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turns out I have sleep apnea and I just wanna vent

[Deleted User][Deleted User] regular
edited April 11 in The Whirlpool
The user and all related content has been deleted.

Anzekay on
«1

Posts

  • I needed anime to post.I needed anime to post. boom Registered User regular
    i mean it's pretty good not gonna lie

    liEt3nH.png
  • asurasur Registered User regular
    It's pretty awesome!

    There are alternatives if you can't tolerate a CPAP though that's normally the first option.

  • I needed anime to post.I needed anime to post. boom Registered User regular
    i'm tired today though. cats fought early in the morning and shot me up

    liEt3nH.png
  • SlymSlym Registered User regular
    My mom recently got a CPAP machine and has noticed a huge immediate improvement in her energy levels, hopefully you get the same results.

    My friend is working on a roguelike game you can play if you want to. (It has free demo)
  • SwainwalkerSwainwalker Registered User regular
    I've had a CPAP for a few years now... turns out apnea wasn't the only reason I was tired all the time

  • RiemannLivesRiemannLives Registered User regular
    I've had one for several years. The main downside is I had to shave my beard. The people who set me up were all like "oh yeah it should work with a beard if you X Y Z etc..." but after several months of the monitoring showing constant leaks and poor functioning I finally talked to an actual tech who was all "yeah these things never work with beards that's the problem".

    Now you can get the nasal-only mask to go with a beard but only if you can reliably keep your mouth shut all night. A nasal cpap with ones mouth open just turns the path from your sinuses into your mouth into a little wind tunnel. You wake up with a terrible sore throat. The fix for that is to get what is essentially an ACE bandage and wrap it around your whole head to keep your jaw shut all night but at that point shaving sounds like the least bad option.

  • [Deleted User][Deleted User] regular
    edited February 9
    The user and all related content has been deleted.

    [Deleted User] on
  • HacksawHacksaw J. Duggan Esq. Wrestler at LawRegistered User regular
    CPAP changed my quality of life dramatically. I default to clean shaven and use the one that goes over the mouth and nose, giving full enclosure. Took me a bit to figure out my ideal humidity setting, but once I did, oh buddy. I started having dreams again. Ones I could remember, with actual sensations in them. It's an incredible rush when they come back in force, like living in another world, whose destruction leaves you rested instead of horiffied.

    You gotta get on this Having Good Sleep shit they got now. Best trip you'll ever take.

  • RiemannLivesRiemannLives Registered User regular
    I use the same kind of mask as Hacksaw and it's quite comfy once you get used to it (took a couple weeks).

    For me what changed most rapidly is I stopped having adrenaline nightmares. When your blood oxygen gets low your body released adrenaline which kicks your breathing up a notch. Very rarely this will jolt you all the way awake but more often it just disturbs your sleep and the cycle repeats all night as you get dosed with adrenaline over and over again.

    For me this meant constant nightmares of fighting, being chased, chasing, being killed, killing etc... Those stopped completely as soon as I got my cpap.

  • PaladinPaladin Registered User regular
    Cpap is super nice if you get a cold and tend to be the person that can't sleep when you have nasal congestion

    Marty: The future, it's where you're going?
    Doc: That's right, twenty five years into the future. I've always dreamed on seeing the future, looking beyond my years, seeing the progress of mankind. I'll also be able to see who wins the next twenty-five world series.
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  • MadicanMadican No face Registered User regular
    I'm the weirdo who doesn't use the humidifier function of the cpap. Still a great machine, I definitely notice the difference between times when I'm wearing it consistently and times I'm not because I conked out before I got it on

  • HacksawHacksaw J. Duggan Esq. Wrestler at LawRegistered User regular
    I had to wrap my breathing tube in a protective sheath because my cats like to chew on it to wake me up when they want an early breakfast. It is both extremely annoying and incredibly cute at the same time. These adorable monsters cost me hundreds of dollars in replacement breathing tubes before I finally figured out to wrap the things in vinyl tape after a puncture. No more air leak!

  • UrielUriel Registered User regular
    I can't even sleep without my CPAP at this point

    When I got my study done that diagnosed my my score was 64 events per hour I believe, so more than once a minute

    I tell you it got bad with the daytime sleepiness for me, I couldn't even drive safely

    The CPAP was a night and day difference for me instantly

    Only down side was I used to be a belly sleeper and learning to sleep on my back hurt like a mother fucker for months if not a year.

  • P10P10 An Idiot With Low IQ Registered User regular
    sounds like i should upgrade from a nasal mask to a full face one because my sleep quality is still terrible even at the highest possible pressure, because i am at the highest pressure the humidifier reservoir runs out quick, and if it does run out overnight and i don't wake up my sinuses end up absolutely ruined

    Shameful pursuits and utterly stupid opinions
  • UrielUriel Registered User regular
    Zek wrote: »
    P10 wrote: »
    sounds like i should upgrade from a nasal mask to a full face one because my sleep quality is still terrible even at the highest possible pressure, because i am at the highest pressure the humidifier reservoir runs out quick, and if it does run out overnight and i don't wake up my sinuses end up absolutely ruined

    Pressure is separate from humidity, can you turn down the humidity on the machine so it won't burn through the water so fast?

    Higher pressure is more likely to leak and if you have too much mask leak you will lose water very quickly for one. But yeah higher pressure also just blows more air so it moves more water through in general.

    I am on high pressure and get a good seal on my nasal mask but still need to refill the tank every night.

  • -Tal-Tal Registered User regular
    Sleep Apnea...makes me wanna write a Sleep Rapnea

    PNk1Ml4.png
  • DelzhandDelzhand Coin Return Admin Registered User, Transition Team regular
    I use the same kind of mask as Hacksaw and it's quite comfy once you get used to it (took a couple weeks).

    For me what changed most rapidly is I stopped having adrenaline nightmares. When your blood oxygen gets low your body released adrenaline which kicks your breathing up a notch. Very rarely this will jolt you all the way awake but more often it just disturbs your sleep and the cycle repeats all night as you get dosed with adrenaline over and over again.

    For me this meant constant nightmares of fighting, being chased, chasing, being killed, killing etc... Those stopped completely as soon as I got my cpap.

    jesus christ

  • HoukHouk Nipples The EchidnaRegistered User regular
    Delzhand wrote: »
    I use the same kind of mask as Hacksaw and it's quite comfy once you get used to it (took a couple weeks).

    For me what changed most rapidly is I stopped having adrenaline nightmares. When your blood oxygen gets low your body released adrenaline which kicks your breathing up a notch. Very rarely this will jolt you all the way awake but more often it just disturbs your sleep and the cycle repeats all night as you get dosed with adrenaline over and over again.

    For me this meant constant nightmares of fighting, being chased, chasing, being killed, killing etc... Those stopped completely as soon as I got my cpap.

    jesus christ

    huh, I get these kinds of dreams a lot but I've had them my entire life so I always chalked it up to a me thing

    I figured my snoring/apnea came from me getting older and heavier, but I was also an asthmatic kid so maybe that's been the source of that stuff all along. probably worth looking into!

  • GreenGreen Stick around. I'm full of bad ideas.Registered User regular
    I tried a CPAP due to excessive snoring, only to find that my wife and I keep our room too cold for it to work. Without fail, the air would condense in the tube until I got a mouthful of water and whoops no more sleep for me!

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  • Fig-DFig-D SoCalRegistered User regular
    Thawmus wrote: »
    I wonder what dreams are like.

    I haven't had them since I was a kid.

    And yes, I'm aware that I probably still dream but just don't remember them.

    Confusing, mostly. If I remember a dream, I usually wake up wondering why I had it in the first place.

    SteamID - Fig-D :: PSN - Fig-D
  • MadicanMadican No face Registered User regular
    Dreams are the only reason I want to sleep. If I started not having any I'd go downhill really fast.

    They don't even have to be good dreams. I'll take nightmares as well, I'm a semi-lucid dreamer so it's not like anything in them can hurt me without my allowing it.

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  • UrielUriel Registered User regular
    Shadowfire wrote: »
    Green wrote: »
    I tried a CPAP due to excessive snoring, only to find that my wife and I keep our room too cold for it to work. Without fail, the air would condense in the tube until I got a mouthful of water and whoops no more sleep for me!

    That happens to me sometimes, usually turning the humidity down is enough to fix it. Not off completely, just like... 2/10 or whatever.

    Wrapping the tube in something to insulate it a bit can help too

  • Tequila SunsetTequila Sunset Registered User regular
    Thawmus wrote: »
    I wonder what dreams are like.

    I haven't had them since I was a kid.

    And yes, I'm aware that I probably still dream but just don't remember them.

    Ooof, that's real rough, buddy. The artefacts I bring back from Dreamspace are absolutely invaluable to my mental health in the waking world. Like, dead dogs given pats and scritches, ancient exes apologized to. There's an extended cut of the first Silent Hill game, a Resident Evil 2 1/2, and a Zelda/Pokemon/3D RPG mash-up in there that are all classic, A+ titles. Several groundbreaking X-Men arcs that don't exist in the Real World. Malls are still Real Big there! And there's this mountain resort that is thirty minutes from literally everywhere. Last night? I recovered a high tech helicopter from a crash site and restored it with a roughneck pit crew, then got gently mocked by an Alaskan pirate when I asked if I'd be getting a chance to fly it

    You have my very deepest condolences that you don't ever get to wake up remembering that you dodged an elite hit squad using your Shadowcat powers before Monica Bellucci made a pass at you, that sounds like sheer hell

  • Tequila SunsetTequila Sunset Registered User regular
    I use the same kind of mask as Hacksaw and it's quite comfy once you get used to it (took a couple weeks).

    For me what changed most rapidly is I stopped having adrenaline nightmares. When your blood oxygen gets low your body released adrenaline which kicks your breathing up a notch. Very rarely this will jolt you all the way awake but more often it just disturbs your sleep and the cycle repeats all night as you get dosed with adrenaline over and over again.

    For me this meant constant nightmares of fighting, being chased, chasing, being killed, killing etc... Those stopped completely as soon as I got my cpap.

    so I constantly get high anxiety nightmares about water rising that I can't escape, getting fired, failing my classes, etc. I'm wondering if this is related...

    I get these too, but I don't really register them as anxiety dreams until much later the next morning? I'm not waking up in cold sweats or kept up from nightmares/terrors, in the detached logic of the dream it's just, "ho hum, the dog fell in the lake and is being hunted by those sharks again", "oh look, that abandoned baby is falling backwards over some more stairs", "shards of glass aren't supposed to come out of my mouth, guess that's why its been bugging me back there, dentist will not be pleased". It isn't until I'm sitting sipping my coffee the next morning that it dawns on me, "hey that was a weird one, wonder if I'm stressed out about stuff more than is typical"

  • MadicanMadican No face Registered User regular
    edited February 10
    The main way my dreams seem to differ from everyone else is that I'm never "me" in the dream. As in if someone looked in from the outside they wouldn't know who I was in the dream because I don't inhabit my normal body, I'm in someone else. I always take a "role" in the dream and that role can change as the dream progresses. Maybe I'm the hero at first, then it rewinds a bit and now I'm the antagonist in their body instead. Stuff like that.

    If I look in the mirror I see nothing, which I chalk up to my prosopagnosia, or face blindness. Which tracks considering I don't recognize myself in real life. Turns out my being drawn to faceless things was more than just aesthetic reasons.

    Madican on
  • Tequila SunsetTequila Sunset Registered User regular
    edited February 10
    Yeah, I sort of see what you're saying there. So, occasionally in mine, the current "story" will "flip" into a second person perspective, whatever previous events being explained as a fiction, with a narrator and everything (ex: me dying to those zombies dramatically, neck ripped and everything, is revealed by Lee Major's voice to have been the last episode of a television season. Tune in next time, kids!). And now I'm back in the "Real World", sitting in my childhood basement watching that show, turning it off as I move on to the next bit of the dream

    Inception-type stuff like that is extra fun when you get a night where the layers in between are all versions of "okay, in this one, you're laying in a bed, unable to sleep and unsure if you're awake"

    Edit- Mirrors are one of the few "oh shit oh shit oh shit" appearances I do get in my Dreams. The teeth nightmares I can deal with. Looking in Dream-Mirrors, accidentally or (god forbid) on purpose? That's how you summon your Nemesis. That's just Lynch 101

    Tequila Sunset on
  • CornerEagleCornerEagle Magic Man by Heart Copenhagen, DenmarkRegistered User regular
    I don't use the humidity function at all on my CPAP machine.

    Well, that's not true, I have the humidifier attached because it lessens the noise, but I don't fill the reservoire.

    But I'm also an outliner from this thread, it seems, because I've just gone from the full face mask to just the nasal plugs and I like it a lot more.

    13iepvv6o8ip.png
  • shoeboxjeddyshoeboxjeddy Registered User regular
    If your mask is venting, you should check the fit (kidding).

    It was a big change to the quality of my sleep when I got my CPAP many years ago. One thing that's a racket is that they suggest a certain schedule of replacing the items (mask, tubing, filters, etc.) and then won't sell you supplies to match that schedule. Okay... give me the schedule you're using to sell me parts and I'll adjust to that (they will not offer this). So last year, I took stock of my supplies and stopped buying replacements until I went through the build up a bit. I also turned down the annual appointment where they say "Yes, your sleep therapy is doing exactly what it has been doing for the past several years... that will be $70 that your insurance won't cover." We'll see if I need to bother with an appointment or a restock this year.

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  • MaratastikMaratastik Just call me Mara, please! Registered User regular
    I'm in the midst of trying to get diagnosed with sleep apnea. Whooo boy is that a whole saga.

    Had my very first sleep study done 14-15 years ago during my phd when I first started having symptoms. Constant exhaustion and brain fog. Trouble concentrating. Impossible to get out of bed in the morning. Never feel rested. Never wake up feeling refreshed. The study was in lab. IIRC the doctor told me I woke up over 200 times (for 1-2s) during the night but that it wasn't sleep apnea but that I was depressed. Sounded like sleep apnea to me but what do I know. So instead I get prescribed an anti depressant. Doesn't help.

    Spend 10 years on varying types of anti depressant which never help. After talking to a new doctor about it they suggest another sleep study. This was 2020. Have the study done literally the week covid hit. Follow up is canceled. Spent a couple months trying to get one scheduled. Finally got frustrated and gave up.

    Finally, earlier this year while I was going through shit I get it in my head that I should really follow up on that old study if it's still possible. Call them and schedule appt. Doctor sees me. Tells me that I *barely* have sleep apnea. Is really dismissive though, says treatment probably won't help that I just need to go to bed earlier and practice better sleeping habits. Offers me a take home test if I *really* want one. I almost said what's the point, but agreed.

    I had concerns about it being take home (addressed below) but did it anyway and got my results back which said I had no evidence of disordered breathing. They base that off a number which is number of incidences divided by time sleeping. In my case they divided by the total time I was wearing the device. The time I actually slept was a fraction of that. Despite the tech assuring me beforehand that it knows when I'm sleeping because I'd expressed this concern. So my actual score should have been 2-3 times higher. Oh also, it showed that at at least one point I went over 60s without breathing. But whatever this Dr. clearly isn't interested in helping me.

    In frustration I schedule an appointment with another doctor. Almost cancel because I'm starting to doubt whether I really know better and maybe the first doctor was right and I'm just fixated on it being apnea when it isn't. But the lady I spoke with encouraged me to keep it.

    Finally have my appt with new doctor. He pulls up the lab study from 2020 and immediately says "you've got sleep apnea. You should be getting treatment" Didn't brush it off as a low score. Said doesn't matter of the score is low if I'm having these symptoms. Said of course the take home said everything was normal. They underreport the number of incidence and they don't know when you're actually sleeping since it's not hooked up to your head. Said they just needed to get me into the lab and get a current diagnosis so that I can finally start getting treatment.

    Fast forward to January and the study. Could not sleep at all, partly due to anxiety. Finally passed out near the very end of the study. Figured I had an hour of sleep. Apparently got two hours. I was already expecting the results to be insufficient but apparently I scored 0 apneas. None, zip nada. Really don't know what to think anymore. I was expecting the score to be low but not literally zero. Even the take home study from a month earlier showed a bunch of apneas (just not enough). Doctor recommended another one which is tomorrow night.

    On the one hand I'm really glad he's not just writing me off but on the other I worry I'm going nuts. I desperately want to try a CPAP. But I don't understand how my latest study showed nothing. And on top of that two days after that study my partner told me that I had woken them up in the middle of the night because I was gasping for air so loudly. I just don't even know. I'm just so tired. If this next one comes back as zero again I might actually lose my mind.

  • smofsmof [Growling historic on the fury road] Registered User regular
    Thawmus wrote: »
    I wonder what dreams are like.

    I haven't had them since I was a kid.

    And yes, I'm aware that I probably still dream but just don't remember them.

    I very, very rarely remember dreaming. On the occasion when I do it's usually a stress dream, so I don't miss them.

  • JedocJedoc In the scuppers with the staggers and jagsRegistered User regular
    I promise that you will never hear about any of my dreams. This is a service I provide.

    GDdCWMm.jpg
  • CelloCello Registered User regular
    Maratastik wrote: »
    I'm in the midst of trying to get diagnosed with sleep apnea. Whooo boy is that a whole saga.

    Had my very first sleep study done 14-15 years ago during my phd when I first started having symptoms. Constant exhaustion and brain fog. Trouble concentrating. Impossible to get out of bed in the morning. Never feel rested. Never wake up feeling refreshed. The study was in lab. IIRC the doctor told me I woke up over 200 times (for 1-2s) during the night but that it wasn't sleep apnea but that I was depressed. Sounded like sleep apnea to me but what do I know. So instead I get prescribed an anti depressant. Doesn't help.

    Spend 10 years on varying types of anti depressant which never help. After talking to a new doctor about it they suggest another sleep study. This was 2020. Have the study done literally the week covid hit. Follow up is canceled. Spent a couple months trying to get one scheduled. Finally got frustrated and gave up.

    Finally, earlier this year while I was going through shit I get it in my head that I should really follow up on that old study if it's still possible. Call them and schedule appt. Doctor sees me. Tells me that I *barely* have sleep apnea. Is really dismissive though, says treatment probably won't help that I just need to go to bed earlier and practice better sleeping habits. Offers me a take home test if I *really* want one. I almost said what's the point, but agreed.

    I had concerns about it being take home (addressed below) but did it anyway and got my results back which said I had no evidence of disordered breathing. They base that off a number which is number of incidences divided by time sleeping. In my case they divided by the total time I was wearing the device. The time I actually slept was a fraction of that. Despite the tech assuring me beforehand that it knows when I'm sleeping because I'd expressed this concern. So my actual score should have been 2-3 times higher. Oh also, it showed that at at least one point I went over 60s without breathing. But whatever this Dr. clearly isn't interested in helping me.

    In frustration I schedule an appointment with another doctor. Almost cancel because I'm starting to doubt whether I really know better and maybe the first doctor was right and I'm just fixated on it being apnea when it isn't. But the lady I spoke with encouraged me to keep it.

    Finally have my appt with new doctor. He pulls up the lab study from 2020 and immediately says "you've got sleep apnea. You should be getting treatment" Didn't brush it off as a low score. Said doesn't matter of the score is low if I'm having these symptoms. Said of course the take home said everything was normal. They underreport the number of incidence and they don't know when you're actually sleeping since it's not hooked up to your head. Said they just needed to get me into the lab and get a current diagnosis so that I can finally start getting treatment.

    Fast forward to January and the study. Could not sleep at all, partly due to anxiety. Finally passed out near the very end of the study. Figured I had an hour of sleep. Apparently got two hours. I was already expecting the results to be insufficient but apparently I scored 0 apneas. None, zip nada. Really don't know what to think anymore. I was expecting the score to be low but not literally zero. Even the take home study from a month earlier showed a bunch of apneas (just not enough). Doctor recommended another one which is tomorrow night.

    On the one hand I'm really glad he's not just writing me off but on the other I worry I'm going nuts. I desperately want to try a CPAP. But I don't understand how my latest study showed nothing. And on top of that two days after that study my partner told me that I had woken them up in the middle of the night because I was gasping for air so loudly. I just don't even know. I'm just so tired. If this next one comes back as zero again I might actually lose my mind.

    There is a form of sleep apnea called positional sleep apnea. I have 0 events lying on my side, but had a few hypopneas lying on my back during my study. Do you primarily sleep on your back or stomach?

    Steam
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  • CornerEagleCornerEagle Magic Man by Heart Copenhagen, DenmarkRegistered User regular
    It will get better. When I got my machine at first, I was convinced that I would never in a million years adjust to sleeping with it, and a couple of weeks later it was fine.

    13iepvv6o8ip.png
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  • UrielUriel Registered User regular
    edited February 23
    It'll probably take you a while to get the mask adjusted good too, or get one that's really comfy for you, my insurance let me try a number of masks types the first month or so. They really want you to maintain compliance.

    Do you got the app they have to track how your seal is and stuff? If you didn't get a good seal against your face you'll lose most of the humidity pretty quickly and the machine has to work harder to maintain pressure so it might feel like it's blowing harder on your sinuses.

    Uriel on
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