As many of you are aware, I am currently dealing with an ostomy. I have been living with this for a about year and five months. This past year and a half has been the longest and worst period of my life so far. Some of you know that this has caused me a great deal of mental anguish, putting me in a horrible spiral of constant depression. I say without exaggeration that this thing is slowly killing me every single day. Without the support of a few loving and understanding forumers, I would not have lasted this long.
I have this ostomy because of multiple fistulas that formed around my bowel, including one that lead directly into another set of organs. These fistulas likely began to form after a botched colonscopy exam when I was a senior in high-school, and grew up until last year when I had the surgery. Recently, I was put into quite a terrified state when there was evidence that the fistulas weren't healing. If they do not heal, I will be stuck with this ostomy. In spite of this, I struggle to maintain hope that the treatment is working and that the signs are merely false alarms.
Last year I went up to Rochester Minnesota to the Mayo Clinic with the hopes that I would have the ostomy surgery reversed and I would be able to continue on with my life. This was during Christmas, where I stayed in the Children's Ward of the hospital because my surgeon is normally a pediatric surgeon (he's the same surgeon that performed my colonectomy when I was 15). I was willing to sacrifice a Christmas with my family because I thought I would be having this crucial surgery done. Sadly, the fistulas had not healed at all and I was told to try again in six months.
This summer I went back up to the Mayo Clinic
again hoping that I had healed enough. Again, I was told that the treatment had not healed the fistulas completely and I was sent back home. At that point, after much struggling with my insurance, we managed to double the dosage of my treatment.
As of now, I am a few weeks from traveling up to Rochester to get examined again. I am trying to remain optimistic. I am hoping and praying that everything will be healed and I will at last be able to return to how my life was. This time I will likely
not be in the hospital during Christmas, the surgeons are not likely to have an open date before Christmas and will not be open for sure until the first week of January. I will instead fly up and get examined on the 20th, fly back home for the holidays, and wait for news about possible surgery.
I know some of you are atheists. That's fine, I respect that. But to those of you who have any faith in God, I ask that you pray for me. This ostomy has put me to my wits end and is killing me. I hate it with every fiber of my being and I wish every day that I could live without it. I need for this prognosis to be good more than I have needed anything in my entire life. So please, keep me in your prayers.
Humor can be dissected as a frog can, but dies in the process.
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Alec Baldwin should never be depressed and neither should you
Good luck, man.
so many
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Secret Satan 2013 Wishlist
prayers and good luck to you, dude
Dear satan I wish for this or maybe some of this....oh and I'm a medium or a large.
nice
choice
of
words
Get better dude.
Twitch (I stream most days of the week)
Twitter (mean leftist discourse)
All the stem cells.
Now I see the reason why and feel pretty bad. If you get a friend to stop buy your house though they'll find two packages addressed to you that should at least entertain you a bit while you are there.
Satans..... hints.....
You're in my prayers duder.
Get better soon.
I got a text message from my mother saying that "the package has arrived." I won't be able to open it up until around the 17th or 18th, when exams are over.
May my non-denominational prayer to my god or gods be with you
ha
ha
ha
You're a rad dude and deserve much better than you've had out of the medical establishment, really hope that this works out for you as you want it
Hugs
Secret Satan 2013 Wishlist
<3<3
being stuck in the hospital for christmas sucks, I remember it less-than-fondly.
We're all pullin for you!
Give me the hospitals address I'll hook you up with something else so you aren't super bored there.
Satans..... hints.....
We could try casting him a brand new digestive system made baby cells. If it works, then we'll make one for Stale.
Secret Satan 2013 Wishlist
Mech suit looks cooler
We don't have a lot of money to work with. We can cannibalize the gear system from my bike for the centrifuge, and I could kidnap some babies pretty easy.