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Hospitals and Long Term Treatment: Chronic illness thread

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    MadEddyMadEddy Creepy house watching youRegistered User regular
    It's less bad, though. My optic nerve is already damaged anyway.

    ruby-red-sig.jpg
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    So my new thing is just being dizzy, apparently. It keeps happening randomly and I don't know why. I am dizzy right now as I am typing this! Jesus Christ what is wrong with me.

    Humor can be dissected as a frog can, but dies in the process.
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    lonelyahavalonelyahava Call me Ahava ~~She/Her~~ Move to New ZealandRegistered User regular
    Perhaps a really benign sinus infection?

    I mean, benign for you.

    That's what happened to be a few weeks ago, got a sinus infection and was super dizzy all the time.

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    knitdanknitdan In ur base Killin ur guysRegistered User regular
    My armchair diagnosis is always going to be low BP.

    Or water trapped in the ear canal.

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
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    SanderJKSanderJK Crocodylus Pontifex Sinterklasicus Madrid, 3000 ADRegistered User regular
    So my new thing is just being dizzy, apparently. It keeps happening randomly and I don't know why. I am dizzy right now as I am typing this! Jesus Christ what is wrong with me.

    I have had (virally) infected vestibular which is some crazy stuff. It set in really quickly (From feeling slightly groggy waiting for the bus to work to "Can't stand" in about 30 minutes, then to "Can't move 5 feet without throwing up shortly after), and then lessened over the course of 3-4 days. I honestly thought I had some bad brain damage the first time it happened, I couldn't imagine becoming so impaired so fast without a Bad Thing happening.

    Turns out, that is supposed to be a closed system, but if something does get in there, you just have to wait until your immune system gets cleaned up, and if you get it once, your odds of getting it again are much higher.
    This has turned out to be the truth, since it happens about 1/year or so since, though never with the absolutely hammer it did the first time.

    I understand you can also get a bacterial infection which is less severe but potentially needs antibiotics?

    Steam: SanderJK Origin: SanderJK
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    HakuninHakunin Registered User regular
    Butt problems fucking suck. Fistulas fucking suck.

    Going in to get a SETON stitch next week. Doc says it works 50% of the time. Yay...

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    ButlerButler 89 episodes or bust Registered User regular
    edited October 2017
    So my new thing is just being dizzy, apparently. It keeps happening randomly and I don't know why. I am dizzy right now as I am typing this! Jesus Christ what is wrong with me.

    Could be otoliths in your inner ear ducts. If it is, you can actually treat that yourself with various manoeuvres to roll the otoliths back into the utricle, where the otolith can be reabsorbed. The most common is the Epley manoeuvre, and there are various videos showing how to do this on YouTube. IANAD of course, but in this case it doesn't seem like there'd be any harm in trying.

    Butler on
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    DevoutlyApatheticDevoutlyApathetic Registered User regular
    I can not strike the feeling that you made up half the words in that post.

    Nod. Get treat. PSN: Quippish
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    ButlerButler 89 episodes or bust Registered User regular
    I admit I had to look up "utricle".

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    Dark Raven XDark Raven X Laugh hard, run fast, be kindRegistered User regular
    Finally went to see a doctor in the US to get a prescription for the anti-ds I'd been taking in the UK. A 3 month supply costs more than the plane ticket home and back to get a free supply from the NHS. Your system is dumb, and I don't like it.

    Oh brilliant
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    CalicaCalica Registered User regular
    My doctor wants me to start taking Lexapro again after being off it (and on a different drug) for six weeks. I don't like the side effects, but I can't deny that I need it.

    So many brain zaps :sad:

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    MadEddyMadEddy Creepy house watching youRegistered User regular
    Getting an endoscopy on Thursday. Yay. :?

    ruby-red-sig.jpg
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    I'm getting on Tuesday and I've been on a liquefied diet all week because I likely still have a stricture.

    It's been affecting me :rotate:

    Humor can be dissected as a frog can, but dies in the process.
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    TheStigTheStig Registered User regular
    FYI, I cackle loudly whenever I send someone home with one of these:

    2TUMoOZ.jpg

    bnet: TheStig#1787 Steam: TheStig
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Fuck whoever named that.

    Go lightly indeed.

    Asshole.

    Humor can be dissected as a frog can, but dies in the process.
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    TheStigTheStig Registered User regular
    don't go lytely into that good night

    bnet: TheStig#1787 Steam: TheStig
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    cabsycabsy the fattest rainbow unicorn Registered User regular
    yeah I was not a fan of the golytely, mostly the flavor, salty antifreeze mmmm. I sent my husband to the store for miralax and Gatorade instead

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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Mix it with Kool-Aide.

    Red Kool-Aide.

    It's how I would always do it when I had to up at Mayo, and it worked.

    I learned a bunch of neat tips and tricks while I was up there. Like how gummi bears/worms are on the clear liquid diet.

    Humor can be dissected as a frog can, but dies in the process.
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    cabsycabsy the fattest rainbow unicorn Registered User regular
    when I was on clear liquids I also got hard candies including Jolly Ranchers, thank God or else I'd have lost my mind

    I'm having a diverticulitis flare so I'm on that flagyl/cipro train, enjoying all those good side effects like starving nausea

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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    And milk tastes horrible!

    Humor can be dissected as a frog can, but dies in the process.
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    cabsycabsy the fattest rainbow unicorn Registered User regular
    everything tastes terrible... air tastes terrible! also after two days of feeling like bugs were crawling all over me I found out that's a possible side effect too! hooray!!

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    MadEddyMadEddy Creepy house watching youRegistered User regular
    Better than actual bugs, but still sucky.

    ruby-red-sig.jpg
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Got that scope in about an hour to look see what's wrong with me this time.

    Humor can be dissected as a frog can, but dies in the process.
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    It was a stricture. They expanded it then told me to not eat as much fruit because the roughage was causing problems :rotate:

    Humor can be dissected as a frog can, but dies in the process.
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    cabsycabsy the fattest rainbow unicorn Registered User regular
    It was a stricture. They expanded it then told me to not eat as much fruit because the roughage was causing problems :rotate:

    I never thought I'd get tired of what is essentially the white carbs on white carbs diet but man I don't think people understand how obnoxious 'low fiber' diet is

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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    cabsy wrote: »
    It was a stricture. They expanded it then told me to not eat as much fruit because the roughage was causing problems :rotate:

    I never thought I'd get tired of what is essentially the white carbs on white carbs diet but man I don't think people understand how obnoxious 'low fiber' diet is

    Meat and taters, precious.

    Humor can be dissected as a frog can, but dies in the process.
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    cabsycabsy the fattest rainbow unicorn Registered User regular
    I'm still sore on my lower left side and I'm done with my antibiotics. God I'm so fucking anxious about this. Amazing what nearly dying will do for your anxiety levels. We have non refundable tickets to a museum event to celebrate our anniversary a few days early and I just keep thinking about last year where we went to the art museum for Halloween (our anniversary) and we left early because I was feeling punky and two weeks later I was in the hospital. I don't want a repeat and I'm scared to death I'm gonna get one... I'm sure the anxiety doesn't help but I don't know how to stop

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    CreaganCreagan Registered User regular
    cabsy wrote: »
    I'm still sore on my lower left side and I'm done with my antibiotics. God I'm so fucking anxious about this. Amazing what nearly dying will do for your anxiety levels. We have non refundable tickets to a museum event to celebrate our anniversary a few days early and I just keep thinking about last year where we went to the art museum for Halloween (our anniversary) and we left early because I was feeling punky and two weeks later I was in the hospital. I don't want a repeat and I'm scared to death I'm gonna get one... I'm sure the anxiety doesn't help but I don't know how to stop

    I've read that re-framing anxiety as "excitement" can help.

    But what I usually do for that sort of thing is go, "Okay, well, this isn't a thing that will set off [problem.] This is a test to see whether or not doing this thing will cause [problem] again. And if it does cause the problem, I'll at least know what to expect so it still won't be as bad as last time." Or something like that. Basically, don't tell yourself the scary thing won't happen, because your anxiety isn't going to listen. If it was, you wouldn't have the anxiety in the first place.

    Tell yourself you're prepared for the scary thing, and it won't be as bad. That your brain's more likely to listen to.

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    knitdanknitdan In ur base Killin ur guysRegistered User regular
    I'm going in for a fistulagram and maybe an angioplasty on my arm in the morning. NBD, but now that it's after midnight and I can't eat I'm suddenly HONGRY.

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Well, I won't be able to drive for a while since I had a seizure.

    My life. It sucks.

    Humor can be dissected as a frog can, but dies in the process.
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    I ZimbraI Zimbra Worst song, played on ugliest guitar Registered User regular
    I'm sorry, that really sucks, Munkus. How long do you have to be seizure-free before you can drive again?

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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Bout six months. Ish? Long enough that I'm not feeling at risk.

    Humor can be dissected as a frog can, but dies in the process.
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    MadEddyMadEddy Creepy house watching youRegistered User regular
    knitdan wrote: »
    I'm going in for a fistulagram and maybe an angioplasty on my arm in the morning. NBD, but now that it's after midnight and I can't eat I'm suddenly HONGRY.

    I was in the same boat this morning for my endoscopy. There was nothing in this world I wanted more than some coffee when I woke up, too.

    On a related note, biopsy results are probably my least favorite thing to wait for.

    ruby-red-sig.jpg
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    knitdanknitdan In ur base Killin ur guysRegistered User regular
    Oh I guess I should mention everything went well on my end, although by the time I got out of the procedure I wasn't very hungry anymore because the sedative was still in my system so I was mostly just sleepy.

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    I am vomiting stuff from days ago, so I am off to Nashville to get admitted to the ER yet again with a gut blockage.

    Humor can be dissected as a frog can, but dies in the process.
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Still waiting in the ER. Last time I vomited I had some bile and cloudy matter in the midst of the Gatorade/Water vomit emporium.

    Humor can be dissected as a frog can, but dies in the process.
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Ugh. Ugh. I have an NG tube in, and tonight they decided to make my life hell by just leaving me in a hall with it in but not running and with no pain or nausea medication for two hours. Two hours just in the middle of the fucking hall waiting for a procedure that kept being shuffled or delayed without any consideration for the bullshit I was putting up with

    Humor can be dissected as a frog can, but dies in the process.
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    edited October 2017
    Update! Had a stricture, again, and they ballooned that up. Oh, and also a ton of inflammation and ulcers and disease in the small bowel.

    So I am hospitalized until further notice.

    Munkus Beaver on
    Humor can be dissected as a frog can, but dies in the process.
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    furlionfurlion Riskbreaker Lea MondeRegistered User regular
    Munkus I feel I should already know this, but what exactly is it that causes your body to malfunction with such frequency?

    sig.gif Gamertag: KL Retribution
    PSN:Furlion
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Crohn's. I have Crohn's.

    Humor can be dissected as a frog can, but dies in the process.
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