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Hospitals and Long Term Treatment: Chronic illness thread

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Posts

  • TheStigTheStig Registered User regular
    I guess they do it different in other states, but to me that seems like calling a handyman an engineer.

    bnet: TheStig#1787 Steam: TheStig
  • bowenbowen How you doin'? Registered User regular
    I dunno if I'd make that big of a leap. CNA took on the role that was typically for nurses back in the day. Nurses now-a-days inherited some provider and physician level of care.

    Handyman vs electrician might be more apt?

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • TheStigTheStig Registered User regular
    Yeah I guess engineer would be the very top. Anyway, the differences are probably much less apparent to those not working in the field.

    bnet: TheStig#1787 Steam: TheStig
    bowenJonJonJonJonKetar
  • bowenbowen How you doin'? Registered User regular
    edited June 2017
    Yeah that's what it boils down to.

    You and I can spot the difference between NP,RN,LPN,CNA, and MA, but can my dad? (he can't lol)

    bowen on
    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • MetalbourneMetalbourne Inside a cluster b personalityRegistered User regular
    I'm having one of those days where air hurts my skin

  • cabsycabsy the fattest rainbow unicorn Registered User regular
    surgery seems to have gone well, still in hospital wrapped up like a sausage with some drains in, unlike last time I'm not trying to be conservative on that painkiller button

    DevoutlyApatheticSorceSanderJKDonovan PuppyfuckerKetarMadEddybowentynicI ZimbraSir Headless VIICreaganknitdanCalicaMetalbourneAngelinapookaLuvTheMonkeyBubsSkeithSlacker71
  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Sorce wrote: »
    If you had money on "Munkus body rotting from the inside out exacerbating existing symptoms" you get a bingo.
    Wait, what?

    "My body was rotting" seems to be the simplest way to put things in laymens terms. The fistula network was so large, so vast, and so detrimental...there were points were the fistulas were over a millimeter in diameter in close proximity to all those nice internal organs. The way my body was reacting to the fistula network was causing everything else to get worse. My arthritis, the crohn's that wasn't in my intestines (actually my intestines was about the only thing that looked good, except for the whole big ol' hernia thing), the large amount of inflammatory markers in my blood...

    And the work isn't done. The granulation tissue has been scraped away and any active infection is gone for now, but they couldn't just close up the network without leaving a big hole for a new abscess to form from. It was in such a state that they couldn't even put in setons or the like to facilitate drainage. The only way forward is to let it drain 'naturally' and catch what I can on a spongy gauze, then go back in a few months and assess how the healing has gone. From there, we scrape away any new granulation tissue and infection and possibly put in a seton (probably not even then to be honest), then come back in a few more months to assess. It has to heal on its own and shrink in size before they can try something to close it off for good.

    The hernia is something I had had for years at this point, but when I first got them to look at it they said - in essence - that it wasn't emergent, that it would cause more harm to fix it, it was too risky, and that it wasn't causing me enough problems. But when they looked at it now, years after the fact, they said "Oh man, that looks pretty bad, we might even have to bust out the surgical mesh to get that to stay in place." They had to bust out the surgical mesh.

    Humor can be dissected as a frog can, but dies in the process.
  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Oh, and I am back home now, after a grueling day of painful travel. Yesterday I had one of those lovely pre-flight conversations that started out as a nice one about Star Wars with a girl who had a bunch of stickers on her laptop and ended with me frustratingly trying to explain that her views on homosexuality being sinful were way off base and her 'views' on transpeople were just flat out wrong.

    Aside from the casual bigotry, I nearly wanted to scream when she busted out the gem "science is based on faith".

    Humor can be dissected as a frog can, but dies in the process.
    cabsybowenpookaCalicaSlacker71
  • bowenbowen How you doin'? Registered User regular
    I'm sure science based around the faiths was comforting to Galileo too.

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
    Metalbourne
  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    It was an Arrested Development Joke acted out in real life.

    Humor can be dissected as a frog can, but dies in the process.
  • ButlerButler 89 episodes or bust Registered User regular
    Look you can't prove this food isn't poisoned, so I'll thank you to respect my belief in only eating out of the garbage.

    Donovan Puppyfucker
  • cabsycabsy the fattest rainbow unicorn Registered User regular
    my oxygen levels are a hair low and nobody is sure why. I think the Dilaudid maybe is making me forget to do that whole breathing thing. I now have an even bigger incision! from bottom of ribcage to right above my groin. this had better look awesome after it heals

    BogeyDonovan PuppyfuckertynicMunkus BeaverCreaganSkeithpookaAngelinaSlacker71
  • MadEddyMadEddy Creepy house watching youRegistered User regular
    Tell people you got in a swordfight.

    ruby-red-sig.jpg
    MetalbournecabsyDonovan PuppyfuckerbowentynicjgeisCreaganSkeithpookaAngelinaGnizmoSporkAndrewSlacker71
  • bowenbowen How you doin'? Registered User regular
    Scars are hella cool.

    Makes for interesting stories.

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • TheStigTheStig Registered User regular
    bnet: TheStig#1787 Steam: TheStig
  • cabsycabsy the fattest rainbow unicorn Registered User regular
    My roommate fell asleep with some kind of cops show on silent which was incredibly fucking disorienting at 4:30, waking up to a ton of strobing lights through the curtain

  • cabsycabsy the fattest rainbow unicorn Registered User regular
    I am back home! Two large pieces of surgical mesh, 45 external staples, two JP suction drains, one abominable (hah) binder to be worn for six weeks, and eight days until we're supposed to move

    no stress here

    KetarI ZimbraknitdanSorceDonovan PuppyfuckertynicpookaCreaganSkeithLabelDevoutlyApatheticCalicaMadEddyAngelinaSCREECH OF THE FARGSlacker71
  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Every sneeze is pain. My God.

    Humor can be dissected as a frog can, but dies in the process.
    cabsy
  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    edited June 2017
    I have taken my girdle off today. I honestly don't know if I will regret it or not, but time will tell.

    EDIT: And my girdle is fucking weird because they had to cut two holes out of the damned thing for my ostomy bag to go through.

    Munkus Beaver on
    Humor can be dissected as a frog can, but dies in the process.
  • cabsycabsy the fattest rainbow unicorn Registered User regular
    I have taken my girdle off today. I honestly don't know if I will regret it or not, but time will tell.

    EDIT: And my girdle is fucking weird because they had to cut two holes out of the damned thing for my ostomy bag to go through.

    from experience, if you had a bunch of ab muscles fucked with during surgery, wear the damn girdle for 4-6 weeks

    I know you aren't fat but baseline for incision hernia is 20%+ and each complicating factor, like obesity and steroids and immunosuppressant treatments, adds another 10-20%+, from experience I'm just gonna wear the fucking binder to give myself the best chance of not going through this shit again

    bowenPhoenix-D
  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    cabsy wrote: »
    I have taken my girdle off today. I honestly don't know if I will regret it or not, but time will tell.

    EDIT: And my girdle is fucking weird because they had to cut two holes out of the damned thing for my ostomy bag to go through.

    from experience, if you had a bunch of ab muscles fucked with during surgery, wear the damn girdle for 4-6 weeks

    I know you aren't fat but baseline for incision hernia is 20%+ and each complicating factor, like obesity and steroids and immunosuppressant treatments, adds another 10-20%+, from experience I'm just gonna wear the fucking binder to give myself the best chance of not going through this shit again

    Yeah, but I had my surgery done at Mayo so instead of having a cross cut like you are describing, it was a simple line cut on the side of the hernia.

    Like, when they removed my Colon when I was 14ish, they did that shit laproscopically and I had only about 2-3 weeks recovery in the hospital. The surgeon who removed my J-pouch a couple years ago didn't do it laproscopically and I have a big cross scar from that.

    The scar is 'smallish' in size. No stitches even, just crazy glue to hold me together.

    Humor can be dissected as a frog can, but dies in the process.
    bowencabsypookaSlacker71
  • cabsycabsy the fattest rainbow unicorn Registered User regular
    cabsy wrote: »
    I have taken my girdle off today. I honestly don't know if I will regret it or not, but time will tell.

    EDIT: And my girdle is fucking weird because they had to cut two holes out of the damned thing for my ostomy bag to go through.

    from experience, if you had a bunch of ab muscles fucked with during surgery, wear the damn girdle for 4-6 weeks

    I know you aren't fat but baseline for incision hernia is 20%+ and each complicating factor, like obesity and steroids and immunosuppressant treatments, adds another 10-20%+, from experience I'm just gonna wear the fucking binder to give myself the best chance of not going through this shit again

    Yeah, but I had my surgery done at Mayo so instead of having a cross cut like you are describing, it was a simple line cut on the side of the hernia.

    Like, when they removed my Colon when I was 14ish, they did that shit laproscopically and I had only about 2-3 weeks recovery in the hospital. The surgeon who removed my J-pouch a couple years ago didn't do it laproscopically and I have a big cross scar from that.

    The scar is 'smallish' in size. No stitches even, just crazy glue to hold me together.

    yeah I'd still do it though. doesn't hurt and smaller hernias are actually more dangerous wrt incarceration and strangulation. up to you obviously

  • knitdanknitdan In ur base Killin ur guysRegistered User regular
    Just got confirmation from Social Secirity that they have deemed my disability to be "continuing"

    No shit, fellas.

    Nice to know I've still got my SSDI coming though.

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
    MetalbournebowenI ZimbraSkeithpookacabsyMadEddylonelyahavaSorceAngelinaCreaganGnizmoSlacker71DisruptedCapitaliststopgap
  • bowenbowen How you doin'? Registered User regular
    Those letters are always annoying.

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • I ZimbraI Zimbra Worst song, played on ugliest guitar Registered User regular
    knitdan wrote: »
    Just got confirmation from Social Secirity that they have deemed my disability to be "continuing"

    No shit, fellas.

    Nice to know I've still got my SSDI coming though.

    Glad to hear you got approved. My wife had her IME last week and we're waiting for a decision so we're on pins and needles.

  • bowenbowen How you doin'? Registered User regular
    is this your first time applying zimbra?

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • I ZimbraI Zimbra Worst song, played on ugliest guitar Registered User regular
    bowen wrote: »
    is this your first time applying zimbra?

    Yep. I'm figuring we'll get denied this time around since that's just what they do.

    bowenGnizmo
  • bowenbowen How you doin'? Registered User regular
    I Zimbra wrote: »
    bowen wrote: »
    is this your first time applying zimbra?

    Yep. I'm figuring we'll get denied this time around since that's just what they do.

    Make sure to start looking up the relevant coverage and getting all your medical records in order. If you contest it they might have you sit down and explain to them why. Or they might just have you fill out the letter.

    The more boxes you can tick with coverage the better off you are contesting it.

    IMEs are hot garbage, the one that did my ex's lied her fucking face off.

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • knitdanknitdan In ur base Killin ur guysRegistered User regular
    You could get lucky, I got approved on my first time through (this time was the 3 year review to see if anything had changed).

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
  • bowenbowen How you doin'? Registered User regular
    I don't think they're allowed to turn down dialysis patients anymore. Maybe that's wrong though.

    Something to do with the ESRD Program that Nixon took care of back in the day?

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • lonelyahavalonelyahava Call me Ahava ~~She/Her~~ Move to New ZealandRegistered User regular
    Update on brother!

    His wound is healing, growing smaller in width, at least. It started at about 9mm long and 3mm wide and it's down to about 1.5mm wide.


    It's very red and beefy looking. Mom has been doing the work of changing his dressing and they've been going to the wound centre every few weeks.

    The surgeons are making an appointment for him next week sometime to discuss him getting a skin graft.

    The obnoxious thing right now is that he got sent home with a wound vac for the bite, to keep it clean and stuff. But nobody bothered to teach mom or brother how to use it. Mom ended up having to YouTube a video on how to change his dressing.

    They told that to one of the surgeons and his answer was "oh, he didn't have insurance when he went into hospital. So since he's a charity case, we don't do home visits or post-hospital training. But you've done an excellent job! Oh and (brother) how much weed do you smoke?"*


    *Brother hasn't had any weed in years since his dumb ass keeps getting caught with it.

    The Dr just took one look at him with his long curly black hair and just adding he was a dirty weed smoking hippy.

    To say that they're unimpressed with the surgeon would be an understatement.


    Although the Dr at the wound centre isn't faring much better. After recommending brother use this survived specific antiseptic on the wound. That none of the pharmacies carry because it's $700/case. Gotta love drug reps.

    bowentynicpookaSkeithcabsyCreaganSlacker71
  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    I can't believe they are having ya'll use a wound vac without assistance. That is fucking insane.

    Humor can be dissected as a frog can, but dies in the process.
    bowenI ZimbracabsyCreaganCimmeriiSlacker71Phoenix-D
  • lonelyahavalonelyahava Call me Ahava ~~She/Her~~ Move to New ZealandRegistered User regular
    I mean, mom's an RN with years of experience. But she's never done wound care. she's a pediatric nurse.

    But yeah. She got shown once in the office, youtubed it twice, and then ended up showing one of the other office nurses how to do it.

    My level of being unimpressed is quite high.

  • bowenbowen How you doin'? Registered User regular
    "You're not paying us half a million dollars, so fuck you!" is such a great stance on making sure a person doesn't come back and need your services again.. and won't pay you again.

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
    CalicaDonovan PuppyfuckerlonelyahavacabsyNightDragonCreaganZibblsnrtCimmeriiSlacker71Phoenix-D
  • QuantumTurkQuantumTurk Registered User regular
    bowen wrote: »
    "You're not paying us half a million dollars, so fuck you!" is such a great stance on making sure a person doesn't come back and need your services again.. and won't pay you again.

    "I knew it wasn't worth our time, see, they died anyway."

    bowenCalicaCreaganCimmerii
  • cabsycabsy the fattest rainbow unicorn Registered User regular
    My surgeon pulled drains and staples and declared me fit to resume stelara and make the 1800 mile move to Texas, which we finished yesterday by signing a lease on our new place and then I slept 24 hours straight through

    and now I'm getting to check out Texas hospitals, because apparently I have both a topical infection and a 10cm by 4cm abscess in my abdomen

    yet again my husband was right about not putting off going to the hospital

    pookaCreaganGnizmoSorceDonovan PuppyfuckerSkeithbowenDevoutlyApathetictynicAngelinaSlacker71
  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Jesus Christ that's an enormous abscess, Cabsy.

    Humor can be dissected as a frog can, but dies in the process.
    MadEddySlacker71Phoenix-D
  • cabsycabsy the fattest rainbow unicorn Registered User regular
    Jesus Christ that's an enormous abscess, Cabsy.

    apparently it's not unusual because of the mesh yadda yadda but yeah I'm not super duper excited about it

    explains why I've been feeling like absolute dogshit, like moving and catching a summer cold wasn't enough

    my friend said she's starting to think I should just be tethered to a hospital bed until they're sure I'm healed, at this point

  • Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Not unusual my lack of ass. That size of abscess is huge.

    Humor can be dissected as a frog can, but dies in the process.
    Donovan Puppyfucker
  • SorceSorce Not ThereRegistered User regular
    edited July 2017
    Hey guys, this is your every-so-often reminder to don't ever get psoriasis. Especially don't get it in your finger/toenails. Makes any nails getting 'smooshed' or 'bumped into' about 10x more painful and hurt like 3x as long.

    FFFF-

    Sorce on
    sig.gif
    cabsy
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