My left eye was diagnosed with keratoconus. I noticed I was having a slight bit of vision blurriness in it a few weeks ago, but didn't think anything of it aside from, "Well, obviously I need another prescription change."
Here's the wiki page on the disease. Mine has not yet progressed to the point where the cornea is visibly warped, but that's where it's likely to head without any intervention. Said intervention is a given; my mother is absolutely livid with me, because this is clearly somehow my own doing, but she'll take me in for whatever the government will provide and hasn't thrown me out, so there's that.
I spoke with the doctor / specialist I was referred to by my optometrist today. My options are basically a couple of different types of invasive surgery; there's an experimental non-invasive treatment, collagen cross-linking, which apparently is becoming a popular treatment, but it's not currently on the table for me because it's not covered by BC Care (in fairness, I was also told that it's also painful as Hell anyway and probably slightly less effective than surgery).
Has anyone here had experience with this disease, or eye surgery in general? A transplant or ring insert sound more or less equally terrifying to me (I have been unable to sleep at all until I'm so fatigued that I cannot physically stay awake anymore since I was diagnosed & given the treatment details); does anyone know if one is preferable to the other?
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I don't actually know much about how modern medicine works.
http://www.nkcf.org/ seems to be a pretty good site, with information and forums and things. KC sounds like the sort of thing that can pretty seriously affect your life, so it might be good to talk to some of the people there and see how they've handled it and what works for them.
I second the advice to do exactly what your doctor tells you: use your eye drops on schedule, wear the sleep goggles, etc.
A lot of people feel varying degrees of anxiety when it comes to eye surgery. I think there's a natural instinct that makes us recoil from the idea of pointy things around our eyeballs. So it's totally understandable that you're feeling a bit freaked out. The reality is, however, that eye surgery--and corneal surgery in particular--is among the safest and least invasive surgery out there. You're basically dealing with a very thin strip of the eye's surface; nothing gets pierced as such, there's no blood, and the whole operation probably takes less time than the pre-op preparations. Corneal transplants have been performed for over a century now. The procedure is quite routine and complications arising out of the surgery itself (as opposed to post-operative transplant rejection) are rare. The ring insert method has not been around for as long, but is even less invasive. You'd be in and out of the theatre in a matter of minutes. The main risk, as you might expect, is that the surgery is very delicate. You can rest assured that modern eye surgery relies a great deal on mechanical stabilization and very precise tools to reduce the possibility of any mishaps.
The downside to the fact that corneal transplants are so safe and routine is that your doctor may not appreciate how nervous you are. Unless you've been advised to have the procedure done as soon as possible, you may want to think about shopping around for a surgeon who can adequately address your need for compassion and reassurance.
"Yes officer, that motherfucker came at my eye with a scalpel, so I choked him out."
I am looking forwards to getting Lasik next year. Doesn't mean I'm not scared shitless about the procedure even though I know it's pretty much safe these days.
Chances are you'll have the option to receive a half Valium before the surgery, it goes without question that its worth taking and you should have someone there to drive you home.
Thank-you for this; it makes me feel a lot better.
Honestly, I'm not afraid of a screw-up or complication - I generally trust medical professionals to be able to perform their art. I've just always dealt with surgery by literally closing my eyes, 'tuning out' as best I can (usually with the help of some painkillers), and waiting for it to be over. The fact that I will not be able to close my eyes and tune out because of the nature of the surgery is what's been getting under my skin (that, and I have no idea what eye surgery involved / how the the procedure would be / etc).
As far as your surgeon goes, talk to him. Let him know that you're feeling some anxiety and that you have questions about the procedure, then ask everything you can think of. Tell him that you've had some anxiety regarding surgery in the past, and that you're concerned about how it will affect you during the procedure. Ask about the specifics of the operation, the recovery time, complications, anything you want to know (and keep in mind that if there's anything you don't want to know, you can ask him not to discuss it with you; you have that right as a patient also). If he's worth a shit, he'll be happy to keep you in the loop as much as you want to be, and if he's not, find someone else. Not a doc, but I am in school for it.
More seriously though just listen to the doctors and do what they say, obviously they are professionals and know what they are doing so if they say "take eye drops every 4 hours" then do it!
Honestly, the procedure will take less than 10 minutes and you won't feel much of anything.