Had my first full dose today and it was wild. I have never done any psychedelics before but holy shit. I took my anti nausea medicine so this time I could just lay back and listen to music. I tripped my ass off for about an hour and a half. It was nuts. I definitely understand why people take them and listen to music. Not sure yet if it will actually help my depression but it definitely was an interesting experience.
The anti-nausea med worked? Great! There is another formulation called esketamine which is the purified S form, but it would likely be more expensive and require repeat prior Auth. It potentially has fewer side effects than racemic ketamine but head to head studies have not been done. Blood pressure issues are generally more common than vomiting.
Marty: The future, it's where you're going? Doc: That's right, twenty five years into the future. I've always dreamed on seeing the future, looking beyond my years, seeing the progress of mankind. I'll also be able to see who wins the next twenty-five world series.
The anti-nausea med worked? Great! There is another formulation called esketamine which is the purified S form, but it would likely be more expensive and require repeat prior Auth. It potentially has fewer side effects than racemic ketamine but head to head studies have not been done. Blood pressure issues are generally more common than vomiting.
It is actually s ketamine. Yes it requires multiple auths but my psychiatrist is willing to do the paperwork. They check my bp before I start, and it needs to be under 150/X and then check it again 1 hour into it, and again at the end. Today it was actually over 150 when she first checked it but after some deep breathing and relaxing it was down to 140 and the time I finished it was 124 or so which is where it usually stays. I actually took double the prescribed dose of the Zophran but that's still nowhere near the unhealthy amount so I wasn't worried. Unfortunately the effect of intense dizziness everytime I moved my eyes lasted for about another 3 hours after the appointment ended. I had to keep my eyes closed in the car the entire way back home and then just lay with my eyes closed at home. As long as I couldn't see anything I didn't get dizzy. Thankfully the Zophran kept me from puking even though I felt like I needed to. That's a weird experience. Your head says, you should puke, but your stomach says naw.
That's great that it worked When we used to take it in clinic during the trials you could see it affect people differently, some people would fall asleep, some were fine to sit out in the waiting room, whatever you get out of it is up to you. Unfortunately yeah the anaestheticy side effects linger for a while. Hopefully you'll get some noticeable next day effects too.
We used to get our BP tested before and after but they don't do that anymore now it's passed, just an annual urine/blood/ecg test. We have the generic racemic, my understanding of s-ketamine is just racemic cleaved in half to make it unique and patentable for $$$. I think they're trying to get it passed here but haven't heard much.
1400 is way too much, even if that wasn't covered by our pharmaceutical scheme it's 100 (aud) full price, yous shouldn't be having to pay that much
That's great that it worked When we used to take it in clinic during the trials you could see it affect people differently, some people would fall asleep, some were fine to sit out in the waiting room, whatever you get out of it is up to you. Unfortunately yeah the anaestheticy side effects linger for a while. Hopefully you'll get some noticeable next day effects too.
We used to get our BP tested before and after but they don't do that anymore now it's passed, just an annual urine/blood/ecg test. We have the generic racemic, my understanding of s-ketamine is just racemic cleaved in half to make it unique and patentable for $$$. I think they're trying to get it passed here but haven't heard much.
1400 is way too much, even if that wasn't covered by our pharmaceutical scheme it's 100 (aud) full price, yous shouldn't be having to pay that much
Welcome to America lol. I will end up getting the first 90 day prescription free and then only about 10 bucks after that thanks to a manufacturer discount card. It makes sense, depression is pretty much a life long thing so even if you pay way less than retail, as long as they make some profit you will eventually pay for it.
That's great that it worked When we used to take it in clinic during the trials you could see it affect people differently, some people would fall asleep, some were fine to sit out in the waiting room, whatever you get out of it is up to you. Unfortunately yeah the anaestheticy side effects linger for a while. Hopefully you'll get some noticeable next day effects too.
We used to get our BP tested before and after but they don't do that anymore now it's passed, just an annual urine/blood/ecg test. We have the generic racemic, my understanding of s-ketamine is just racemic cleaved in half to make it unique and patentable for $$$. I think they're trying to get it passed here but haven't heard much.
1400 is way too much, even if that wasn't covered by our pharmaceutical scheme it's 100 (aud) full price, yous shouldn't be having to pay that much
Welcome to America lol. I will end up getting the first 90 day prescription free and then only about 10 bucks after that thanks to a manufacturer discount card. It makes sense, depression is pretty much a life long thing so even if you pay way less than retail, as long as they make some profit you will eventually pay for it.
Drug manufacturers don't really care what the patient pays, they get their money from insurance. To the point the biologic I take throws copay assistance programs at me so I never pay more than 5 bucks. Which makes sense when they're getting payments like a thousand times that from insurers. Their nightmare is folks who skip out because they can't manage the copays.
I think I am going to have to drop my current antidepressant. Failure number 16. I keep getting nauseated after I wake up from taking it. Not every time but it's been in my system long enough that I don't think it is going to stop.
So long-term treatment thread, here's a super personal question - and I considered making an alt just to post but I guess it's not that big a deal. Has anybody ever been on a bedroom helping pill? I'm considering it based on the (sporadic) impacts my blood pressure meds are causing. I hadn't said anything because it took so fricking long to get a BP med combination working that didn't make me sick that I didn't want to rock the boat. We just halved one of the BP meds, but it hasn't been a perfect fix for that side effect and the doctor said if my echocardiogram comes back clean and I'm still not needing surgery, we could rx one. I have a leaky aortic valve - but we have it under control via meds and lifestyle changes.
I totally understand not going into more detail than you're comfortable with - but I'd love just a "used them, they didn't make my sight blue or heart rate scary, it was all fine" vote of confidence because I'm finding the idea of them (and I suppose my middle age, heart condition along with that) slightly overwhelming recently.
So long-term treatment thread, here's a super personal question - and I considered making an alt just to post but I guess it's not that big a deal. Has anybody ever been on a bedroom helping pill? I'm considering it based on the (sporadic) impacts my blood pressure meds are causing. I hadn't said anything because it took so fricking long to get a BP med combination working that didn't make me sick that I didn't want to rock the boat. We just halved one of the BP meds, but it hasn't been a perfect fix for that side effect and the doctor said if my echocardiogram comes back clean and I'm still not needing surgery, we could rx one. I have a leaky aortic valve - but we have it under control via meds and lifestyle changes.
I totally understand not going into more detail than you're comfortable with - but I'd love just a "used them, they didn't make my sight blue or heart rate scary, it was all fine" vote of confidence because I'm finding the idea of them (and I suppose my middle age, heart condition along with that) slightly overwhelming recently.
I haven't used them but if your PCP and cardiologist sign off on them you should be good. A quick look at the side effect profile shows them to be mostly mild, with the more famous one being pretty rare. If you are looking for some personal stories there is an erectile dysfunction Reddit that should help. Sorry I can't be of more use. An interesting tidbit you may not be aware of, those drugs were originally created to treat high blood pressure and when they started doing animal trials they found that one of the side effects was a pretty dang useful effect lol.
furlion, I gather they've tried everything they can think of to prevent the nausea?
Granted, sucks when you have to try something else when it's not working for whatever reason; especially, if you have to go through a bunch of shit just to get it authorized.
furlion, I gather they've tried everything they can think of to prevent the nausea?
Granted, sucks when you have to try something else when it's not working for whatever reason; especially, if you have to go through a bunch of shit just to get it authorized.
The anti nausea meds I am taking help stop me from throwing up but I still feel sick. It's strange. I posted about it in the complaints thread but after my 3rd dose yesterday it was still just as bad. I started at 3pm and it is currently 145pm the next day and I still feel a little motion sickness if I scroll too fast on my phone or move my head/turn my eyes too quickly. I had to lay on the couch with my eyes closed and try very hard not to move at all until I went to bed. Which means no shower or brushing my teeth. I have one more appointment this week and then another two weeks with two a week and then down to one a week for I don't know how long. I guess the question is, if it improves my depression enough to not feel suicidal, can I give up 10 hours once a week to be physically miserable? And I don't know yet. Maybe.
Gamertag: KL Retribution
PSN:Furlion
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KwoaruConfident SmirkFlawless Golden PecsRegistered Userregular
So long-term treatment thread, here's a super personal question - and I considered making an alt just to post but I guess it's not that big a deal. Has anybody ever been on a bedroom helping pill? I'm considering it based on the (sporadic) impacts my blood pressure meds are causing. I hadn't said anything because it took so fricking long to get a BP med combination working that didn't make me sick that I didn't want to rock the boat. We just halved one of the BP meds, but it hasn't been a perfect fix for that side effect and the doctor said if my echocardiogram comes back clean and I'm still not needing surgery, we could rx one. I have a leaky aortic valve - but we have it under control via meds and lifestyle changes.
I totally understand not going into more detail than you're comfortable with - but I'd love just a "used them, they didn't make my sight blue or heart rate scary, it was all fine" vote of confidence because I'm finding the idea of them (and I suppose my middle age, heart condition along with that) slightly overwhelming recently.
I've used em before, boner pills are awesome and the worst side effect I've experienced was getting kinda sweaty/feeling warmer than normal and occasional residual/unwanted boners for a day or two afterwards
If you take too much you can feel light headed or out of sorts but any time thats happened it passes after a short lie down and some water and then you can still get back to business
Since you've got other heart stuff going on I assume your doctor will start you on a low dose and walk you through figuring it all out
So long-term treatment thread, here's a super personal question - and I considered making an alt just to post but I guess it's not that big a deal. Has anybody ever been on a bedroom helping pill? I'm considering it based on the (sporadic) impacts my blood pressure meds are causing. I hadn't said anything because it took so fricking long to get a BP med combination working that didn't make me sick that I didn't want to rock the boat. We just halved one of the BP meds, but it hasn't been a perfect fix for that side effect and the doctor said if my echocardiogram comes back clean and I'm still not needing surgery, we could rx one. I have a leaky aortic valve - but we have it under control via meds and lifestyle changes.
I totally understand not going into more detail than you're comfortable with - but I'd love just a "used them, they didn't make my sight blue or heart rate scary, it was all fine" vote of confidence because I'm finding the idea of them (and I suppose my middle age, heart condition along with that) slightly overwhelming recently.
I've used em before, boner pulls are awesome and the worst side effect I've experienced was getting kinda sweaty/feeling warmer than normal and occasional residual/unwanted boners for a day or two afterwards
If you take too much you can feel light headed or out of sorts but any time thats happened it passes after a short lie down and some water and then you can still get back to business
Since you've got other heart stuff going on I assume your doctor will start you on a low dose and walk you through figuring it all out
Okay I know the subject matter is serious but are y'all really gonna let that one slip by?
furlion, I gather they've tried everything they can think of to prevent the nausea?
Granted, sucks when you have to try something else when it's not working for whatever reason; especially, if you have to go through a bunch of shit just to get it authorized.
The anti nausea meds I am taking help stop me from throwing up but I still feel sick. It's strange. I posted about it in the complaints thread but after my 3rd dose yesterday it was still just as bad. I started at 3pm and it is currently 145pm the next day and I still feel a little motion sickness if I scroll too fast on my phone or move my head/turn my eyes too quickly. I had to lay on the couch with my eyes closed and try very hard not to move at all until I went to bed. Which means no shower or brushing my teeth. I have one more appointment this week and then another two weeks with two a week and then down to one a week for I don't know how long. I guess the question is, if it improves my depression enough to not feel suicidal, can I give up 10 hours once a week to be physically miserable? And I don't know yet. Maybe.
Yeah, that is pretty rough. If it's one day where you feel like absolute crap, but the medication is getting your other issues under control. It might be worth it. Granted fucking sucks because no one wants to be feeling like crap for prolong periods of time and the US has the shitty setup where that feels worse, given how much of our time we have to devote towards working shitty jobs. That's pretty much half your weekend that is gone. Granted, having 7 days of your week not dominated by depression and 6 of those being days you're functional, assuming no other health issues crop up, is probably much better than the depression.
Thanks - and yes, I'm sure my cardiologist will approach things with caution, and we tried reducing the BP med that is the likely culprit but it hasn't fixed it entirely, and with some summer travel coming up I really just want a backup plan available.
I'll have to check out that Reddit as well - it just always feels like online you read the folks with the worst-case scenarios of "it made me see blue and gave me migraines for a week" over "It was swell, made me feel competent again"
furlion, I gather they've tried everything they can think of to prevent the nausea?
Granted, sucks when you have to try something else when it's not working for whatever reason; especially, if you have to go through a bunch of shit just to get it authorized.
The anti nausea meds I am taking help stop me from throwing up but I still feel sick. It's strange. I posted about it in the complaints thread but after my 3rd dose yesterday it was still just as bad. I started at 3pm and it is currently 145pm the next day and I still feel a little motion sickness if I scroll too fast on my phone or move my head/turn my eyes too quickly. I had to lay on the couch with my eyes closed and try very hard not to move at all until I went to bed. Which means no shower or brushing my teeth. I have one more appointment this week and then another two weeks with two a week and then down to one a week for I don't know how long. I guess the question is, if it improves my depression enough to not feel suicidal, can I give up 10 hours once a week to be physically miserable? And I don't know yet. Maybe.
Yeah, that is pretty rough. If it's one day where you feel like absolute crap, but the medication is getting your other issues under control. It might be worth it. Granted fucking sucks because no one wants to be feeling like crap for prolong periods of time and the US has the shitty setup where that feels worse, given how much of our time we have to devote towards working shitty jobs. That's pretty much half your weekend that is gone. Granted, having 7 days of your week not dominated by depression and 6 of those being days you're functional, assuming no other health issues crop up, is probably much better than the depression.
If my depression was less extent I would not be going again. At this point I am pretty sure it would be worth it, but as of now I haven't really noticed a difference in my mood. If the ketamine works and if I only need to go once a week I will probably tough it out.
Yeah that sucks if it's affecting you the next day, ideally they should just give it to you like a regular medication to take when it's best for you. Do you know if there's any other options for getting it?
Yeah that sucks if it's affecting you the next day, ideally they should just give it to you like a regular medication to take when it's best for you. Do you know if there's any other options for getting it?
I think that not only will my insurance only cover the nasal spray, the other kind is actually illegal to be given outside of a surgical setting in my state. I might be wrong about that last bit but for sure only the treatment I am doing now is covered by my insurance.
Do you remember if it affect you the next day on the lower dose?
Yeah it did. Not as bad but I was still feeling it. Unfortunately I don't think I can just take the lower dose. Pretty sure they have to follow protocol and document it in order to get the pa.
I wasn't going to post since this has rapidly turned into the Furlion and his adventures with ketamine thread but since you asked... My treatment on Friday went very well. Still a bit of nausea during and immediately after but by about 3 to 4 hours after the start of the treatment I was ok. Still couldn't really see right, the ketamine messes with my vision something awful, but no nausea. I was able to watch some SGDQ and even cooked dinner and ate. So maybe I am finally adjusting.
Got a new primary care. They raised my norvasc for my blood pressure and it seems to be helping a bit.
I see my cardiologist on Tuesday though and he'll probably want some tests done. Maybe adjust stuff more. I'm still having issues with my metoporlol side effects at the dose I'm on but the norvasc is actually helping that side effect a little?
God though I just want to get healthier. I wish it weren't so hard to eat right.
I'm pretty sure anyone in this thread already knows this, but just to put it out there one more time, here's a recommendation to anyone out there who's feeling a bit iffy about anything medical -- it may seem obvious, but go get it looked at.
Context: a while back I went in for a check under just such circumstances, and found out that I had colon cancer. They did surgery, took out the tumour, removed everything else nearby they didn't like the look of, and various scans didn't find anything suspicious further away, so that seems as resolved as it could be under the circumstances. (In the interests of thoroughness, though, they've started me on the first of 8 rounds of chemotherapy, which so far is, if not fun, at least tolerable.)
But, again -- had I just thought "oh, it's nothing, I'll wait and see if it goes away" back then before getting looked at, things could have become a lot more significant. And, yes, I know The Internet Always Says Your Symptoms Mean Cancer, but, sometimes, they _do_ mean that, and in that case it's worth finding out as soon as possible.
Following up on this, the final story:
* Initial cancer diagnosis: done
* Surgery: done
* Adjuvant chemo with CAPOX and capecetabine: started, stopped after four rounds because of nerve damage from the oxaliplatin
* Remaining four rounds of chemo just with capecetabine: done (and the various finger tremors/tingles are all recovered now)
* Post-chemo CT scan: done, nothing found
* Post-chemo followup colonoscopy: done
* Biopsies on the little polyps they removed that time: done, and nothing found there either
So, as far as I (and the medical establishment) can tell, this is all done, cancer is gone, cancer is not coming back.
Well, I'm back in the hospital due to my gallbladder deciding it was bored and needed to hurt and make me feel sick. If this organ was a partner, I'd have broken up with them by now.
Plus they're having trouble finding veins in my arms, so I've been poked at with needles several times.
I have to go to the doctor next week i probably have tardive dyskinesia from taking mental health medication for years i keep grinding at my teeth like the ones on the upper left of the jaw I may have to start wearing mouthguard or we might have to adjust the medications i take hopefully we can fix it my mom is very concerned
i am mostly just worried about my teeth my mom is more worried about the look. i think my psych doctor is out of office the rest of this week because the appointment is monday we made the appointment tuesday usually i can get in faster than that i think i have the one psychiatric doctor who actually gets current patients appointments fast
Should i get a mouthguard now? Would that help prevent damage to teeth
I was in the hospital once and there was a guy who also was there this was in the mental health unit and he would regularly jerk his arm out the whole arm out and give it a big shake like it was just automatic machine
It did not seem to bother him so i will just have that attitude i have just been having facial movements not quiteoften as he did with his arm
I was in the hospital once and there was a guy who also was there this was in the mental health unit and he would regularly jerk his arm out the whole arm out and give it a big shake like it was just automatic machine
It did not seem to bother him so i will just have that attitude i have just been having facial movements not quiteoften as he did with his arm
i do not know the cause of his arm movement it was i do not know t the cause I have watched tar dive videos i do not think it was that but you would have to ask a doctor i am not qualified i mentioned him because he always had a positive attitude and did not let his arm bother him
i am mostly just worried about my teeth my mom is more worried about the look. i think my psych doctor is out of office the rest of this week because the appointment is monday we made the appointment tuesday usually i can get in faster than that i think i have the one psychiatric doctor who actually gets current patients appointments fast
Should i get a mouthguard now? Would that help prevent damage to teeth
It doesn't hurt, I've got some boil to fit ones that I don't use very often because I have so much to deal with at bedtime already, but I've always ground my teeth apparently and taking ADHD medications did not help with that at all
It's immensely fucking frustrating just how little energy I have. There's a whole lot of shit I want to be doing and I'm mostly spending my time curled up in bed. Endlessly frustrating.
i am mostly just worried about my teeth my mom is more worried about the look. i think my psych doctor is out of office the rest of this week because the appointment is monday we made the appointment tuesday usually i can get in faster than that i think i have the one psychiatric doctor who actually gets current patients appointments fast
Should i get a mouthguard now? Would that help prevent damage to teeth
It doesn't hurt, I've got some boil to fit ones that I don't use very often because I have so much to deal with at bedtime already, but I've always ground my teeth apparently and taking ADHD medications did not help with that at all
my mom picked up a dental guard for night time teeth grinding at the store i will be wearing it day and night i do not know if i grind my teeth in my sleep we boiled it it says you can use a microwave but I don't use microwaves and it fits ok and isnt uncomfortable it is just a hold over until i visit the doctor next week it is preventing my teeth from scraping so that is good teeth problems are very expensive i do not have dental insurance
I haven't posted about my depression treatments here in a bit because it seemed like i was taking up a lot of the space but now that other people have posted a bit i am back. My ketamine treatments ended up starting to loose effectiveness after about 1.5 months. Started to feel my depression coming back strongly. My psychiatrist prescribed me Auvelity and it has been as close to an actual miracle as i have ever witnessed. After 12 years of constantly feeling like shit every fucking day, i feel incredible. I actual probably only really feel normal, but my baseline for normal was so damn low that for the past 2 months i have been feeling incredible. Anyone else struggling with treatment resistant depression well sees this please ask your doctor about it.
I mentioned back in June I'd had a bunch of medical appointments in the preceding months, and subsequently saw a few more specialists, with several more tests that came back seemingly in normal range.
While reassuring in some aspects, those gastro-ordered tests were meant to turn up reasons for my body weirdness; but no, neither gastric emptying nor modified barium swallow with a speech pathologist offered obvious dysfunction. And the gyno --who I should've talked to about some unusual stuff, but I forgot because the stress of being a menstruating person in Texas is... fraught-- was the first I'd seen in a decade or more, but she seems trustworthy, and at least the pap smear was normal. Sleep study showed tons of movement, and I wasn't asleep long enough to get useful REM info, so, no obvious diagnoses -- the drugs have not been worth the side effects.
Downside is that the logistics of appointments and the strain of still not-knowing after finally putting in effort sent me into burnout that I'm still recovering from, because I apparently need to be more cautious in how I expend my energy, as well as finding ways to build reserves. Plus, grappling with re-evaluating my relationship to my mom, and 'family' being a core value for me, I am both desperate for social outlet, and recognize that for the time being, family drains me more than revives me.
But I'm feeling a bit optimistic, because I've been going to physical therapy for the shoulder and ankle.
Sidebar: Part of what's spurred me is --in August-- my therapist clocking that I was masking, and we've gone back to every fortnight-ish. Don't do All The Things, just a few new medical appointments, build from there gradually.
So still on the books for a rheumatology appointment in February (booked in June),
last week was intake with a different prescriber (picked up 18mg generic Concerta yesterday!),
followup with sleep specialist this past Tuesday got a milder muscle relaxant to try,
somewhere on the 2024 waitlist for a PT clinic with a strong focus on EDS.
....Increased palpitations this week, so I've asked for a referral to a cardiologist, boo on having to wait to trial the ADHD med, but better safe, sigh. (The sleep specialist previously also suggested a more thorough look at my ticker between sleep issues and family history. Maybe I only have a noisy heart (minor flow murmur), maybe there's some explanation for the random lowkey weird heart things I experience.)
The PT I'm seeing is actually my therapist's personal friend, with the caveat that she couldn't professionally recommend her, so if she's somehow bad at her job, move right along lol.
Really appreciating my PCP again, because the PT clinic would only treat what was on the referral, and as I mentioned, the sports medicine guy wrote one for the shoulder and shrugged at the ankle. After a brief exchange to update on my sitch (via character-limited medical messaging software ugh), my PCP sent over a referral for ankle pain and EDS. Just consistently straight-up, I am not an expert, but I will enable you to get the care you need. He's young enough that I hope to stick with him until he retires.
Last week, after a couple weeks now, the PT was like, yeah, girl, you're definitely hypermobile. At my intake, she said she doesn't have much in-depth knowledge, but she has a few EDS patients and rattled off several things that showed she knows enough for this part of my process. She made a face when I said I'd mentioned EDS as a possibility to the sports doc and he still offered steroids as the only treatment for my ankle; she side-eyed the prolotherapy but didn't dismiss the plasma-rich platelet treatment that the physiatrist performs, but she did frame it as the more extreme, endgame sort of option compared to the learned consistency and comparative gentleness of strength-building physical therapy. I feel that I am in good hands. The ankle is slow going, but progressing, and the shoulder is much more obviously improving.
So I got some blood work done today and the results came back all apparently okay, my iron saturation was apparently 15% which the MyChart flags as low but my Doctors note and other info on the Internet seems to suggest that is on the low end of okay still and my actual iron levels are okay.
So that's no answers to why I've been feeling like crap
End of this week they are going to CT my chest, then next month I've got them wanting a vascular test of my legs and a stress echo which sucks because I hate those things and really don't think I can handle the treadmill safely right now. I'm terrified of passing out or falling off of the thing because I can't fucking breath when I'm walking anymore basically at all.
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knitdanIn ur baseKillin ur guysRegistered Userregular
Did you get Covid at some point?
“I was quick when I came in here, I’m twice as quick now”
-Indiana Solo, runner of blades
It was pretty bad honestly pretty sure the only thing that kept me from suffocating was afrin and my CPAP machine
Ever since like last winter I have been putting on weight, having worse blood pressure and chest pain, shortness of breath, horrible fatigue.
Like today I made it to the grocery store but had to leave early to go sit in my mom's car to catch my breath because I felt so bad and ever since I got home I've been totally wiped out.
Posts
PSN:Furlion
Doc: That's right, twenty five years into the future. I've always dreamed on seeing the future, looking beyond my years, seeing the progress of mankind. I'll also be able to see who wins the next twenty-five world series.
It is actually s ketamine. Yes it requires multiple auths but my psychiatrist is willing to do the paperwork. They check my bp before I start, and it needs to be under 150/X and then check it again 1 hour into it, and again at the end. Today it was actually over 150 when she first checked it but after some deep breathing and relaxing it was down to 140 and the time I finished it was 124 or so which is where it usually stays. I actually took double the prescribed dose of the Zophran but that's still nowhere near the unhealthy amount so I wasn't worried. Unfortunately the effect of intense dizziness everytime I moved my eyes lasted for about another 3 hours after the appointment ended. I had to keep my eyes closed in the car the entire way back home and then just lay with my eyes closed at home. As long as I couldn't see anything I didn't get dizzy. Thankfully the Zophran kept me from puking even though I felt like I needed to. That's a weird experience. Your head says, you should puke, but your stomach says naw.
PSN:Furlion
We used to get our BP tested before and after but they don't do that anymore now it's passed, just an annual urine/blood/ecg test. We have the generic racemic, my understanding of s-ketamine is just racemic cleaved in half to make it unique and patentable for $$$. I think they're trying to get it passed here but haven't heard much.
1400 is way too much, even if that wasn't covered by our pharmaceutical scheme it's 100 (aud) full price, yous shouldn't be having to pay that much
Welcome to America lol. I will end up getting the first 90 day prescription free and then only about 10 bucks after that thanks to a manufacturer discount card. It makes sense, depression is pretty much a life long thing so even if you pay way less than retail, as long as they make some profit you will eventually pay for it.
PSN:Furlion
Drug manufacturers don't really care what the patient pays, they get their money from insurance. To the point the biologic I take throws copay assistance programs at me so I never pay more than 5 bucks. Which makes sense when they're getting payments like a thousand times that from insurers. Their nightmare is folks who skip out because they can't manage the copays.
PSN:Furlion
I totally understand not going into more detail than you're comfortable with - but I'd love just a "used them, they didn't make my sight blue or heart rate scary, it was all fine" vote of confidence because I'm finding the idea of them (and I suppose my middle age, heart condition along with that) slightly overwhelming recently.
I haven't used them but if your PCP and cardiologist sign off on them you should be good. A quick look at the side effect profile shows them to be mostly mild, with the more famous one being pretty rare. If you are looking for some personal stories there is an erectile dysfunction Reddit that should help. Sorry I can't be of more use. An interesting tidbit you may not be aware of, those drugs were originally created to treat high blood pressure and when they started doing animal trials they found that one of the side effects was a pretty dang useful effect lol.
PSN:Furlion
Granted, sucks when you have to try something else when it's not working for whatever reason; especially, if you have to go through a bunch of shit just to get it authorized.
The anti nausea meds I am taking help stop me from throwing up but I still feel sick. It's strange. I posted about it in the complaints thread but after my 3rd dose yesterday it was still just as bad. I started at 3pm and it is currently 145pm the next day and I still feel a little motion sickness if I scroll too fast on my phone or move my head/turn my eyes too quickly. I had to lay on the couch with my eyes closed and try very hard not to move at all until I went to bed. Which means no shower or brushing my teeth. I have one more appointment this week and then another two weeks with two a week and then down to one a week for I don't know how long. I guess the question is, if it improves my depression enough to not feel suicidal, can I give up 10 hours once a week to be physically miserable? And I don't know yet. Maybe.
PSN:Furlion
I've used em before, boner pills are awesome and the worst side effect I've experienced was getting kinda sweaty/feeling warmer than normal and occasional residual/unwanted boners for a day or two afterwards
If you take too much you can feel light headed or out of sorts but any time thats happened it passes after a short lie down and some water and then you can still get back to business
Since you've got other heart stuff going on I assume your doctor will start you on a low dose and walk you through figuring it all out
Okay I know the subject matter is serious but are y'all really gonna let that one slip by?
Yeah, that is pretty rough. If it's one day where you feel like absolute crap, but the medication is getting your other issues under control. It might be worth it. Granted fucking sucks because no one wants to be feeling like crap for prolong periods of time and the US has the shitty setup where that feels worse, given how much of our time we have to devote towards working shitty jobs. That's pretty much half your weekend that is gone. Granted, having 7 days of your week not dominated by depression and 6 of those being days you're functional, assuming no other health issues crop up, is probably much better than the depression.
I'll have to check out that Reddit as well - it just always feels like online you read the folks with the worst-case scenarios of "it made me see blue and gave me migraines for a week" over "It was swell, made me feel competent again"
If my depression was less extent I would not be going again. At this point I am pretty sure it would be worth it, but as of now I haven't really noticed a difference in my mood. If the ketamine works and if I only need to go once a week I will probably tough it out.
PSN:Furlion
I think that not only will my insurance only cover the nasal spray, the other kind is actually illegal to be given outside of a surgical setting in my state. I might be wrong about that last bit but for sure only the treatment I am doing now is covered by my insurance.
PSN:Furlion
Yeah it did. Not as bad but I was still feeling it. Unfortunately I don't think I can just take the lower dose. Pretty sure they have to follow protocol and document it in order to get the pa.
PSN:Furlion
PSN:Furlion
I see my cardiologist on Tuesday though and he'll probably want some tests done. Maybe adjust stuff more. I'm still having issues with my metoporlol side effects at the dose I'm on but the norvasc is actually helping that side effect a little?
God though I just want to get healthier. I wish it weren't so hard to eat right.
Following up on this, the final story:
* Initial cancer diagnosis: done
* Surgery: done
* Adjuvant chemo with CAPOX and capecetabine: started, stopped after four rounds because of nerve damage from the oxaliplatin
* Remaining four rounds of chemo just with capecetabine: done (and the various finger tremors/tingles are all recovered now)
* Post-chemo CT scan: done, nothing found
* Post-chemo followup colonoscopy: done
* Biopsies on the little polyps they removed that time: done, and nothing found there either
So, as far as I (and the medical establishment) can tell, this is all done, cancer is gone, cancer is not coming back.
Plus they're having trouble finding veins in my arms, so I've been poked at with needles several times.
Should i get a mouthguard now? Would that help prevent damage to teeth
I was in the hospital once and there was a guy who also was there this was in the mental health unit and he would regularly jerk his arm out the whole arm out and give it a big shake like it was just automatic machine
It did not seem to bother him so i will just have that attitude i have just been having facial movements not quiteoften as he did with his arm
facial movements like the mouth too
It doesn't hurt, I've got some boil to fit ones that I don't use very often because I have so much to deal with at bedtime already, but I've always ground my teeth apparently and taking ADHD medications did not help with that at all
It's immensely fucking frustrating just how little energy I have. There's a whole lot of shit I want to be doing and I'm mostly spending my time curled up in bed. Endlessly frustrating.
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my mom picked up a dental guard for night time teeth grinding at the store i will be wearing it day and night i do not know if i grind my teeth in my sleep we boiled it it says you can use a microwave but I don't use microwaves and it fits ok and isnt uncomfortable it is just a hold over until i visit the doctor next week it is preventing my teeth from scraping so that is good teeth problems are very expensive i do not have dental insurance
Also they want to try me on wegovy for weight loss
Edit
Bummer my insurance doesn't cover it lol lmao
PSN:Furlion
Downside is that the logistics of appointments and the strain of still not-knowing after finally putting in effort sent me into burnout that I'm still recovering from, because I apparently need to be more cautious in how I expend my energy, as well as finding ways to build reserves. Plus, grappling with re-evaluating my relationship to my mom, and 'family' being a core value for me, I am both desperate for social outlet, and recognize that for the time being, family drains me more than revives me.
So still on the books for a rheumatology appointment in February (booked in June),
last week was intake with a different prescriber (picked up 18mg generic Concerta yesterday!),
followup with sleep specialist this past Tuesday got a milder muscle relaxant to try,
somewhere on the 2024 waitlist for a PT clinic with a strong focus on EDS.
....Increased palpitations this week, so I've asked for a referral to a cardiologist, boo on having to wait to trial the ADHD med, but better safe, sigh. (The sleep specialist previously also suggested a more thorough look at my ticker between sleep issues and family history. Maybe I only have a noisy heart (minor flow murmur), maybe there's some explanation for the random lowkey weird heart things I experience.)
The PT I'm seeing is actually my therapist's personal friend, with the caveat that she couldn't professionally recommend her, so if she's somehow bad at her job, move right along lol.
Really appreciating my PCP again, because the PT clinic would only treat what was on the referral, and as I mentioned, the sports medicine guy wrote one for the shoulder and shrugged at the ankle. After a brief exchange to update on my sitch (via character-limited medical messaging software ugh), my PCP sent over a referral for ankle pain and EDS. Just consistently straight-up, I am not an expert, but I will enable you to get the care you need. He's young enough that I hope to stick with him until he retires.
Last week, after a couple weeks now, the PT was like, yeah, girl, you're definitely hypermobile. At my intake, she said she doesn't have much in-depth knowledge, but she has a few EDS patients and rattled off several things that showed she knows enough for this part of my process. She made a face when I said I'd mentioned EDS as a possibility to the sports doc and he still offered steroids as the only treatment for my ankle; she side-eyed the prolotherapy but didn't dismiss the plasma-rich platelet treatment that the physiatrist performs, but she did frame it as the more extreme, endgame sort of option compared to the learned consistency and comparative gentleness of strength-building physical therapy. I feel that I am in good hands. The ankle is slow going, but progressing, and the shoulder is much more obviously improving.
So that's no answers to why I've been feeling like crap
End of this week they are going to CT my chest, then next month I've got them wanting a vascular test of my legs and a stress echo which sucks because I hate those things and really don't think I can handle the treadmill safely right now. I'm terrified of passing out or falling off of the thing because I can't fucking breath when I'm walking anymore basically at all.
-Indiana Solo, runner of blades
It was pretty bad honestly pretty sure the only thing that kept me from suffocating was afrin and my CPAP machine
Ever since like last winter I have been putting on weight, having worse blood pressure and chest pain, shortness of breath, horrible fatigue.
Like today I made it to the grocery store but had to leave early to go sit in my mom's car to catch my breath because I felt so bad and ever since I got home I've been totally wiped out.