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Hospitals and Long Term Treatment: Chronic illness thread

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    KaplarKaplar On Google MapsRegistered User regular
    Kaplar wrote: »
    My back is doing a thing I think it did when I had a seizure last time.

    Are your muscles all tensing up?

    Just in a small patch on the upper right side of my back.

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    SorceSorce Not ThereRegistered User regular
    So my insurance sent me a letter about swapping to mail-order because it could be cheaper than what I am paying now. I conveniently had a doctor's appointment a couple of days later, so I mentioned that to him.

    "Oh, about half your meds are free at Publix."

    I... WHAT.

    So I gave him some shit for not telling me earlier, insert half-assed excuse here, and had him swap what wasn't free to the mail-order. Then I checked the mail-order website to make sure everything was all good... Apparently the rest of my meds are also free now.

    I'm happy, but GOOD LORD it would have been nice to know all this bullshit sooner. Check your coverage kids, it could make your budget way happier!

    sig.gif
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    So I was having an allergic reaction to this one type of medication for my joint pain. The doctor said "Hey, it might just be a reaction to the generic formulation. Let's try the non-generic."

    So that gets called in, and I find out today that after prior approval by insurance, this medicine will cost $150. For a 30 day supply. The fuck is this shit, I can't afford $150 a month for one medicine. This is insane.

    Humor can be dissected as a frog can, but dies in the process.
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    knitdanknitdan In ur base Killin ur guysRegistered User regular
    Any chance the manufacturer has a discount program? One of my meds was $200/month with insurance, but the manufacturer had a discount card that knocked it down to $5 per month.

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
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    Raijin QuickfootRaijin Quickfoot I'm your Huckleberry YOU'RE NO DAISYRegistered User, ClubPA regular
    Starting my day off at urgent care. I'm having really bad back spasms and this morning I took my medication for my diabetes and it gave me heartburn, which isn't unheard of, but then I took a big drunk and it felt like something literally tore in my throat.

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    TynnanTynnan seldom correct, never unsure Registered User regular
    I hope that turns out okay, Raijin.

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    Raijin QuickfootRaijin Quickfoot I'm your Huckleberry YOU'RE NO DAISYRegistered User, ClubPA regular
    Back spasms. Nothing serious. I had to get wheeled out of work today. Getting on cyclobenzaprine and a strong naproxen to try and be more functional.

    3 to 6 weeks basically... Can't do much about it it wait apparently.

    The throat thing ended up just being irritation. It's a lot better already today.

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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Well I have spent the past 20 hours or so doing nothing but vomitting. No idea wtf is going on. My parents took me to the hospital but it didn't take me long to leave, because I don't see any issues getting resolved locally and it looked like an 8-12 hour wait.

    I seriously doubt they'd be able to do anything outside of IV fluids, so might as well stay home where it is comfortable and hope for the best.

    Humor can be dissected as a frog can, but dies in the process.
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    PaladinPaladin Registered User regular
    Well I have spent the past 20 hours or so doing nothing but vomitting. No idea wtf is going on. My parents took me to the hospital but it didn't take me long to leave, because I don't see any issues getting resolved locally and it looked like an 8-12 hour wait.

    I seriously doubt they'd be able to do anything outside of IV fluids, so might as well stay home where it is comfortable and hope for the best.

    Are you in one of those places where urgent care is much faster than emergency or where they both take the same amount of time

    Marty: The future, it's where you're going?
    Doc: That's right, twenty five years into the future. I've always dreamed on seeing the future, looking beyond my years, seeing the progress of mankind. I'll also be able to see who wins the next twenty-five world series.
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    I have had a lot happen to me these past few months (including a couple hospitalizations), but I am updating this thread because of something that has happened within the past few days:

    7udybld81sy7.jpg
    kxi2hdfjoocz.jpg
    8fip7qzxnbyy.jpg

    My left foot has very suddenly swollen up to this current level. I don't know what this means. It has happened before (I even have an image saved from Jan. 2017, but it wasn't this big and we never figured out what was wrong then either)

    So yeah, this is to start what's new with me and also uh...anybody have a clue what the heck this means?

    Humor can be dissected as a frog can, but dies in the process.
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    knitdanknitdan In ur base Killin ur guysRegistered User regular
    Is it painful? Might be a sprain

    Is it squishy? Might be water retention

    How’s your urine output?

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
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    Descendant XDescendant X Skyrim is my god now. Outpost 31Registered User regular
    I've had a kidney transplant and swollen ankles are apparently Satan so they ask me every time I go to clinic.

    I'm guessing that you've probably pressed the skin to see if the indent stays awhile? I get swelling in my ankles every now and then and it seems like it's usually related to weight gain, but we've never sussed it out.

    Garry: I know you gentlemen have been through a lot, but when you find the time I'd rather not spend the rest of the winter TIED TO THIS FUCKING COUCH!
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    BucketmanBucketman Call me SkraggRegistered User regular
    I dunno if this fits the thread but about 3 weeks ago I was diagnosed with Type 2 Diabetes. I'm taking 2 500 mg Metformin a day, but other than that not much has changed. I had already started dieting so all I really did was cut out regular soda and energy drinks and swapped to diet drinks when I do drink em, and I started eating less pasta and rice and more whole grain stuff.

    So far I've lost about 5 pounds without doing much. Really the main thing is now I think everything has to do with diabetes because we have no idea how long I've had it. Like maybe the reason I've had issues losing weight the past few years is diabetes. last night I got some weird pain in my right foot and my wife immediately assumed it was diabetic nerve pain, but it was at the top of my foot and I've had issues with weird pain there since I was a kid and I didn't quite break it.

    My doctor says everything else is good. My blood pressure is 119/80, my cholesterol is solid both HDL and LDL. I dunno I feel like I should be more worried then I am? I go back for a follow up in a few weeks so I guess we'll see how my diet changes are helping.

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    DevoutlyApatheticDevoutlyApathetic Registered User regular
    One thing to note is that Metformin actually assists with weight loss, so that's a thing.

    The doc should have done the basic nerve test for your feet which is the needle prick thing. My understanding was that diabetics have the opposite issue from pain, they lose sensation in extremities rather than pain. The lack of sensation means they can often over look foot injuries and fail to treat them.

    The other diabetic thing is your eyes. Make sure you tell your eye doc next time you see them so they can take a good look for nerve damage when they're looking at your eyes anyways.

    Nod. Get treat. PSN: Quippish
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    knitdan wrote: »
    Is it painful? Might be a sprain

    Is it squishy? Might be water retention

    How’s your urine output?

    Slight pain. Not squishy. I have had slower urine output lately, slightly strained.

    Humor can be dissected as a frog can, but dies in the process.
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    BucketmanBucketman Call me SkraggRegistered User regular
    You might be retaining water. Is it a burning or a sharp pain

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    BucketmanBucketman Call me SkraggRegistered User regular
    One thing to note is that Metformin actually assists with weight loss, so that's a thing.

    The doc should have done the basic nerve test for your feet which is the needle prick thing. My understanding was that diabetics have the opposite issue from pain, they lose sensation in extremities rather than pain. The lack of sensation means they can often over look foot injuries and fail to treat them.

    The other diabetic thing is your eyes. Make sure you tell your eye doc next time you see them so they can take a good look for nerve damage when they're looking at your eyes anyways.

    Ugh yeah I'm due for an eye doctor appointment anyway. I hate this not because I have to like change my diet or anything, just because I don't want to like go blind or lose a foot or die.

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    RanlinRanlin Oh gosh Registered User regular
    Those things only happen if you don't get your diet under control.

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    DevoutlyApatheticDevoutlyApathetic Registered User regular
    Yeah, if the starting point was just some Metformin then you should be a long way from those issues. Get them checked and definitely get your diet under control but probably don't excessively freak out.

    Nod. Get treat. PSN: Quippish
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    SorceSorce Not ThereRegistered User regular
    Also be aware that one of the side-effects of Metformin is diarrhea. So be on the look out for that.

    sig.gif
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    mori1972mori1972 FF14: Rhotfyr Thosinmharsyn (Y)UKRegistered User regular
    One thing to note is that Metformin actually assists with weight loss, so that's a thing.

    The doc should have done the basic nerve test for your feet which is the needle prick thing. My understanding was that diabetics have the opposite issue from pain, they lose sensation in extremities rather than pain. The lack of sensation means they can often over look foot injuries and fail to treat them.

    The other diabetic thing is your eyes. Make sure you tell your eye doc next time you see them so they can take a good look for nerve damage when they're looking at your eyes anyways.

    Re the bolded part, that's not strictly the case. Diabetic neuropathy is one of those 'delightful' little conditions that actually can cause both. My housemate is a diabetic with a long history of poorly-managing his condition (to the point he's now had to have amputation surgery). What he experienced over time was 100% loss of feeling in the very extremities (so no reaction to anything when his feet were touched etc - hence the very sound advice of needing to routinely check feet/hands etc for injuries that might not otherwise be noticed) but also oftentimes excruciating pain slightly further up, caused by the same process.

    IANAD, but from what I understand (in terms of how its been explained to him by the doctors treating him, and then to me) is that the dead sensation is indicative that the nerves in that area have totally died/disintegrated, and the pain he experiences further up is indicative of the nerves degrading.

    That being said, this is also a pretty advanced stage of diabetic degradation, caused (as mentioned) by his wilful refusal to actively manage stuff, plus he was on a much tighter treatment regime (metformin + 2 different types of insulin) and this has happened over a period of decades.

    Absolutely 100% second the advice re eyes; also...again, this is probably something that (well, hopefully never obviously, but just in case) doesn't need to be worried about until much much further down the line, but if at any point you experience chest pain/tightness etc or any issues with going to the toilet, those can also be indicative of diabetic neuropathy (the chest one especially can sometimes be overlooked - housemate again was initially diagnosed with heart issues as a result of chest pains/tightness and it was at least a couple of years down the line of starting heart medication before a doctor went 'actually, there doesn't appear to be anything wrong with your heart; its more likely to be neuropathy of the chest').

    It's all saltwater these days:
    Ocean, tears and heartbreak soup
    Half alive in a whitecap foam
    Half in love with a white half moon
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    bowenbowen How you doin'? Registered User regular
    You can also feel like a your extremities are on fire.

    This is why they have diabetic socks too, the seam on the to of socks can feel like a knife running across your toes. Hell even the weight of a sheet or light blanket can feel like daggers on your skin if you have diabetes.

    not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Oh hey, I looked up some ways to treat retaining water online and if I had to guess that is the problem with my foot. I ate a bushel of bananas last night and stayed off my foot and drank a lot of water... and the foot has shrunk a bit. Still quite large, but nowhere near the size it was.

    Humor can be dissected as a frog can, but dies in the process.
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Also my current plan for this year is to get the bits of cyst/phlegmon/abscess removed from my insides and hopefully relieve some discomfort and maybe cause less of an immune system reaction? Maybe, hopefully?

    Also I need a doctor to fill out this disability paperwork.

    Humor can be dissected as a frog can, but dies in the process.
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    BucketmanBucketman Call me SkraggRegistered User regular
    Sorce wrote: »
    Also be aware that one of the side-effects of Metformin is diarrhea. So be on the look out for that.

    I was warned. For now I'm on a low dosage and I am going more frequently, but that might also be because I am eating like a fuck load of whole grains and all that stuff has a lot of fiber in it.

    I also haven't had any nausea either which I have heard is a big side effect

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    lonelyahavalonelyahava Call me Ahava ~~She/Her~~ Move to New ZealandRegistered User regular
    Sorce wrote: »
    Also be aware that one of the side-effects of Metformin is diarrhea. So be on the look out for that.

    As somebody that had gestational diabetes, let me echo this.

    It was perhaps the most miserable two months before I finally gave in and asked for insulin.

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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    And hey, after a day of wearing the compression socks my foot is looking much, much better! Still hurts a bit and is a little swollen all around, but it's way better than it was Tuesday/Weds.

    Humor can be dissected as a frog can, but dies in the process.
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    BucketmanBucketman Call me SkraggRegistered User regular
    My wife, being amazing and supportive, got me a bunch of sugar free candy for Valentines day.

    Ya know, I knew there was stuff in em that makes ya poop. I did. But that didn't stop me and I regret everything.

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    mori1972mori1972 FF14: Rhotfyr Thosinmharsyn (Y)UKRegistered User regular
    edited February 2019
    Bucketman wrote: »
    My wife, being amazing and supportive, got me a bunch of sugar free candy for Valentines day.

    Ya know, I knew there was stuff in em that makes ya poop. I did. But that didn't stop me and I regret everything.

    Hah...oh god yes. My housemate did that once with some sugar free sweets (I forget what they were now, but he basically ended up eating near enough the entire bag in one sitting).

    It really doesn't matter what history of gastrointestinal...unpleasantness you may have had in the past.

    Literally nothing can prepare you for the horror that subsequently unfolds as a result.

    Although, safe to say, he's never eaten that many sugar free sweets in one sitting ever again.

    mori1972 on
    It's all saltwater these days:
    Ocean, tears and heartbreak soup
    Half alive in a whitecap foam
    Half in love with a white half moon
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Hm. Starting to think there may be a blockage. Will update.

    Humor can be dissected as a frog can, but dies in the process.
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    BucketmanBucketman Call me SkraggRegistered User regular
    Hows the foot Munkus?

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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Foot is fine now, slightly sore on the top but otherwise it's completely back to normal.

    And at this point I am positive it's a blockage so I guess I am headed up to Vandy for V day and I hate valentines enough as it is sigh

    Humor can be dissected as a frog can, but dies in the process.
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    They say it was likely some virus that has been plaguing me for a week that caused the nausea and pain, but the best explanation for why I had high pressure liquid stool from my ostomy was maybe the intestines flipped over and caused some pressure on the area and then flipped back.

    Which :/

    Humor can be dissected as a frog can, but dies in the process.
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    Well, I am on a plane to head off to the Mayo Clinic and hopefully find/fix the things that have been ailing me.

    If anyone is in the Rochester, MN area wants to hang out or say hi, I always appreciate visitors and time to hang out while I am visiting the hospital/area

    Humor can be dissected as a frog can, but dies in the process.
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    Donovan PuppyfuckerDonovan Puppyfucker A dagger in the dark is worth a thousand swords in the morningRegistered User regular
    So uhhh, what's your blood type? I'm thinking we need to find you some douchebag rich kid with a perfectly functional digestive system and just swap that business straight into you.

    Let some 20 year old billionaire deal with your shit, and let you live a less painful life.

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    knitdanknitdan In ur base Killin ur guysRegistered User regular
    Good luck, Munkus!

    I haven’t posted in this thread in a while mostly because it’s been business as usual for the most part.

    And then last week we get the news that DaVita is shutting down the nocturnal shift at the dialysis clinic I’ve been going to for the last 12 years, before it was even a DaVita clinic.

    So now I’m going to a different unit and a different nocturnal time though unfortunately it is still the same company. Good news is it’s a bit closer to my house, and I’d probably have gone there sooner except I trusted the staff at the other place. But my favorite nurse went to days and my favorite tech is getting moved over to the other unit anyway.

    “I was quick when I came in here, I’m twice as quick now”
    -Indiana Solo, runner of blades
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    edited April 2019
    Well I sat next to an asshole on A plane like no other.

    We had been traveling all morning at this point and I didn’t get much of any sleep the night before, so I’m like, nodding off in my chair at the drop of a hat. This guy sits down and says to me that he ‘knows that’ I’m ‘taking drugs.’ When I say that he’s mistaken he says “I can see it in your eyes, don’t lie to me” and that he doesn’t know what/how much I took, but that it’s too much. He says he saw me stumble getting onto the plane and doesn’t feel comfortable sitting next to me, and calls a flight attendant over.

    I was kinda aghast at the whole thing, I brought out the picture that thankfully was saved on flying stove to show that yes, sometimes my eyes get red. I have Crohn’s and my eyes get fucked with (for the record, this is the image: http://images.flyingstove.com/galleries/munkusmegamayhem/eye.JPG and my eyes wheren’t nearly that bad at this point.

    Dude keeps saying that he feels uncomfortable sitting next to me. That he is afraid of getting a drink spilled on him. The flight attendant asks me where I am going , I mention Mayo Clinic, to deal with the Crohn’s. She then says to the jerk that it is hard to schedule a Mayo Clinic visit and that moving me off the plane would ruin all the plans and appointments. The dude eventually, reluctantly acquiesces and lets me go on with my fucking business. He gets off the plane much deserving to get dunked on, yet undunked.

    This asshole wanted to get me booted off a plane because I was nodding off and I had puffy, red eyes. I wish I hadn’t told him anything about my medical history, he had no right to that and he basically bullied me into giving up all that information. And for the record, no I was not on drugs. I take pain medications regularly, but the last time I had taken any was eight hours prior.

    Munkus Beaver on
    Humor can be dissected as a frog can, but dies in the process.
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    CelloCello Registered User regular
    Well I sat next to an asshole on A plane like no other.

    We had been traveling all morning at this point and I didn’t get much of any sleep the night before, so I’m like, nodding off in my chair at the drop of a hat. This guy sits down and says to me that he ‘knows that’ I’m ‘taking drugs.’ When I say that he’s mistaken he says “I can see it in your eyes, don’t lie to me” and that he doesn’t know what/how much I took, but that it’s too much. He says he saw me stumble getting onto the plane and doesn’t feel comfortable sitting next to me, and calls a flight attendant over.

    I was kinda aghast at the whole thing, I brought out the picture that thankfully was saved on flying stove to show that yes, sometimes my eyes get red. I have Crohn’s and my eyes get fucked with (for the record, this is the image: http://images.flyingstove.com/galleries/munkusmegamayhem/eye.JPG and my eyes wheren’t nearly that bad at this point.

    Dude keeps saying that he feels uncomfortable sitting next to me. That he is afraid of getting a drink spilled on him. The flight attendant asks me where I am going , I mention Mayo Clinic, to deal with the Crohn’s. She then says to the jerk that it is hard to schedule a Mayo Clinic visit and that moving me off the plane would ruin all the plans and appointments. The dude eventually, reluctantly acquiesces and lets me go on with my fucking business. He gets off the plane much deserving to get dunked on, yet undenied.

    This asshole wanted to get me booted off a plane because I was nodding off and I had puffy, red eyes. I wish I hadn’t told him anything about my medical history, he had no right to that and he basically bullied me into giving up all that information. And for the record, no I was not on drugs. I take pain medications regularly, but the last time I had taken any was eight hours prior.

    I'm sorry you had to go through that, Munkus!

    It might be worth contacting the airline about, at least? See if they'd do anything to compensate you for the added stress? It sucks that you still had to sit next to a guy who was harassing you for your medical condition - they should have moved him for the sake of your mental health on the trip.

    Steam
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    Munkus BeaverMunkus Beaver You don't have to attend every argument you are invited to. Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPA regular
    I hadn’t even thought about that, but I think I will, Cello.

    It just still irks me. Whatever emboldened this guy to start acting like an asshole because I was sleepy. red eyes and sleepy? Clear on the drugs and not, you know, allergies plus....being sleepy.

    And the flight attendants weren’t exactly being helpful. After I woke up very suddenly midway through the flight, I did end up bumping the flimsy tray that held my drink and spilled a little coke....on myself. And as I am asking for some towels to wipe down my jeans, the Attendant is all “are you flying with someone else?” I said “Yeah, why”

    She said “I should tell him that when you travel next time you should inform the flight staff of any special needs you need so we can accommodate “

    Which is embarrassing as shit. I said “Why would you tell him this” “because he should know”

    Well lady we aren’t children and “being tired” isn’t a fucking special needs that you need concern yourself with. She was like this the entire time, too, basically treating me like an invalid and the asshole sitting next to me as the Gospel of Mark.

    So we get off the plane and my father gets mad because he thinks that the discussion we had was about something else, until I explained shit to him and he offered to clock the asshole if he saw him.

    And as to why I didn’t ask the jerk to swap seats with my dad...well, I was going to before we started talking but the whole “sudden accusations of abusing narcotics” + “straight up Narcing a dude for....being tired” kinda put me on tilt. Just......rrrrrrgh. So frustrating

    Humor can be dissected as a frog can, but dies in the process.
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    NightDragonNightDragon 6th Grade Username Registered User regular
    edited April 2019
    Yeah that's a whole bunch of BS from the flight attendant, wow. Suggesting you're "special needs" because you bumped a tray??

    NightDragon on
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