Part of the reason I'm following the doctor's recommendation and holding off is I'm desperately hoping that I don't actually have celiac and the current diet adjustments will be enough to sort out my problems.
I just don't want to have one more thing, you know?
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Part of the reason I'm following the doctor's recommendation and holding off is I'm desperately hoping that I don't actually have celiac and the current diet adjustments will be enough to sort out my problems.
I just don't want to have one more thing, you know?
While this is true, you can try out the diet and if you strictly stick to it, then you can cross one thing off your list. Either way, you won't have to worry about IF out have celiac's.
If there is a decent chance for you to have celiacs disease, then you really should try out the diet as soon as possible. You either get peace of mind by ruling out a potential diagnosis,or you start feeling AMAZINGLY better. It's a win-win!
Humor can be dissected as a frog can, but dies in the process.
Part of the reason I'm following the doctor's recommendation and holding off is I'm desperately hoping that I don't actually have celiac and the current diet adjustments will be enough to sort out my problems.
I just don't want to have one more thing, you know?
While this is true, you can try out the diet and if you strictly stick to it, then you can cross one thing off your list. Either way, you won't have to worry about IF out have celiac's.
If there is a decent chance for you to have celiacs disease, then you really should try out the diet as soon as possible. You either get peace of mind by ruling out a potential diagnosis,or you start feeling AMAZINGLY better. It's a win-win!
Thanks for the advice, but I'm just not comfortable self-diagnosing, especially since I have a host of other issues that make me feel bad. It's hard to tell what "feeling amazingly better" feels like when other things are involved (and a lot of them are abominal). I'm making a lot of very major changes to my diet as it is to address other things, so I'm going to concentrate on that. Celiac is one of a couple of possibilities, so I'll just follow my doctor's plan and keep on keeping on. If the other changes don't sort my GI issues out, I'll go back to my doc early.
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Well, with celiacs it's supposed to be SUPER DUPER OBVIOUS like big red headlights in your face if you have it and you stick to the diet. Like night and day. As in, if you stick to the diet and can't tell the difference, then you don't have it. Just something to keep in mind for the future, ruling it out can give you some peace of mind and actually catching celiac is one of those mixed blessings in that it sucks that you have it, but the solution is really straightforward and makes you feel amazingly better. Like, celiacs affects every aspect of your health and makes it all feel like shit, and removing gluten really does make people feel magically better both physically and mentally.
Humor can be dissected as a frog can, but dies in the process.
Ugh, I'm pretty sure my SIBO is back. Last time, my gastro guy prescribed a medication that insured denied so he ended up giving me samples. Cleared me up after two weeks but through my own stupidity of not following a diet, I feel like crap again (a year and some months later).
I don't think I have Celiacs but maybe I should get tested for it and some other things, just to be sure.
so i took a fluoxetine a few minutes ago, and i suspect it broke open in my throat. i just burped, and exhaled a plume of white at my monitor. "It's not that cold in here," thinks i, and then realize the only possibility, scampering off to gulp some water down. i am surprisingly not completely freaked out (aside from trying to ... wipe ... up where the powder may have settled so the cats don't walk in it, but motherfucker, i do not dust to begin with [also, non-freakout itself suggesting that it is working as intended]) because it was like-- YOU A DRAGON.
my throat's a smidge burny, but i don't think i inhaled any; just to be cautious, i think i shall delay my errands a bit to see if it affects me poorly.
+4
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knitdanIn ur baseKillin ur guysRegistered Userregular
That sometimes happens with my phosphorus binders. They're just calcium citrate so not exactly harmful, but it was weird as hell the first time I burped and there was a little cloud coming out of my mouth.
“I was quick when I came in here, I’m twice as quick now”
-Indiana Solo, runner of blades
I think I'm going to barf from my acetazolamide and I really don't want to because I'm having dysphagia issues and it feels like I'm choking when I vomit.
I think I'm going to barf from my acetazolamide and I really don't want to because I'm having dysphagia issues and it feels like I'm choking when I vomit.
The Zofran, it does nothing.
phenergan? I'm sorry
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
I am about to start yet another immunosuppresant, apparently. Entocort. I don't really have any familiarity with it. Just that I had to switch it from a 90 day supply to a 30 day supply because a 90 day supply cost 2000 dollars and a 30 day supply cost...15 dollars.
Humor can be dissected as a frog can, but dies in the process.
I am about to start yet another immunosuppresant, apparently. Entocort. I don't really have any familiarity with it. Just that I had to switch it from a 90 day supply to a 30 day supply because a 90 day supply cost 2000 dollars and a 30 day supply cost...15 dollars.
Jesus Christ this is ridiculous
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Oh, keeping me alive costs several hundred thousand dollars a year when I don't have sudden surgeries.
I am the 2 million dollar man. It is surprisingly below par.
Humor can be dissected as a frog can, but dies in the process.
Oh, keeping me alive costs several hundred thousand dollars a year when I don't have sudden surgeries.
I am the 2 million dollar man. It is surprisingly below par.
no no I feel that, it's just the ridiculousness of the price difference
or honestly the price of most immunosuppressant medications
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
I think insurance was just "Nah, fuck that, you gonna buy it month to month you little shit or you pay it out of pocket" soooooo I fell out of coverage because my doctors 'tried to make it easier on me'
Funny how that works, eh?
Humor can be dissected as a frog can, but dies in the process.
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
OH yeah, TFW you realize that you have been going three weeks with a problem you haven't reported to anyone because you just figured you'd muscle through it and now you feel like a bit of a moron.
Like, I didn't even realize I was doing this. I just started having some weird rash/reaction/deterioration of skin around my ostomy and increased pain at the site and just thought "I'll just power on through"
God dammit chronic illnesses why do you make us so stupid.
Humor can be dissected as a frog can, but dies in the process.
Even though I've been diagnosed with a number of chronic conditions over and over again, I still manage to convince myself I'm a hypochondriac at least twice a month. I've tried to power through things that ended up being cancer, so I think it's normal to do that if you've been sick long enough.
Also, the numerous times it's been suggested that perhaps some of my symptoms are psychosomatic cause me to constantly doubt my ability to know my own body. The only consolation is that when you've built up a medical chart like I/you/we have, doctors tend to take you pretty seriously. Ive always been deathly afraid that I'd come down with some terrible affliction and doctors wouldn't catch it in time, but that's pretty much a thing of the past now.
PSN: thewheelz
+1
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Well, I can be a hypochondriac about things that might be blockages because I had a stricture once before and it nearly killed me so I tend to get a little paranoid and on edge about that.
But literally anything else and I just tend to ignore it until it gets mission critical.
Humor can be dissected as a frog can, but dies in the process.
just an fyi to you guys, your doctors know a hypochondriac from someone who's genuinely sick
my ex was the same way (kidney failure/transplant) and was so worried about bringing up "nonsense" issues that she ended up in the hospital several times, and, on extra medication since she ignored a problem that was easily solved with something like an antibiotic
never worry about talking to your doctor, they want you to be healthy too, even if you think it's not worth talking about, it might actually be, they don't hate you. To get uber practical, you pay their bills, the more concerns you have the better off they are at the end of the day.
not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
You say this like I haven't been dismissed from an ER by an asshole Doctor so many times that I have to actively avoid one of the two hospitals in town.
Humor can be dissected as a frog can, but dies in the process.
You say this like I haven't been dismissed from an ER by an asshole Doctor so many times that I have to actively avoid one of the two hospitals in town.
ER doctors tend to be overworked and grumpy, I can agree with that.
But you have a PCP/GP that's following your case right? They're far more likely to listen. I probably wouldn't mention it in passing in an ER unless I let it go to the point where it's now an ER issue?
bowen on
not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
My PCP/GP has no fucking clue how my condition works and has actively hindered me as much as he has helped me.
Humor can be dissected as a frog can, but dies in the process.
My PCP/GP has no fucking clue how my condition works and has actively hindered me as much as he has helped me.
Specialist then? Are you being managed by ER doctors?
not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
My closest specialist is two hours away in Nashville.
Humor can be dissected as a frog can, but dies in the process.
not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
To the point, my case is so niche that I am being managed by the surgery team of the top GI doctors at the Mayo Clinic in Rochester and for basic maintenance and keeping me alive is up to a Mayo trained GI specialist at Vanderbilt.
Yes, I do end up going to the ER bunches in part to see if I need to make the trip up to Nashville or Mayo, sometimes we just drive to Nashville anyway because it's super fucking obvious. But if it's borderline or if we are unsure, then we go local. And unfortunately...locally is a crapshoot.
Humor can be dissected as a frog can, but dies in the process.
not a doctor, not a lawyer, examples I use may not be fully researched so don't take out of context plz, don't @ me
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
I have taken enough philosophy courses to know that robotic bodies are a bum deal unless I can keep my mushy brain.
Humor can be dissected as a frog can, but dies in the process.
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MetalbourneInside a cluster b personalityRegistered Userregular
I have taken enough philosophy courses to know that robotic bodies are a bum deal unless I can keep my mushy brain.
You can keep either the part that allows you free will or imagination. You can't have both
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Oh hey, Metalbourne is back! How you doing, girl?
Humor can be dissected as a frog can, but dies in the process.
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MetalbourneInside a cluster b personalityRegistered Userregular
Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
Chronic lyme disease? How does that happen?
Humor can be dissected as a frog can, but dies in the process.
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Donovan PuppyfuckerA dagger in the dark isworth a thousand swords in the morningRegistered Userregular
(tl;dr= shit is all kinds of fucked up and doctors can't figure it out, sound familiar?)
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MetalbourneInside a cluster b personalityRegistered Userregular
So the cool thing is that both Lyme disease and PTSD give me this increased sensitivity to sound. Like I really want to listen to music right now but any noise makes me want to throw up
I ZimbraWorst song, played on ugliest guitarRegistered Userregular
That looks really interesting, Tynic. Gonna have to get one of my academic friends to snag that for me.
Fiancee has her fecal transplant scheduled. Luckily the hospital has signed on with OpenBiome since the last one so we don't have to solicit shit from our friends this time around.
+8
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MetalbourneInside a cluster b personalityRegistered Userregular
That looks really interesting, Tynic. Gonna have to get one of my academic friends to snag that for me.
Fiancee has her fecal transplant scheduled. Luckily the hospital has signed on with OpenBiome since the last one so we don't have to solicit shit from our friends this time around.
*re-buckles belt*
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Munkus BeaverYou don't have to attend every argument you are invited to.Philosophy: Stoicism. Politics: Democratic SocialistRegistered User, ClubPAregular
What's forum policy on scientific publication piracy
Marty: The future, it's where you're going? Doc: That's right, twenty five years into the future. I've always dreamed on seeing the future, looking beyond my years, seeing the progress of mankind. I'll also be able to see who wins the next twenty-five world series.
Posts
I just don't want to have one more thing, you know?
While this is true, you can try out the diet and if you strictly stick to it, then you can cross one thing off your list. Either way, you won't have to worry about IF out have celiac's.
If there is a decent chance for you to have celiacs disease, then you really should try out the diet as soon as possible. You either get peace of mind by ruling out a potential diagnosis,or you start feeling AMAZINGLY better. It's a win-win!
Thanks for the advice, but I'm just not comfortable self-diagnosing, especially since I have a host of other issues that make me feel bad. It's hard to tell what "feeling amazingly better" feels like when other things are involved (and a lot of them are abominal). I'm making a lot of very major changes to my diet as it is to address other things, so I'm going to concentrate on that. Celiac is one of a couple of possibilities, so I'll just follow my doctor's plan and keep on keeping on. If the other changes don't sort my GI issues out, I'll go back to my doc early.
I don't think I have Celiacs but maybe I should get tested for it and some other things, just to be sure.
so i took a fluoxetine a few minutes ago, and i suspect it broke open in my throat. i just burped, and exhaled a plume of white at my monitor. "It's not that cold in here," thinks i, and then realize the only possibility, scampering off to gulp some water down. i am surprisingly not completely freaked out (aside from trying to ... wipe ... up where the powder may have settled so the cats don't walk in it, but motherfucker, i do not dust to begin with [also, non-freakout itself suggesting that it is working as intended]) because it was like-- YOU A DRAGON.
my throat's a smidge burny, but i don't think i inhaled any; just to be cautious, i think i shall delay my errands a bit to see if it affects me poorly.
-Indiana Solo, runner of blades
The Zofran, it does nothing.
phenergan? I'm sorry
Jesus Christ this is ridiculous
I am the 2 million dollar man. It is surprisingly below par.
no no I feel that, it's just the ridiculousness of the price difference
or honestly the price of most immunosuppressant medications
Funny how that works, eh?
Like, I didn't even realize I was doing this. I just started having some weird rash/reaction/deterioration of skin around my ostomy and increased pain at the site and just thought "I'll just power on through"
God dammit chronic illnesses why do you make us so stupid.
The kind of mental strength one needs to get through a long term illness is herculean. Let alone several.
Also, the numerous times it's been suggested that perhaps some of my symptoms are psychosomatic cause me to constantly doubt my ability to know my own body. The only consolation is that when you've built up a medical chart like I/you/we have, doctors tend to take you pretty seriously. Ive always been deathly afraid that I'd come down with some terrible affliction and doctors wouldn't catch it in time, but that's pretty much a thing of the past now.
But literally anything else and I just tend to ignore it until it gets mission critical.
my ex was the same way (kidney failure/transplant) and was so worried about bringing up "nonsense" issues that she ended up in the hospital several times, and, on extra medication since she ignored a problem that was easily solved with something like an antibiotic
never worry about talking to your doctor, they want you to be healthy too, even if you think it's not worth talking about, it might actually be, they don't hate you. To get uber practical, you pay their bills, the more concerns you have the better off they are at the end of the day.
ER doctors tend to be overworked and grumpy, I can agree with that.
But you have a PCP/GP that's following your case right? They're far more likely to listen. I probably wouldn't mention it in passing in an ER unless I let it go to the point where it's now an ER issue?
Specialist then? Are you being managed by ER doctors?
Yes, I do end up going to the ER bunches in part to see if I need to make the trip up to Nashville or Mayo, sometimes we just drive to Nashville anyway because it's super fucking obvious. But if it's borderline or if we are unsure, then we go local. And unfortunately...locally is a crapshoot.
You can keep either the part that allows you free will or imagination. You can't have both
Oh, you know, chronic lyme disease is a bitch
Ticks blazin' 420 erryday, brah.
For real though: https://en.wikipedia.org/wiki/Chronic_Lyme_disease
(tl;dr= shit is all kinds of fucked up and doctors can't figure it out, sound familiar?)
Investigating Trust, Expertise, and Epistemic Injustice in Chronic Pain
Fiancee has her fecal transplant scheduled. Luckily the hospital has signed on with OpenBiome since the last one so we don't have to solicit shit from our friends this time around.
*re-buckles belt*
That looks interesting, but unfortunately I cannot spend 40 dollars to read it.
Doc: That's right, twenty five years into the future. I've always dreamed on seeing the future, looking beyond my years, seeing the progress of mankind. I'll also be able to see who wins the next twenty-five world series.