As was foretold, we've added advertisements to the forums! If you have questions, or if you encounter any bugs, please visit this thread: https://forums.penny-arcade.com/discussion/240191/forum-advertisement-faq-and-reports-thread/
Options

Hospitals and Long Term Treatment: Chronic illness thread

1414244464761

Posts

  • Options
    cabsycabsy the fattest rainbow unicorn Registered User regular
    tynic wrote: »
    SharpyVII wrote: »
    My wife's first Gynaecological consultant did a burning operation on her Endometriosis. The pain and symptoms went away for 6 months but then came back.

    So my wife went back and explained what happened and the consultant told her she was making it up for attention and there's no way she could've missed any endometriosis.

    So she get referred after much arguing to an endometriosis specialist in another city.

    Sure enough when the new consultant did an excision surgery not only did she find the endometriosis was back where the other consultant had operated, the old consultant had also missed several pockets.

    So we mailed a copy of the report to the old consultant.

    No reply surprisingly.

    wait, what? Endometriosis almost always grows back. How the fuck did the consultant not know that? I know that and I don't know dick!

    I mean that's kinda what it does and that's why ablation is a temporarily measure, it's like innard kudzu, but I guess some people don't like being questioned

    file this specialist alongside the surgeon who kept blowing me off as having regular follow-up soreness and I turned out to have a 17.5cm hernia, under F for 'fucking assholes'

  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Doctors are often assholes.

    Very often.

    Too often.

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    Satanic JesusSatanic Jesus Hi, I'm Liam! with broken glassesRegistered User regular
    So for the second time in a week, my 84 year old father has gone back to hospital because there was blood in his catheter. Not just a little trace either, all the liquid in it was quite blood red. Jesus, I'm just freaking out over here, this asn't happened before and I'm just trying to not cry.

    my backloggery 3DS: 0533-5338-5186 steam: porcelain_cow goodreads
  • Options
    tynictynic PICNIC BADASS Registered User, ClubPA regular
    edited December 2017
    it's probably not much comfort, but there are several possible reasons for bloody urine and not all of them are dangerous. Fingers crossed for you and him.

    ... I came in here to bitch because after several years without a chest infection, I get a cold four days before christmas and I can feel it settling into my lungs. T-12 till I'm coughing up something green and lumpy, I'm estimating. But that's pretty minor in the scheme of things.

    tynic on
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    In the hospital on Boxing Day, weeeee

    f5covq21jh7d.jpeg

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    I ZimbraI Zimbra Worst song, played on ugliest guitar Registered User regular
    Oh no, I missed that you were back in the hospital. How are you doing, Munk?

  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Getting into more arguments about what proper pain control should be while I am in the hospital with the local muppet GI crew this time instead of Vandy/Mayo, and then the bonus of "Oh they are refusing to admit they are wrong, so this little concession is basically to spite me."

    They seem to think it was caused by a viral infection, which to that I say ??????? Because that doesn't tend to happen. The same docs in charge stopped the antibiotic/antifungal IV regiment about 30 hours after it was started, I would not have done this as I would have just played it safe. But they "haven't seen anything" with their tests which means fuckall because it's an Alabama hospital and of course their tests come back inconclusive/lacking.

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    valhalla130valhalla130 13 Dark Shield Perceives the GodsRegistered User regular
    This week, the VA told me I'm diabetic, but with controlling portion sizes, exercise and cutting out soda, i can reverse it.

    asxcjbppb2eo.jpg
  • Options
    TheStigTheStig Registered User regular
    edited December 2017
    Controlling portions of carbs and cutting out simple sugars yes. Eat as much meat and low carb veggies as you want. Also "exercise" can be something simple like walking an hour a day. You don't need to go hard and get big at the gym.

    And no "I walk a lot at work though!" is not exercise. I mean sustained, heart rate up for 60 minutes daily.

    Also get a glucometer, they should have prescribed you one, and check sugars at least daily (more often if you're more severe).

    TheStig on
    bnet: TheStig#1787 Steam: TheStig
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Well, that’s a first.

    I just argued with a doctor enough that he just gave up out of exasperation and just conceded to my request.

    Oh no, he still refused to admit he was wrong. He literally just said “ok I give up we’ll do what you want. It’s still not right, though.”

    So, in short: I fought the Docs, and I won :whistle:

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    TheStigTheStig Registered User regular
    I've done that before. I deal with allergies every day. I know the difference between allergies and a sinus infection. No I will not attempt another week of allergy relief before moving on to antibiotics. I do those every day regardless.

    bnet: TheStig#1787 Steam: TheStig
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Basically if I say “I am hurting” then you, the doctor agree with that. Don’t say “you shouldn’t be hurting this much because of X” because boy howdy you don’t know how my broken system interacts with itself. And don’t fucking tell me I don’t have Crohn’s symptoms when I have some on my damn arm and I literally had a scope six weeks ago showing inflammation and the blood work then also indicated that it wasn’t a flare (yes, this was during the strictures thing. Unsurprisingly, the strictures contributed to some Crohn’s symptoms in my gut)

    And don’t go waving around this vague notion of medical knowledge that you think you possess to the exclusion of myself. I have been doing this for longer than you and I know how my stupid body reacts to stupid stimuli.

    I have also had to explain my stupid medical history to three different nurses because oh boy they needed some justification for why I needed THIS much and then after hearing it all they each in turn just kinda meekly went “Oh”

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    bowenbowen How you doin'? Registered User regular
    I never understand why doctors and nurses fight with patients, especially non feeble ones.

    They're supposed to be taught that the patient probably knows more about their health and how they feel than you as a doctor probably know because you're not in their body.

    I guess the machismo takes over and they like the kind of power it gives them? I don't know.

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • Options
    TheStigTheStig Registered User regular
    edited December 2017
    It varies by region and even hospital/clinic. Personally idgaf, I'll give you as much medication as I can so long as your conscious and breathing. Until they start brain scanning people to get an objective measurement of pain, all I got to go on is how much pain you say you're in.

    Of course ER treatment is less restricted than pcp prescribing. They can lose their license and go to jail for prescribing too much.

    TheStig on
    bnet: TheStig#1787 Steam: TheStig
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    And I am discharged and going home! Yay!

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    But my father is at home with a fever and probably some version of whatever sent me to the hospital vomiting in the first place, bookk

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    valhalla130valhalla130 13 Dark Shield Perceives the GodsRegistered User regular
    TheStig wrote: »
    Controlling portions of carbs and cutting out simple sugars yes. Eat as much meat and low carb veggies as you want. Also "exercise" can be something simple like walking an hour a day. You don't need to go hard and get big at the gym.

    And no "I walk a lot at work though!" is not exercise. I mean sustained, heart rate up for 60 minutes daily.

    Also get a glucometer, they should have prescribed you one, and check sugars at least daily (more often if you're more severe).

    They did prescribe one. I'll also have to take metformin. Cutting out soda is going to be my biggest problem though.

    asxcjbppb2eo.jpg
  • Options
    lonelyahavalonelyahava Call me Ahava ~~She/Her~~ Move to New ZealandRegistered User regular
    metformin is the fucking devil. For me.

    Although I was taking it for gestational diabetes, and i was doing ok on i for the first 4 months. but then things changed and every single time I took it I ended up with such explosive diarrhea. Like almost always liquid.

    So, that's a side effect to keep in mind. But it treats everybody differently

  • Options
    MadEddyMadEddy Creepy house watching youRegistered User regular
    edited January 2018
    Got some blood tests my primary care did back on Friday. My thyroid might be crapping out now? I go back in a few weeks to test it again.

    My doctors are right now are shrugging their shoulders and saying all my issues (gastritis, anemia, intracranial hypertension, and now maybe hypothyroidism) might be something autoimmune, but it's basically keep treating the symptoms and maybe something concrete will turn up on a test eventually. It's very frustrating.

    MadEddy on
    ruby-red-sig.jpg
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    So I have been told to not start a new thread about this, so here is the preliminary post:

    Due to my. Declining health, my family is going for a last ditch "change everything elimination diet." My closest family has said they will follow the diet with me in support, kinda like when a guy gets chemo you shave your head. chemo you don't keep shaving your head every day...it's a loose analogy.

    Basically, I am wondering how man, if any, of ya'll would be interested in showing your support for a fellow former by following this strict diet for as long as I had. Som of ya'll had wondered "what it's like being a Crohn's patient," and this will give you a window in, except you don't have to argue with doctors who don't believe in the severity of your symptoms.

    The short answer on what kind of diet is "Some kind of Paleo" there is more to it than that, as I will be eating yogurt and I can't eat nuts. I have never been able to eat nut and veggies, even cooked veggies, give me a hard time. If you want to do all of the diet I am, I would really appreciate your support. If you can only do part of the diet for budget or your own dietary reasons, I understand and appreciate your support.

    Some things I am giving up:
    Cokes/Sodas
    Candy (corn syrup)
    Coffee and any other caffeine in the morning
    Fast Food
    Wheat
    Milk (o begin with)

    NOT giving up
    Most protein
    Including bacon, beef, and ham
    To begin with, tha seems to be wha we're eating. Protein, as par of he elimination diet to see wha affects my system and how.

    I will have a more detailed pos when I haven't made his all on my iPad and have more info in front of me bu....please consider joining in. Your suppor will mean a lot o me.

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    knitdanknitdan In ur base Killin ur guysRegistered User regular
    That kind of looks a lot like the renal diet I'm supposed to be following. I'll give it a shot.

    Fast food is going to be tough though, and giving up wheat might be impossible for me.

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
  • Options
    MadEddyMadEddy Creepy house watching youRegistered User regular
    I've already had to give all that up except wheat and caffeine (although I have drastically cut back on the latter). There's so little I can eat right now I don't think I can realistically cut out wheat, but I can cheer you on.

    ruby-red-sig.jpg
  • Options
    JansonJanson Registered User regular
    I could really do with joining you although with a low budget and having to eat as part of the family, it might not be possible! But I could maybe do some of it with you? I could give up the coffee, fast food, soda etc.
    MadEddy wrote: »
    Got some blood tests my primary care did back on Friday. My thyroid might be crapping out now? I go back in a few weeks to test it again.

    My doctors are right now are shrugging their shoulders and saying all my issues (gastritis, anemia, intracranial hypertension, and now maybe hypothyroidism) might be something autoimmune, but it's basically keep treating the symptoms and maybe something concrete will turn up on a test eventually. It's very frustrating.

    How thorough was the blood panel? I had an endocrinologist who only ever tested TSH and free-T4...

    I hope you have a diagnosis soon!

    I have hypothyroidism, anemia, severe vitamin D deficiency and other minor symptoms (that basically can all be attributed to thyroid issues) and only this past summer did the local Urgent Care do blood work that showed I have Hashimoto’s disease.

    Also, I’m very bad, I’m currently unmediated and I keep forgetting to take iron/Vit D so I’m a mess and have only myself to blame. I just really, really, really hate doctors.

  • Options
    CreaganCreagan Registered User regular
    Unfortunately, because of my own dietary issues I won't be able to closely follow that specific elimination diet. But I can cut out fast food.

    Here's hoping you get some answers!

  • Options
    MadEddyMadEddy Creepy house watching youRegistered User regular
    I'm not sure what he ordered tested; they draw the blood in-house so I didn't see the order. He said my TSH was high but my thyroid hormones were normal, so he wants to retest. My stepdaughter was symptomatic with Hashimoto's while her blood work was only a little abnormal, and then it went from "a little abnormal" to "holy shit" pretty suddenly, so this might be a similar situation. I would really try to get on the medication if you can, because it makes a world of difference for her.

    The doctor was actually looking at my liver function, because I've developed Terry's nails, but hypothyroidism can cause them, too. And my liver is working fine, so at least I have that going for me.

    As for the vitamins and iron (I supplement B12, iron (check out Vitron-C, it's the brand my hematologist recommended and has worked really well for me), and prescription vitamin D by doctor's orders and biotin because half my hair fell out after my surgery last year), I use an app to track and remind me. And that was one terribly convoluted sentence.

    The app I use is Medisafe, which can import your meds for you if you use someplace like CVS or Walgreens as your pharmacy. That was handy, because right now I am on nine different medications to keep me more or less functional. The good news is my vitamin D was normal on my last blood work for the first time in two years.

    ruby-red-sig.jpg
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    edited January 2018
    Here's the short list of food to avoid:

    Grains
    Gluten
    Psuedo-Grains and Grainlike Substances
    Dairy
    Legumes
    Processed vegetable oils
    Processessed food chemicals and ingredients
    Added Sugars
    Sugar Alcohols
    Nonnutritive Sweeteners
    Nuts and Nut oils
    Seeds and Seed oils
    Nightshades and spides derived from Nightshades
    Spides derived from seeds (small amounts might be tolerated)
    Eggs
    Alcohol
    Coffee
    High-glycemic Load Foods

    Moderation:
    Green and Black Tea
    Fructose
    Salt
    Moderate-glycemic-load vegetables and fruits

    I'll have a better write up later, but those are the head notes of all the things that are being cut out of the elimination diet if you want to follow along.

    Red meat, Fish, Poultry, Amphibians, Shellfish, Seafood, Offal, Berries, Leafy Greens and Salad Veggies <- I can't really eat these, berries, Alliums, Sea Vegetables, Vegetables that Are Actually Fruit, Citrus Fruits, Tropical Fruits, Probiotic Fruits, a list of good fat.

    Bacon Fat is on the list of Good Fat, so there's that for cooking. And Lard, rendered from the backs of pigs. And Beef/Lamb/Mutton tallow.

    And a list of safe beverages (not a lot) and some probiotic foods and melons. And the "Roscacea Family"

    I will have more info for ya'll that want to join in. It's actually really cheap to follow this diet.

    Munkus Beaver on
    Humor can be dissected as a frog can, but dies in the process.
  • Options
    bowenbowen How you doin'? Registered User regular
    edited January 2018
    looks like a paleo diet more or less

    e: though I guess paleo has nuts/fruits as a big part too, so keto I guess is more appropriate.. but I thought keto hated any sort of veggies whatsoever?

    bowen on
    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    bowen wrote: »
    looks like a paleo diet more or less

    e: though I guess paleo has nuts/fruits as a big part too, so keto I guess is more appropriate.. but I thought keto hated any sort of veggies whatsoever?

    It's a part elimination diet as we see what things can work with my system and cause it problems while cutting out the things that we know would cause problems (high glycemic foods, nonnutritive sweeterners, etc.) to see what diet it right. It's a lot of major changes and given how my gut reacts to things it's uh...a really hard approach.

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    And hey, it's a huge moral support to see the people who are willing to put up with the same shit I am day in and day out since this will be really tough to maintain over the course of a few months.

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    MadEddyMadEddy Creepy house watching youRegistered User regular
    I will follow this as closely as I can with my own dietary restrictions. Yogurt and eggs are my main protein sources lately (easy on my stomach and my newly braced teeth), but I can or have cut out most of the rest.

    Coffee is going to be hard. I'm down to a cup a day, but I'm really attached to that cup. I'm going to be cranky in the mornings for a while, I guess.

    ruby-red-sig.jpg
  • Options
    furlionfurlion Riskbreaker Lea MondeRegistered User regular
    Damn that is a serious set of restrictions. I assume you are going to be doing all home cooked meals since most restaurants cook in vegetable oils right?

    sig.gif Gamertag: KL Retribution
    PSN:Furlion
  • Options
    RobonunRobonun It's all fun and games until someone pisses off China Registered User regular
    Who's got two thumbs and is probably going to lose all her teeth? This gal! A fatal combo of untreated GERD, bruxism, crappy dental coverage and several anxiety have just about put paid to my horrible smile. On the bright side, going to work buzzed is a neat new experience.

    Fake edit: and I have no business posting this shit when other people have real issues. wtf am I even doing here.

  • Options
    bowenbowen How you doin'? Registered User regular
    Robonun wrote: »
    Who's got two thumbs and is probably going to lose all her teeth? This gal! A fatal combo of untreated GERD, bruxism, crappy dental coverage and several anxiety have just about put paid to my horrible smile. On the bright side, going to work buzzed is a neat new experience.

    Fake edit: and I have no business posting this shit when other people have real issues. wtf am I even doing here.

    That's real shit to hear, sorry :(

    Also other people have it worse, sure, but that doesn't mean your problems aren't worthy of attention or response either!

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • Options
    furlionfurlion Riskbreaker Lea MondeRegistered User regular
    Robonun wrote: »
    Who's got two thumbs and is probably going to lose all her teeth? This gal! A fatal combo of untreated GERD, bruxism, crappy dental coverage and several anxiety have just about put paid to my horrible smile. On the bright side, going to work buzzed is a neat new experience.

    Fake edit: and I have no business posting this shit when other people have real issues. wtf am I even doing here.

    My mom had dental plates for a long time before she finally lost her teeth. She opted to have all hers pulled at once which hurt like hell but modern pain killers are pretty damn amazing so.

    sig.gif Gamertag: KL Retribution
    PSN:Furlion
  • Options
    JansonJanson Registered User regular
    That sounds really shitty and is definitely worthy of complaining about, @Robonun I'm sorry.

    No coffee at work this morning. So far I've had water only...

  • Options
    Donovan PuppyfuckerDonovan Puppyfucker A dagger in the dark is worth a thousand swords in the morningRegistered User regular
    Janson wrote: »
    That sounds really shitty and is definitely worthy of complaining about, @Robonun I'm sorry.

    No coffee at work this morning. So far I've had water only...

    How many people have "disappeared" by your hands so far?

  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    First day on diet, meh salmon and good lord is there nothing to drink but water?

    Any family trying to save money bough, no boy you save money.

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Robonun wrote: »
    Who's got two thumbs and is probably going to lose all her teeth? This gal! A fatal combo of untreated GERD, bruxism, crappy dental coverage and several anxiety have just about put paid to my horrible smile. On the bright side, going to work buzzed is a neat new experience.

    Fake edit: and I have no business posting this shit when other people have real issues. wtf am I even doing here.

    There is no race in human suffering. The only thing that bothers us are people who have a minor inconvenience and complain about it as if they suffered something much worse. "I got a splinter" he says to the amputee.

    A guy loses a finger to a hand ampuntee, in the ampuntee tries to shut him down then he's a gatekeeper.

    Your problems are serious and don't let anyone tell you otherwise or be gatekeepers.

    Humor can be dissected as a frog can, but dies in the process.
  • Options
    bowenbowen How you doin'? Registered User regular
    Digging out splinters is garbage though, fuck splinters.

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
  • Options
    MadEddyMadEddy Creepy house watching youRegistered User regular
    Don't fuck splinters, bowen.

    ruby-red-sig.jpg
Sign In or Register to comment.