@lonelyahava yes medicaid is usually a thing you can get in the blue states, cabsy is right
people who make less than 23k a yearish can usually qualify
not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
0
lonelyahavaCall me Ahava ~~She/Her~~Move to New ZealandRegistered Userregular
I know he qualifies for it, I just wasn't sure about the retroactive part. That seemed to good to be true.
I've told him what y'all have said. Depends on him more deciding to be adult enough to listen, or if he's going to be upset that I'm trying to help and being all "bossy".
I know he qualifies for it, I just wasn't sure about the retroactive part. That seemed to good to be true.
I've told him what y'all have said. Depends on him more deciding to be adult enough to listen, or if he's going to be upset that I'm trying to help and being all "bossy".
It's a complicated relationship.
as a person who gets expanded Medicaid coverage in NY and is deeply sad that I'm losing it when I move... even if he wasn't in hospital currently I'd highly recommend applying! depends on state obviously but I get free medical, dental, and vision, with no deductible and no copays, free psych meds, $1 generics and $3 brand name scripts. it's honestly the only reason I considered staying here.
yeah I did some shopping on ye olde healthcare marketplace and in Texas, as a married couple making 33k, the cheapest plan I would actually want to have as a person w/multiple auto immune disorders ($500 pp deductible, 20$ copays, 80/20 iirc after deductible) is $500/mo after the premium adjustment. and it still doesn't cover my stelara. that's one thing I really, honestly, dunno how we're gonna work around.
So chronic thread, I'm currently on my first official stint of short term disability. I'll be returning to work on the 31st thankfully, followup and a catscan on Wednesday to rule out anything that may be wrong in my brain physically. Then within the next month I'll be seeing a Neurologist to see about handling my cluster headaches in the future. After going through this without medical assistance for almost 15 years it's nice to have a doctor who doesn't argue with me about what is wrong, only about how to solve it. But I did finally get the gumption to ask about an O2 tank as an abortive, my request was denied so I guess I'll keep slamming energy drinks and sprinting around the block when I feel an attack starting.
Were there any other cluster headache Seattle peeps? It's been really nice to read stories about coping methods and triggers this last week, figure it might be nice to have someone to talk to more regularly about it would help with my depression.
I have an appointment tomorrow for a second opinion on my incisional hernia that's like, softball size, this whole time I've been optimistic that this surgeon is gonna be like "whoa let's fix that ASAP!" and then last night my husband said he doesn't think this surgeon will operate on me
today my friend told me her experience is in line with my husband's expectations and that at best I can expect this surgeon will pressure my old one to actually go back in and fix it
I'm gonna be really honest here and say this has just wrecked me. I'm not functional like this. I can't fucking do anything without being in pain. I can't cook or clean or walk my dog or have sex or sleep unless I'm exhausted enough for it to outweigh my discomfort, or I get really lucky and I manage to have a good hour or two. the idea that at best I could maybe pressure my surgeon into fixing it at some point? I'm fucking, I can't
Well my mom has an appointment with a vascular surgeon tomorrow... Hopefully they don't say they have to do anything major. But I suppose I'll know more after she sees him.
0
lonelyahavaCall me Ahava ~~She/Her~~Move to New ZealandRegistered Userregular
brother had surgery yesterday. no idea how things are going, but i know he's over being in the hospital.
I have an appointment tomorrow for a second opinion on my incisional hernia that's like, softball size, this whole time I've been optimistic that this surgeon is gonna be like "whoa let's fix that ASAP!" and then last night my husband said he doesn't think this surgeon will operate on me
today my friend told me her experience is in line with my husband's expectations and that at best I can expect this surgeon will pressure my old one to actually go back in and fix it
I'm gonna be really honest here and say this has just wrecked me. I'm not functional like this. I can't fucking do anything without being in pain. I can't cook or clean or walk my dog or have sex or sleep unless I'm exhausted enough for it to outweigh my discomfort, or I get really lucky and I manage to have a good hour or two. the idea that at best I could maybe pressure my surgeon into fixing it at some point? I'm fucking, I can't
I haven't had this particular health problem, or anything I'd think qualifies as chronic pain problems.
But having grown up with disabilities, and watched my mom deal with doctors, tell the surgeon all of this except the part about occasionally having a good hour or two. You're non-functional, it's not getting better, and it's completely wearing you down. And break down crying, if you can manage it.
Also, you don't want pain meds. You want to address the problem directly so you won't have to take pain meds.
Wear obviously comfortable clothing when you see the doctor, don't style your hair or wear make-up. If you usually don't style your hair and never wear make-up, don't have caffeine before the appointment and scruff up your hair. It sucks, but if you look put together the doctor will make assumptions about how well you can function.
Surgery scheduled for June 16!!! He spent a ton of time with me, explained stuff none of my previous surgeon team has, did a really thorough exam (vs my last surgeon touching me twice), walked me through my CT scan results from February and what level of scar tissue and muscle displacement I have, it was an enormous difference. I nearly started crying when he took me to his scheduling nurse and he said we'd get this taken care of right away. It's just so overwhelming.
e: did you make your way to syracuse/albany/etc for that consultation or were you in rochester still?
Rochester still! even in the same University of Rochester surgeon network. I went with a general surgery with an additional focus on bariatric surgery bc from what I found online they're the best qualified, most successful at reducing the chance of reoccurrence, and most willing to do hernia and incisional trauma repair. I lucked out and was right in my gamble and I'm so glad!! I will admit it's a little weird to weigh 270 and be surrounded by all these posters about gastric bypass and having parts of your digestive system surgically removed.
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Sometimes reeeeeeaaallly I wish I could just have a big sign or helper robot that let's people know when I'm having pain spike days.
Humor can be dissected as a frog can, but dies in the process.
0
MetalbourneInside a cluster b personalityRegistered Userregular
And brother had to go back in for more surgery tomorrow because they didn't remove all of the necrotic skin or something the first time around.
That's really rough and I hope this next surgery goes well.
this surgery went better! they've gotten all of teh necrotic tissue out.
And yet, he's still not expected to be home until Tuesday. Why, you ask?
Because the wound vac seal thing to cover up the surgical site was ordered for the wrong size, initially. It now needs to be remeasured after the second surgery. And because it's a holiday weekend, they were telling him that they would get him remeasured until Tuesday and then reorder it. He rightfully put up a bit of a stink, so they remeasured and reordered it yesterday. The wound vac and pump arrived this evening (around 8pm Eastern), but there's nobody qualified to apply it for him at the hospital.
They've all gone home for the holiday weekend.
So now he's mostly ok, but will still be stuck in the hospital until at least Monday if he's lucky. Tuesday is more likely.
At least the financial side of things sounds like it's being taken care of. Hopefully.
are you sure he's not in some sort of shared fever dream with the rest of your family?
I guess some states require extra certification for NPWT (or any of those vacuseal things) or something? Still, seems like something you should have several people trained on, not just one.
bowen on
not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
+1
lonelyahavaCall me Ahava ~~She/Her~~Move to New ZealandRegistered Userregular
Brother is home!
The head nurse in duty today took one look at him, asked why he was still there, and then proceeded to curse when he explained.
She gave him a normal dressing for his wound, have him the vacuum pouch to bring home and told him to make an appointment for Tuesday to come back and get it put on, but she wanted him out of her hospital.
knitdanIn ur baseKillin ur guysRegistered Userregular
I've been struggling with what I'm calling "disability impostor syndrome"
Intellectually I know that I have a serious medical condition that requires regular lifesaving treatment and that treatment is what allows me to function. I function well enough that if I don't tell people, most wouldn't guess I was sick.
But there's a part of me that goes "hey fatty, you can walk unassisted, you have the use of all 4 limbs and all 5 senses, you're not really disabled"
And I just have to keep talking my brain out of being a dick to me.
“I was quick when I came in here, I’m twice as quick now”
-Indiana Solo, runner of blades
+6
MetalbourneInside a cluster b personalityRegistered Userregular
I've been struggling with what I'm calling "disability impostor syndrome"
Intellectually I know that I have a serious medical condition that requires regular lifesaving treatment and that treatment is what allows me to function. I function well enough that if I don't tell people, most wouldn't guess I was sick.
But there's a part of me that goes "hey fatty, you can walk unassisted, you have the use of all 4 limbs and all 5 senses, you're not really disabled"
And I just have to keep talking my brain out of being a dick to me.
Oh yeah, that's like a normal part of being disabled is feeling like things aren't bad enough to feel like you're disabled
I bet there's someone in their grave trying to put their boots on to get to work on monday fucking morning
I really hate when people get all uppity about disabilities too. So many of them are invisible.
"You're not disabled why are you parking there!" and the person has a transplant, has kidney failure, had CHF, etc etc etc etc
This happens even when young, seemingly physically intact people use wheel chairs. Really, it doesn't matter what the disability is. People are assholes when you easily and successfully use accommodations.
Heck, I had a teacher tell me I wasn't "really" disabled because I could have conceivably gotten a low C in her class without my academic accommodations, and was seemingly more "together" socially than the other learning disabled kid in our class.
This is why I always suggest you go into evaluations like you're at your absolute worst physically, mentally, etc.
"Don't get your hopes up, it's in metric." Doc, I haven't worn anything smaller than a 2XL in probably over a decade; I'm able to tell what set of numbers I'm seeing are.
On the upside, my Sleep Apnea is getting the shit kicked out of it. I'm averaging .5 incidents an hour now. Woo!
I really hate when people get all uppity about disabilities too. So many of them are invisible.
"You're not disabled why are you parking there!" and the person has a transplant, has kidney failure, had CHF, etc etc etc etc
This happens even when young, seemingly physically intact people use wheel chairs. Really, it doesn't matter what the disability is. People are assholes when you easily and successfully use accommodations.
Heck, I had a teacher tell me I wasn't "really" disabled because I could have conceivably gotten a low C in her class without my academic accommodations, and was seemingly more "together" socially than the other learning disabled kid in our class.
This is why I always suggest you go into evaluations like you're at your absolute worst physically, mentally, etc.
People suck.
Several weeks before ex and I broke up, we had to go do her IME (independent medical examination -- basically SSI pays doctors to give an 'unbiased review' [hint: they're not unbiased]) to keep her disability. Her disability isn't a visible one, she has chronic UTIs and kidney infections that basically shut her down for 3-5 days at a time, and occur at least once a month (she's immunocompromised from transplantation).
So this doctor just happened to catch her during one of her good phases. Nothing wrong, 100% bubbly personality at this point because she isn't basically dying in bed from a kidney infection.
So you can guess how well that went. Very dismissive. "Why aren't you in school, why don't you have a job? You don't look sick." Not to mention she had just gotten kicked out of the LPN program because she was hospitalized and couldn't take the midterm math exam that is pass/fail and fail means you are immediately removed from the program. "You can't just start school in the middle of May" I said to her. She looked disgusted at the whole situation.
Then we had to go in front of SSI for a review because we contested that review. I spent hours looking through SSI's coverage to find all the shit that applied. Just so happened that chronic UTIs for immunocompromised people is covered (plus a few other things I made a case for). So I presented that with her in front of the SSI panel and bing bang boom, approved for disability again. I can imagine for people who don't appear the absolute sickest when doing these things, just like you said, it's the worst situation imaginable. Fighting and appeals is tiring. Who the fuck is going to have the ability to pour through SSI's coverage for disabilities? Gonna pay a lawyer a few grand to do it for you? These people can't afford that.
Also, fuck you shitty, judgemental doctor. I win, you lose.
not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
I have food poisoning and my dog is in a Lyme flare/active infection
not cool to make my dog chronically ill too, universe. not cool.
Ok I finally hear about someone else who has chronic Lyme disease and they're a dog
I am so mad at god right now
one hundred thousand years ago when I was 19, I had a neopets friend who had chronic Lyme. I mean, that doesn't help with like socializing or finding someone to commiserate with, but I knew someone!
+1
MetalbourneInside a cluster b personalityRegistered Userregular
I have food poisoning and my dog is in a Lyme flare/active infection
not cool to make my dog chronically ill too, universe. not cool.
Ok I finally hear about someone else who has chronic Lyme disease and they're a dog
I am so mad at god right now
one hundred thousand years ago when I was 19, I had a neopets friend who had chronic Lyme. I mean, that doesn't help with like socializing or finding someone to commiserate with, but I knew someone!
It was probably me and we didn't know each other at the time
I have food poisoning and my dog is in a Lyme flare/active infection
not cool to make my dog chronically ill too, universe. not cool.
Ok I finally hear about someone else who has chronic Lyme disease and they're a dog
I am so mad at god right now
one hundred thousand years ago when I was 19, I had a neopets friend who had chronic Lyme. I mean, that doesn't help with like socializing or finding someone to commiserate with, but I knew someone!
It was probably me and we didn't know each other at the time
she was younger than me, so unless you're a time traveler... though I wouldn't put it past you
I also had to buy my dog an anxiety swaddling shirt because he gets little doggy panic attacks during thunderstorms. life is terribly unfair tbfh.
definitely having one of those days where I woke up this morning like YEAH I'M GOING TO DO SO MUCH and by the time I left the dog park an hour later I was like I'm gonna do... some things, semi-sedately, while trying not to puke
+2
knitdanIn ur baseKillin ur guysRegistered Userregular
edited June 2017
What has two thumbs and what they're calling a "mallet finger"?
This guy!
Apparently sometimes when you bang your finger against something just right it can tear the ligament that lets you straighten your finger. When this happens the fingertip droops down and apparently to some really unimaginative people who came up with the name it looks like a mallet. Hence mallet finger.
Got a splint to hold it straight and sometime soon I talk to a hand specialist yaaaaay
knitdan on
“I was quick when I came in here, I’m twice as quick now”
-Indiana Solo, runner of blades
Last time I had a CT I mentioned I vomit every time I have contrast, they said oh that's not good we'll put that down as an allergy
I get here for my CT today and the nurse is like that's not a REAL allergy, you'll be fine. Ok well as long as you know to send me to the machine with a puke bucket, carry on
it doesn't help that I still have some kind of food poisoning or stomach virus or something so I'm at a constant low grade nausea level and at random my digestive system decides everything must go. 0/10 do not recommend
Posts
people who make less than 23k a yearish can usually qualify
I've told him what y'all have said. Depends on him more deciding to be adult enough to listen, or if he's going to be upset that I'm trying to help and being all "bossy".
It's a complicated relationship.
Democrats Abroad! || Vote From Abroad
as a person who gets expanded Medicaid coverage in NY and is deeply sad that I'm losing it when I move... even if he wasn't in hospital currently I'd highly recommend applying! depends on state obviously but I get free medical, dental, and vision, with no deductible and no copays, free psych meds, $1 generics and $3 brand name scripts. it's honestly the only reason I considered staying here.
Even like..
half of that, let me pay into it NY!
That bill just passed the Assembly as it has every year for awhile. It'll go the Senate to die or be killed by Cuomo.
yeah I did some shopping on ye olde healthcare marketplace and in Texas, as a married couple making 33k, the cheapest plan I would actually want to have as a person w/multiple auto immune disorders ($500 pp deductible, 20$ copays, 80/20 iirc after deductible) is $500/mo after the premium adjustment. and it still doesn't cover my stelara. that's one thing I really, honestly, dunno how we're gonna work around.
Were there any other cluster headache Seattle peeps? It's been really nice to read stories about coping methods and triggers this last week, figure it might be nice to have someone to talk to more regularly about it would help with my depression.
today my friend told me her experience is in line with my husband's expectations and that at best I can expect this surgeon will pressure my old one to actually go back in and fix it
I'm gonna be really honest here and say this has just wrecked me. I'm not functional like this. I can't fucking do anything without being in pain. I can't cook or clean or walk my dog or have sex or sleep unless I'm exhausted enough for it to outweigh my discomfort, or I get really lucky and I manage to have a good hour or two. the idea that at best I could maybe pressure my surgeon into fixing it at some point? I'm fucking, I can't
Democrats Abroad! || Vote From Abroad
I haven't had this particular health problem, or anything I'd think qualifies as chronic pain problems.
But having grown up with disabilities, and watched my mom deal with doctors, tell the surgeon all of this except the part about occasionally having a good hour or two. You're non-functional, it's not getting better, and it's completely wearing you down. And break down crying, if you can manage it.
Also, you don't want pain meds. You want to address the problem directly so you won't have to take pain meds.
Wear obviously comfortable clothing when you see the doctor, don't style your hair or wear make-up. If you usually don't style your hair and never wear make-up, don't have caffeine before the appointment and scruff up your hair. It sucks, but if you look put together the doctor will make assumptions about how well you can function.
glad it worked out for you
e: did you make your way to syracuse/albany/etc for that consultation or were you in rochester still?
Rochester still! even in the same University of Rochester surgeon network. I went with a general surgery with an additional focus on bariatric surgery bc from what I found online they're the best qualified, most successful at reducing the chance of reoccurrence, and most willing to do hernia and incisional trauma repair. I lucked out and was right in my gamble and I'm so glad!! I will admit it's a little weird to weigh 270 and be surrounded by all these posters about gastric bypass and having parts of your digestive system surgically removed.
fuck that other doctor tho
Democrats Abroad! || Vote From Abroad
That's really rough and I hope this next surgery goes well.
If the robot is designed to make anyone who comes within six feet feel as much pain as I do, I want one also
this surgery went better! they've gotten all of teh necrotic tissue out.
And yet, he's still not expected to be home until Tuesday. Why, you ask?
Because the wound vac seal thing to cover up the surgical site was ordered for the wrong size, initially. It now needs to be remeasured after the second surgery. And because it's a holiday weekend, they were telling him that they would get him remeasured until Tuesday and then reorder it. He rightfully put up a bit of a stink, so they remeasured and reordered it yesterday. The wound vac and pump arrived this evening (around 8pm Eastern), but there's nobody qualified to apply it for him at the hospital.
They've all gone home for the holiday weekend.
So now he's mostly ok, but will still be stuck in the hospital until at least Monday if he's lucky. Tuesday is more likely.
At least the financial side of things sounds like it's being taken care of. Hopefully.
Democrats Abroad! || Vote From Abroad
are you sure he's not in some sort of shared fever dream with the rest of your family?
I guess some states require extra certification for NPWT (or any of those vacuseal things) or something? Still, seems like something you should have several people trained on, not just one.
The head nurse in duty today took one look at him, asked why he was still there, and then proceeded to curse when he explained.
She gave him a normal dressing for his wound, have him the vacuum pouch to bring home and told him to make an appointment for Tuesday to come back and get it put on, but she wanted him out of her hospital.
So hooray. That part is at least over.
Democrats Abroad! || Vote From Abroad
Intellectually I know that I have a serious medical condition that requires regular lifesaving treatment and that treatment is what allows me to function. I function well enough that if I don't tell people, most wouldn't guess I was sick.
But there's a part of me that goes "hey fatty, you can walk unassisted, you have the use of all 4 limbs and all 5 senses, you're not really disabled"
And I just have to keep talking my brain out of being a dick to me.
-Indiana Solo, runner of blades
Oh yeah, that's like a normal part of being disabled is feeling like things aren't bad enough to feel like you're disabled
I bet there's someone in their grave trying to put their boots on to get to work on monday fucking morning
It always seemed like the few people we knew were running at 25% capacity because of how much it sucks to have esrd.
"You're not disabled why are you parking there!" and the person has a transplant, has kidney failure, had CHF, etc etc etc etc
not cool to make my dog chronically ill too, universe. not cool.
This happens even when young, seemingly physically intact people use wheel chairs. Really, it doesn't matter what the disability is. People are assholes when you easily and successfully use accommodations.
Heck, I had a teacher tell me I wasn't "really" disabled because I could have conceivably gotten a low C in her class without my academic accommodations, and was seemingly more "together" socially than the other learning disabled kid in our class.
This is why I always suggest you go into evaluations like you're at your absolute worst physically, mentally, etc.
People suck.
So he might not be super screwed.
Democrats Abroad! || Vote From Abroad
Ok I finally hear about someone else who has chronic Lyme disease and they're a dog
I am so mad at god right now
On the upside, my Sleep Apnea is getting the shit kicked out of it. I'm averaging .5 incidents an hour now. Woo!
Several weeks before ex and I broke up, we had to go do her IME (independent medical examination -- basically SSI pays doctors to give an 'unbiased review' [hint: they're not unbiased]) to keep her disability. Her disability isn't a visible one, she has chronic UTIs and kidney infections that basically shut her down for 3-5 days at a time, and occur at least once a month (she's immunocompromised from transplantation).
So this doctor just happened to catch her during one of her good phases. Nothing wrong, 100% bubbly personality at this point because she isn't basically dying in bed from a kidney infection.
So you can guess how well that went. Very dismissive. "Why aren't you in school, why don't you have a job? You don't look sick." Not to mention she had just gotten kicked out of the LPN program because she was hospitalized and couldn't take the midterm math exam that is pass/fail and fail means you are immediately removed from the program. "You can't just start school in the middle of May" I said to her. She looked disgusted at the whole situation.
Then we had to go in front of SSI for a review because we contested that review. I spent hours looking through SSI's coverage to find all the shit that applied. Just so happened that chronic UTIs for immunocompromised people is covered (plus a few other things I made a case for). So I presented that with her in front of the SSI panel and bing bang boom, approved for disability again. I can imagine for people who don't appear the absolute sickest when doing these things, just like you said, it's the worst situation imaginable. Fighting and appeals is tiring. Who the fuck is going to have the ability to pour through SSI's coverage for disabilities? Gonna pay a lawyer a few grand to do it for you? These people can't afford that.
Also, fuck you shitty, judgemental doctor. I win, you lose.
one hundred thousand years ago when I was 19, I had a neopets friend who had chronic Lyme. I mean, that doesn't help with like socializing or finding someone to commiserate with, but I knew someone!
It was probably me and we didn't know each other at the time
she was younger than me, so unless you're a time traveler... though I wouldn't put it past you
I also had to buy my dog an anxiety swaddling shirt because he gets little doggy panic attacks during thunderstorms. life is terribly unfair tbfh.
definitely having one of those days where I woke up this morning like YEAH I'M GOING TO DO SO MUCH and by the time I left the dog park an hour later I was like I'm gonna do... some things, semi-sedately, while trying not to puke
This guy!
Apparently sometimes when you bang your finger against something just right it can tear the ligament that lets you straighten your finger. When this happens the fingertip droops down and apparently to some really unimaginative people who came up with the name it looks like a mallet. Hence mallet finger.
Got a splint to hold it straight and sometime soon I talk to a hand specialist yaaaaay
-Indiana Solo, runner of blades
I get here for my CT today and the nurse is like that's not a REAL allergy, you'll be fine. Ok well as long as you know to send me to the machine with a puke bucket, carry on
it doesn't help that I still have some kind of food poisoning or stomach virus or something so I'm at a constant low grade nausea level and at random my digestive system decides everything must go. 0/10 do not recommend