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Hospitals and Long Term Treatment: Chronic illness thread: join the support diet on p 45
Ok, there have been a few threads recently that flirted with this concept, but I would like to offer a safe haven for those who have Chronic Health Problems. Not Mental Health issues or Hypochondriacs or those who 'get sick' and proceed to 'get better,' I am talking about those of us with physical conditions that we live with and try to 'placate' in the long term.
Because for us there is no real 'cure' or 'getting better,' there is 'remission' and 'flare-up.' If we feel depression, it's not due to brain chemicals being goof, it's due to the crippling physical pain that saps strength. We are those that go to the hospital and know more than the doctors do unless they are specialists at the top of their game. We have been around the block and know when a doc is lying to make you feel better, rushing to get you out the door so he can deal with an easier patient, and when a doc is actually taking his time because he gives a shit about what happens to your ass.
So let's share stories and updates on these lifelong conditions of ours. I've got a few stories, but I'll start with a brief description of my condition and an update on where I stand.
Crohn's with the complication of a Colectomy (I had my colon surgically removed because they were sure I had colitis, they are wrong in these scenarios about 10% of the time apparently).
Dealing with Crohn's since I was 13, so about 13 years of Crohn's or about half my entire life. Crohn's also causes/is related to my other issues (anemia, arthritis, psriosis, chronic epdidymitis, fistulas)
My update is that I have a slowing fistulazing tract causing enormous pain which is too close to operate at the places I've been but close enough to cause FUCK FUCK pain. Doctors think I am lying or seeking drugs, I put on a strong face for my best friend but this most recent visit colapsed and I am now hoping I get to go to the hospital because holy fuck it hurts. I just want an end to this endless parade of suffering and misery. I have few things, books or games, to keep my mind off. When I try to play the games I want to play, the pain sucks the fun out of it. So I don't know, I am at wits end and am trying to lose it. I haven't been around much here due to pain. I haven't kept up my social life due to real pain.
tl;dr - My update is that my Crohn's is winning the battle and the war against my body.
How about you, fellow chronic physical illness sufferers? Let's compare scars and war stories, vent about doctors and other such bullshit, share updates and reveal our sordid past with our diseases and cancers. Let's talk disease! Hospitals! Pain! Walking it off!