to get something stronger along with medication to treat the problem tomorrow, but it's bad enough right now that I simply can't sleep.

    So instead I'm sat here bitching about it like a petulant child or some shit.

  • Munkus BeaverMunkus Beaver Registered User, ClubPA regular
    Yeah, I'm out of meds for the next two weeks!

    And I have stitches on the abcess heal area and a tube out my ass.

    I am become Stale, the only thing I can manage to eat is Ensure. Too much pain to be hungry.

    Steam name: munkus_beaver
    Blizzard thing: munkus#1952
    Nintendo ID (3DS thinger): 0619-4510-9772
    Please give to the Crohn's and Colitis Foundation of America: http://www.ccfa.org/
    Humor can be dissected, as a frog can, but it dies in the process.
  • DidgeridooDidgeridoo Registered User regular
    Munkus that's awful! Why are you out of meds for the next two weeks? Insurance issues? America's healthcare system... denying medication to the people who need it the most erryday aw yiss

    Is Mr. McCoy proving to have a good bedside manner, at least?


    3DS Friend Code: 2766-8209-8772. Nintendo Network ID: Didge7
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